bendy ducky @huffleducky - Tumblr Blog

m1sterb1ng - Twitch

Shameless plug for my incredible partner. Can we get him to 300 followers by the end of the month!!

•18+ Adults Only

Watch Anya Live on Cam

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.

✓ Live Streaming✓ Interactive Chat✓ Private Shows✓ HD Quality✓ Free Actions

Free to watch • No registration required • HD streaming

the-withering-system

Fuck you if when a disabled person says their unemployed and stuck at home you say "that's the life hey?" IT'S NOT ITS FUCKING TORTURE

We CAN'T do things, basic tasks, looking after ourselves, walking, thinking, being mobile, we spend everyday in pain that would make you cry. Do you still think that's the life? Waking up with bed sores? Having seizures constantly and no one helping figure out why? Having to spend hours setting up and disconnecting from medical equipment that keeps you alive? That's your goal?

We don't spend our time at home just fucking around.

I wish I could work, I wanted to be a doctor, but I can't even drive anymore.

So don't you dare say you want this life, that I'm living your dream staying at home.

the-trans-dragon

I think there should be a limit to how many Illnesses you experience at one time, it’s not fair that they’re allowed to stack endlessly

dovewithscales

Fucking mood

dovewithscales

I put in a support ticket but all I got was an automatic response.

retrogamingblog2

queerautism

You can buy any mobility aid you want and can afford btw and this includes (but it's not limited to) canes, crutches, walkers, rollators, wheelchairs, powerchairs, mobility scooters, etc etc you dont need to tell a single doctor beforehand, and anyone trying to make you think otherwise is a fucking cop

•18+ Adults Only

Watch Anya Live on Cam

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.

✓ Live Streaming✓ Interactive Chat✓ Private Shows✓ HD Quality✓ Free Actions

Free to watch • No registration required • HD streaming

nebulae-d

" Young disabled people are all faking it, there's nothing wrong with them, they just want the attention! "

Me, literally sobbing in union Station because I was so angry about having a mobility aid and not being able to do the same activities as my friends because of it and shaking because I kept getting stared at:

young disabled ppl are valid and if you think otherwise unfollow block whatever this is not the place for your bigotry.

softyin

can’t wait to wear this to the pharmacy 😎

wizardpotions

please teach kids that its not normal to be in pain all of the time, we also need to start taking kids seriously when they talk about pain or difficulty physically, kids and teens can absolutely have chronic pain, medical conditions and disability that you cannot see. a kid isnt going to lie to you about being in pain 24/7 repeatedly.

disabledace

It's funny to me that abled people seem to think disabled people are only allowed to have 1 disability. You tell them you have multiple and they're like "you have X disability? I thought you had Y disability!" as if they're mutually exclusive. Buddy I'm all kinds of fucked up, don't know how to explain this to you

Day 31 - Community

I’m aware this is a day late!

Community is a big part of me. I both work and volunteer in different communities helping look after people. However, I also belong to a community of other zebras (otherwise known as a Dazzle). In the various Ehlers-Danlos Syndrome support groups I’m part of, we all help each other in different ways and are always there to comfort each other.

www.justgiving.com/fundraising/pamela-kellyzebra

#edsawareness #edshsdawarenessmonth @ehlersdanlosuk @ehlers.danlos

•18+ Adults Only

Watch Anya Live on Cam

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.

✓ Live Streaming✓ Interactive Chat✓ Private Shows✓ HD Quality✓ Free Actions

Free to watch • No registration required • HD streaming

Day 30 - Highlight a different type of Ehlers-Danlos Syndrome.

I am diagnosed with Hypermobile Ehlers-Danlos Syndrome (hEDS) so I’m going to raise awareness of another rarer form of Ehlers-Danlos Syndrome - Kyphoscoliotic Ehlers-Danlos syndrome (kEDS).

If you want to find out more please visit https://www.ehlers-danlos.org/information/kyphoscoliotic-ehlers-danlos-syndrome/

www.justgiving.com/fundraising/pamela-kellyzebra

#edsawareness #edshsdawarenessmonth @ehlersdanlosuk @ehlers.danlos

Day 29 - What awareness means to me

Awareness is defined as:

Awareness is the state of being conscious of something. More specifically, it is the ability to directly know and perceive, to feel, or to be cognizant of events.

To me awareness means being aware of Ehlers-Danlos Syndrome and have a very basic understanding about it. Awareness of Ehlers-Danlos Syndrome would mean so much to me, as I am constantly being told I’m too young to be in this much pain, or asked ‘what did you do’ when I have a new injury or wearing one of my braces. For people to understand that my body doesn’t function like other peoples, would be a huge step towards Ehlers-Danlos Syndrome awareness!

If you see this and you know something about Ehlers-Danlos Syndrome, or you want to learn more please let me know in the comments 🦓💜

www.justgiving.com/fundraising/pamela-kellyzebra

#edsawareness #edshsdawarenessmonth @ehlersdanlosuk @ehlers.danlos

Day 28 - Managing symptoms

I use various things to help manage my symptoms, from pain meds to heat packs or ice packs. Sleep also helps, along with salty snacks and isotonic drinks. www.justgiving.com/fundraising/pamela-kellyzebra

#edsawareness #edshsdawarenessmonth @ehlersdanlosuk @ehlers.danlos

Day 27 - My wish for Ehlers-Danlos Syndrome research

I wish for Ehlers-Danlos Syndrome to be researched into more. I want people to know more about it, and for more after diagnosis care to be given - as medical professionals will be more aware of Ehlers-Danlos Syndrome.

www.justgiving.com/fundraising/pamela-kellyzebra

#edsawareness #edshsdawarenessmonth @ehlersdanlosuk @ehlers.danlos

ragdoll-ren

the problem with adulthood is obviously the neverending Tasks, the spinning of plates inherent in existing in the world - but the problem on top of it all is that Accomplishing Tasks is never weighted as evenly by the outside world as it seems on the inside, as the person for whom the Tasks are overlapping and piling up.

My boss doesn't care that I cleaned my bathtub, my landlord doesn't care that I managed to do physical therapy, the DMV doesn't care that I'm singlehandedly writing my workplace's annual report. This isn't even a "everyone you meet is fighting a battle you know nothing about" situation - everyone on earth has shit to do, but that fact almost never factors into how society expects people to function

•18+ Adults Only

Watch Anya Live on Cam

Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.

✓ Live Streaming✓ Interactive Chat✓ Private Shows✓ HD Quality✓ Free Actions

Free to watch • No registration required • HD streaming

Day 26 - My wish for EDS diagnosis pathway.

I wish for people to be better informed about what Ehlers-Danlos Syndrome is. I want GPs to be able to have a basic knowledge of it and how it can affect people. I want them to be able to refer patients to a specialist in Ehlers-Danlos Syndrome to confirm diagnosis. I also want help to continue after diagnosis and not have to be re-referred into services every few months.

www.justgiving.com/fundraising/pamela-kellyzebra

#edsawareness #edshsdawarenessmonth @ehlersdanlosuk @ehlers.danlos

Day 25 - My most challenging symptom

The most challenging symptoms I face are the dislocations and subluxations, as well as the widespread chronic pain. I’m constantly in pain which can also make me very tired, and lack energy to do things. I also have to be really careful not to make my pain worse or dislocate something. This can mean I often have to stop doing things I love or be very very careful and plan every step of the way.

Pain and dislocations mean I can’t be spontaneous and everything has to be planned, which means I can’t be a normal 26year old and do things my friends can.

www.justgiving.com/fundraising/pamela-kellyzebra

#edsawareness #edshsdawarenessmonth @ehlersdanlosuk @ehlers.danlos

Trending Blogs

Last Seen Blogs

bendy ducky