harpdoodles

wdym this is the second fan art of this game on Tumblr................... (I'm starved. please. need. human construction site content..)

shit posts under cut

we have a condition called Postural Orthostatic Tachychardia Syndrome, or POTS!

POTS is a disorder of the autonomic nervous system. It causes an abnormal increase in heart rate (tachycardia) upon standing! The defining symptom is a heart rate increase of 30-40 bpm and a sudden, extreme drop in blood pressure when we stand up

it can be pretty hard to live with on some days, because while normally the human body needs only 2000 mg of sodium, we need between 3000 and 10,000

we also have an incredibly hard time exercising, brain fog that can cause memory issues, chronic fatigue, and faint incredibly often!

our disability is invisible, and we don’t get and accommodation for it at school, and that can be really tough, but we’re learning to manage!

I also have POTS!! And chronic pain syndrome!

The POTS does cause the chronic pain but we ball!

I find Tthe I really struggle with the amount of salt and water I need to function normally. I don't have an eating disorder but I do have disordered eating. because of being undiagnosed with POTS I have chronic stomach pain because of the digestion issues that can come from POTS.

And because I only got diagnosed semi recently I'm still adjusting with eating smaller more regular meals and drinking two to three liters of water every day. Also eating a shit ton of salt. That's been a learning curve 😅

I'm fairly lucky because I'm yet to properly faint! I have definitely had dizzy spells enough that I fell over but I've not medically passed out yet!

I use a cane when I go on big outings where I have to be on my feet for long periods of time!

Like my moot has already said, our disability is invisible. I also don't get many accommodations at school but my school is fairly lenient when it comes to what I need. Especially with my autism and chronic pain! It's still definitely could be better! I desperately want to fight the school on my friends behalf who is an ambulatory wheelchair user. But that's not my story to share.

Constantly forget that brain fog is a symptom of POTS, but, I too, struggle from memory issues from it.

It's been putting in a lot of effort into increasing my exercise intolerance mainly in the form of building my muscles in my abdomen and core to help with blood circulation! It's still a long process where I get out of breath just by claiming the stairs to my class but I'm getting there!

I adore the fact that I got diagnosed it was one of the best days of my life. We spent six years trying to figure out what was causing my chronic pain. And finally learning what it was, was life changing. I both love and hate my weird little body! And I woudent change it for the world

HAPPY DISABILITY PRIDE MONTH EVERYONE!!

@harpdoodles @kevincreeley @cytheshark + anyone else who wants to share ^^

The scoliosis technically isn’t a a disability, as the spinal curve has to be at 30 degrees for it to count as one, but I got diagnosed at 26 and last time they checked it was 29, so…

It affects my ability to sit, stand, or even lay down for extended periods of time, causing discomfort and a fair amount of pain if I don’t shift positions every couple of minutes.

Now over to the POTS- I also struggle with drinking enough water (I’m probably dehydrated but that’s neither here nor there) and getting enough sodium. My doctor advised to buy salt pills, which I think have been helping. Also I really like salt, so I don’t mind putting extra on my food. Back when I was younger, I used to eat straight piles of salt… there may have been signs

Fatigue is a BITCH. I’m tired literally all the time. I can literally sleep for 12 hours, stay in bed all day, sleep another twelve and wake up exhausted.

My vision blacks out any time I stand up after sitting for over 10 minutes (sometimes less), but I’m also lucky enough to have not fainted!

I can still do exercise and physical activities, but man does it take it out of me. I do dance twice a week, and in one of my classes it’s fairly normal for my vision to black out around 5 times in the last fifteen minutes, and it takes about twenty minutes after class ends for my breathing to fully return to normal.

Speaking of which, sometimes my body randomly decides I shouldn’t be able to breathe, so that’s fun. No pattern that I’ve discovered yet, but it hasn’t made me pass out yet so it’s on the back burner

My body is also really bad with temperature regulation; I’ll frequently overheat or get extremely cold out of nowhere, and I can’t stay outside for long periods of time when it’s hot (or in general… every reaction my body has to the outdoors is negative. Sunlight makes my skin itch and eyes burn, even if I have them closed and I’m in the shade on a cloudy day).

As for the OCD: I’ve gotten a better handle on it over the past couple of years, but it used to be really bad.

My main obsessions were evenness, cleanliness, and safety. The compulsions that grew from that were:

Evenness — making sure I touched everything an equal number of times on each side. I bumped into the doorway with my right shoulder? Now I’ve got to do it with my left too. And then both again. And again. I particularly like sets of four and eight, so it would go something like right-left-left-right left-right-right-left left-right-right-left right-left-left-right. It also affected my breathing, as I had to make sure I inhaled and exhaled the same amount. Think of it like there’s a line that marks when you’ve breathed out all the way (not uncomfortable, but to the point where you would usually take another breath). For every amount over that line that my inhale took me, I had to exhale that much further under the line. Basically, I would be breathing out to the point of extreme pain in my lungs/chest from lack of oxygen.

Cleanliness — if I had to sit or lay on the floor for some reason (for example, at dance, but this was the case for any floor), it would send me into a near panic attack until I could take a shower and scrub myself off. The main issue was hands, though. I’d spend on average probably about 20 minutes washing my hands every time, and I scrubbed them so hard and so much that the skin would break open and bleed every day, no matter how gentle I was with them otherwise or how much lotion I slathered them in at night. It still now takes me around 5 minutes to wash them, but hey, progress

Safety — I was constantly convinced that my parents were going to die every time one of them left the house. I’d cry in my room after they left because I was sure it would be the last time I ever saw them. I always had to make sure the last thing I said was that I loved them, or they would die not knowing how much I cared. The other thing, which I still do to this day, is quadruple checking the locks on all the doors before I go to bed, as well as checking behind doors, furniture, in the stairwells and inside of closets (anywhere big enough for a human to hide) to make sure everything was normal. I can’t even close my eyes at night if I don’t do this, and sometimes I’ll get up to redo the whole routine if I felt like I didn’t do a good enough job earlier.

Anyway thank you for the tag!! Sorry it took a few days, I knew that I’d need to do this sometime when I had a while to sit and write everything out (this took about 40 minutes, lol-)

Absolutely zero pressure, I know this is a deeply personal thing for a lot of people. However, should you want to, I’m more than happy for anyone, whether we’re mutuals or not, to reblog and share your own story!!

@stxrfiish (I don’t know who my other chronically ill/disabled moots are… sorry gang, I swear I love you ToT) + the openest tags you’ve ever seen

make this picrew and put your name in the incorrect quote generator!

Tasha: Wow, this sucks. I’m gonna kill *remembers that suicide jokes only worsen your mental health and that the first step to healing is stopping* you.

Here’s what I got from Incorrect quote generator:

Kate: If I’m extra sarcastic with you it probably means I’m flirting with you or you really annoy me and I can’t handle your crap… have fun figuring out which one.

The quote is true!!

....That's so me-

Sadly the royals don't let me pet cats outside our home :(

Coughs, anyways...am I a pretty boy?

Lmaooo am i fire proof???

THE QUOTE GOT ME XD XD LMAO!! I WANT THE CAKE TO DO IT!! XD XD (fnaf mentioned? Chica's cupcake XD)

(The nose bleed is true thought...especially in summer 😔)

Average loser bisexual right here ^^

Thanks for the tag Idy!

We swear we have eyebrows they’re just blond and there was no blond option so we couldn’t do them 😭

Wren: I'm not a morning person. I'm barely even a person.

....accurate

Thanks for the tag!

harp: I’m a multitasker!

harp: I can disappoint fifteen people at once.

stage 2 of liking media: haha remember when blorbo bleepus did that thing that was so funny

stage 3 of liking media: huh this one song is kind of blorbo bleepus… if you think about this other song is also kind of blorbo bleepus

stage 4 of liking media: blorbo bleepus is really interesting… here’s a sensible analysis post

stage 5 of liking media: FUCK. THE CHARACTER. THE CHARACTER IM HAVING A CHARACTER ATTACK

stage 6 of liking media: well let’s see what ao3 has to offer!

stage 7 of liking media: everything goes on my character playlist. this song with no lyrics is about blorbo bleepus exploding a building and looking really cool. if this lyric was an entirely different sentence it would fit perfectly