Prayers for Lennon, January 2024
To our family and friends,
This month is a big one for our family, especially for Lennon. He will be going in for a follow up CT scan tomorrow morning at Beaumont RO. This scan will show us whether his lungs have worsened, healed, or stayed the same. It will be the first time weβre seeing the condition of his lungs since August. The last scan showed an abnormal result β lots of holes and scarring on his lungs. We have been waiting for this scan and praying so hard to see improvement in his lungs. We want our baby to be on his way to healing and to experience life without the need for supplemental oxygen if itβs in Godβs will for him. More than that, itβs our hope that this scan will give his pulmonologist and team of doctors new information. Up until now, theyβve been clueless in how to treat Lennonβs lung disease. We are hoping this scan offers new insight that gives his doctors a new angle to consider. We are anxious yet hopeful about his results and would appreciate prayers for strength and peace as we wait.
Following his scan, weβd also like to ask for prayer for Lennonβs upcoming appointment at C.S. Mott Childrenβs Hospital / UofM on January 9th. We are seeking a second opinion at UofM and weβre praying so hard that there is a doctor on their pulmonology team that has seen or cared for a baby like Lennon before. His lung disease is not a common one which has made it hard to find care for him. We are praying for just ONE doctor who knows how to treat Lennon or at least point us in the right direction.
We are growing weary from all the uncertainties. We donβt know what type of lung disease Lennon has or how severe it is β only that itβs interstitial lung disease (an umbrella term). We donβt know how life threatening the disease is. We donβt know how long we have with our baby. My own research tells us itβs between 3-5 years for babies born with ILD. We donβt know if heβs in pain or if he needs immediate intervention to give him the best chance at a long and healthy life. We need some definite answers to be at peace. We donβt want our baby to suffer more than he has to if thereβs something we could be doing to help ease his pain now.
Weβre preparing ourselves for changes following Lennonβs pulmonology appointment at UofM. We donβt know what will be required of us once heβs an established patient there. Whether weβll need to make the commute to Ann Arbor often, or have Lennon readmitted for observation, or even be turned awayβ¦weβre just praying that the Lord provides us with what we need for every outcome.
Please pray for these specific things and anything else you feel led to pray for. We are so grateful for each of you and we couldnβt do any of this without your support and love. We will update you as we receive his results and process what it will mean for our family. Thank you so much.
All our love, Gloria and James









