Bnuuy's Simblr

i cum in peace. 💦

Stefan, a feline beastmen. Stefan is a botanist, having become fascinated by the plants of the North.

Stefan grew up in a rural Southern village, having spent most of his time outdoors, exploring the forest, the fields, the mountainside, he came to appreciate the plants and the nature that surrounded him at every step.

Once he entered the academy at 19, he quickly rose to the top of his classes. His professors were impressed and by 24 he had graduated with job offers left and right. But Stefan didn’t want to be tied down to one place - how could he explore on his own time and find new plants in their habitats if he was secluded to an office somewhere?

So, he did what he had to do. He set off with nothing but the clothes he owned, a few empty notebooks, writing and art supplies, and he took off. He spent 5 years wandering the empire, documenting the plants, before he finally found his way to the North.

To say that he was amazed would be an understatement, he was absolutely enthralled by the fauna in the North. He’d never imagined that he’d find blooming flowers in the icy weather. Nor did he imagine that he’d find like-minded individuals by accident.

in 2019 the FDA approved a drug called trikafta (which is really three drugs in one) for cystic fibrosis treatment. what it essentially does is patch up the malfunctioning proteins that cause the extra sticky mucus. trikafta is effective on about 90% of cystic fibrosis patients.

people who had spent their entire lives in and out of hospitals, on and off of ventilators, suffering from pneumonia and sometimes treated through painful procedures like intubation took this drug, got out of bed, coughed up an entire lifetimes worth of mucus out of their lungs over the course of a few hours, breathed clearly for perhaps the first time in their lives, and now go on to live well into their seventies.

My ward is the respiratory ward - CF is one of the things we specialize in.

Since this med came out we haven't had a SINGLE CF admission to the ward

There used to always be a CF patient spending a couple of months with us at a time

There's a man who is 23 years old who I was sure would not survive his next admission (aim saturations 85% is end stage lung disease)

There's a set of the local frequent flyers that we all know so well

Except

No we don't

On the CF specialist ward (with reasonable staff turnover)

Half the staff have probably never even seen a CF patient

Additionally, it should be noted that metrics like life expectancy are in no way a guarantee of... Anything. There are significant outlier CF patients who are at an advanced age now despite the odds due to a variety of different factors, having lived the majority of their lives before the development of modulators.

That is per month with the most common coupon people are likely to use.

But don't worry, there's grants and patient assistance programs you can apply for. 🤞🫠 Most people in high income countries like the USA can get it "covered" through insurance for fewer thousands of dollars. Or even less if your insurance is good or the manufacturer likes how poor and/or on Medicaid you are! A good social worker will help you with the process, and make sure your yearly reapplications and PAs are done a little early so they have time to think about it before you run out. Jesus Christ.

it occured to me i never uploaded her

aka certified dumbass aka homewrecker aka community dick