The Fibro File of Feels

thing I am proud of: when the doctor started going on a weird rant about long covid not being real I paused and listened to his nonsense for a bit and then very calmly said, in a polite and curious tone, "you don't believe in post-viral illness?" and he like. stammered a bunch and was like OH WELL I'M NOT SAYING -- I DON'T...I just think ..! and backpedaled awkwardly while I just sat there like :3c interesting :3c thank you so much for clarifying your stance on this :3c

an important skill for chronically ill people to develop is the ability to treat the doctor as though they are simply a person you are interviewing to find out how much they know about your condition.

mobility aids and glasses should be free for everyone

people need those to live

MEDICATION SHOULD ALSO BE FREE ACTUALLY. PEOPLE ALSO NEED THAT TO LIVE

ok i get the sentiment from people in the notes and i do agree with it but this is specifically a disability post

“you’re a grown ass man and you need help doing that?” some grown ass men are disabled ma’am

adult men who are disabled deserve compassion and understanding and support and not just endless verbal abuse from sheltered privileged assholes who think they are punching up let’s be so for real

man if you're disabled you've GOT to find some way to make your fuckass body a source of pleasure whenever you can. jacking off. eating good food. wearing soft clothes. kissing an animal on the head. whatever you can do

abelds have this funky ability where they hear disabled people say they "can't" do something and instead of hearing "can't" as in, cannot, they hear "i can if i push myself and i just don't wanna". which is really interesting!

people in my notes mentioning that people don't respect the fact that they can't do certain things without heavy consequences and ableds want us to beat those consequences for their convenience. and that's true but i do mean that people who say that they can't do something need to be taken at face value that it's just not possible to do at all. i want people to respect the literal meaning of "i cant'" because it's often dangerous otherwise. like people will straight up put a disabled person into situations that are harmful or incredibly dangerous for them being they assume "can't" means "i can a little bit". and when that thing is "I can't eat [allergen]" or "i can't walk at all" and you get stuck with food contaminants or at the top of a half flight of stairs they assumed wouldn't be a problem then that can actively, seriously, literally be harmful and dangerous

This is Accessibility and Disabled Joy!