My mom is starving to death- please HELP!!!
This ISNāT a call for money!!
Alrighty tumblrites, I need you now more than ever. Your ideas, you resources, your suggestions- Iām listening.
Since March my mom has been extremely sick- every time she tries to eat, she throws up. Iām not exaggerating- EVERY TIME she takes a bite of something, she vomits. Even when she isnāt trying to eat- she vomits. 8-12 times a day, sometimes more.
She can barely drink anything, it all tastes s bad that it makes her vomit too- yes, even ice chips.Ā
Her primary wonāt see her- of the three telecom appointments weāve gotten with his office (not HIM), all they have done is sent her antibiotics and, after I demanded them, referrals to specialists. She has seen an Ear, Nose and Throat doctor and a Gastroenterologist- both have encouraged my mom to see a Rheumatologist, which we have gotten several referrals for, except none of the oneās accepting patients take her insurance.Ā
Aside from whatever is causing the vomiting, they suspect she hasĀ Sjƶgrenās syndrome, because she has also been suffering from an inability to produce either saliva or tears. I mean, her mouth is bone dry, 24/7 and it is probably the reason everything she tries to eat tastes like sand, even water.
But we canāt get into a Rheumatologist atm. On top of that, her gastro dr. did an endoscopy and colonoscopy on Aug 11 and found signs of Barrettās esophagus, several polyps, and a twisted colon- so twisted that they couldnāt complete the colonoscopy and now have her scheduled for a virtual colonoscopy on the 20th. I know they are investigating Chronic Vomiting Syndrome and Gastroparesis⦠but she wasnāt able to complete a stomach emptying study because to do it she has to swallow a medicine they track and⦠you guessed it- she canāt swallow anything. She threw it up.
Ā But NONE of this helps her right now- she canāt eat anything despite being constantly hungry. I rubbed her back toady as I held her hair back and could feel her ribs- I am literally watching my mom starve to death, and watching her get weaker and weaker and we donāt know what to do.
We take her to the ER, and they give her a bag of fluids and send her home. We tell her doctors she isnāt eating but all her blood tests and stuff come back normal, so they just shrug.Ā
At this point I know what I want- I want home health coming in to support her, to monitor her condition to see what is happening. I want her hospitalized until they can determine the cause of the problem, so that if nothing else they can hook her up to a feeding tube so that I donāt lose my mom.
I donāt want my mom to die guys⦠I donāt want to stand by, helpless as she starves, I donāt want to wake up and find she dies in her sleep because she aspirated, or her body simply gave up. I hear people talking about being ready to die because they are miserable, and in the meantime Iām grasping at straws to try and keep the most important person in my life alive.
And she is suffering, and in constant pain, and I canāt even imagine the torture of being constantly hungry and surrounded by food that you canāt eat and I need help.
Please, please, any ideas you might have, any resources we might not have thought of⦠I need them. Please, if you canāt think of anything, at least reblog this post- I know itās long as hell, but Iāve got to hope maybe there is someone on this site that might have an answer.