i am a disabled individual and my posts will mainly focus on that. i do have did, but i don't tackle system issues on this blog.
i am white/black/indigenous!
i am LGBTQ+.
i have no/low empathy.
☆ ABOUT MY BLOG ☆
• i will probably only talk about a small handful of my disorders! i have polyfragmented did (i won't be talking about it much as i mentioned earlier), adhd, bpd, dpd, epilepsy (lennox gastaut syndrome specifically), pots, rett syndrome (it is half active and presents mostly as tics), autism, and mctd. i am also visually impaired. i also am intellectually disabled but i may or may not talk about this.
• i tend to type in all lowercase, this makes it easier for me to read and process what i type.
• i am very adamant about using very clear wording on my posts.
• posts with no image id will be tagged with "#no description"
• i talk about a lot about how much it sucks to be disabled. this is not a positivity blog, as i cannot guarantee positivity.
• i am very newly dealing with my own chronic pain and the physically disabled department. expect to hear how that's going.
• there will be a few slurs used here (that i can reclaim, of course)
• let me know if anything on my blog is inaccesible to you!
(incomplete) "do not interact" list:
• "endogenic" systems and people who believe in them, or are neutral on them.
• narc/bpd/disorder abuse believers. this should be obvious as someone part of this cluster of personality disorders.
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i've noticed that most of the critique around automatic hand-dryers in public bathrooms is centered around sensory issues or mostly just autism & this just further reminds me that even in the disabled community, autogenic seizures are quite unknown.
yes, sounds can cause seizures (this is more common in cats & a simple search will show more results for animals than anything about people)
they're a rarer type commonly seen in epilepsy syndromes such as lennox-gastaut or dravet— specific noises, frequencies, & even music may be audiogenic triggers
since i myself have epilepsy that is very resistant to medications it's totally an inaccessible part of being in public for me.
i of course, still go to public bathrooms— but this is the main reason why i have to wear headphones all day— not sensory related, it's seizure related. heavier music playing through bluetooth headphones is legitimately the only thing keeping me from being exposed to seizure triggers in there (automatic toilet flush & hand dryer)
yes, sensory issues are important too. i have them. but it does irritate me when epilepsy is boiled down to "shaking & make sure to keep stobing away", because there are so many triggers & severer versions of triggers.
for example, severe photosensitivity can also manifest as being reactive to colors, not just strobing.
july is disability pride month. it is also summer in the northern hemisphere, and this summer we have seen record breaking hot temperatures across the globe. it might be apt to remember that disabled people are a population vulnerable to extreme weather, and significantly more at risk of death or health issues during a heatwave. "the global mortality rate of people with disabilities in natural disasters is up to four times higher than people without disabilities." (source). disability may increase the relative risk of a heatwave more than old age, socioeconomic status, and being outdoors (source). even in the places most affected by the rising heat, disabled people are barely included in action plans for public safety, if at all (source). global warming is a an issue that affects a wide range of people, but let's not forget it is also a disability rights issue
just a few things this means: in certain epileptic people this may trigger their seizures or put them at a higher risk, people who have POTS or other forms of dysautonomia may have more more flare ups, and people who take certain medications (such as antidepressants) may overheat. feel free to add on in my comments
this applies both to dissociation and people who have seizures! as somebody with a dissociative disorder (DID) and seizures (lennox-gastaut type of epilepsy), i could be dissociating or seizing in absence. trying to make me react physically (hitting or yelling at me or waving your hand in my face) is not going to accomplish much. if someone does this to me they are going to agitate myself or someone else, whether we were dissociating or are now postictal.
i think i fit all the main stripes? the charcoal grey background colour is important, remember those in our community who have passed due to ableism. ableism is still so rampant.
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getting a diagnosis of hypermobility is great, we know we are hypermobile and everything. but it's also interesting, because we don't meet the beighton and we were diagnosed with mixed connective tissue disease, rather than something else, since the person diagnosing us didn't know what else to diagnose us with. we only present with h-eds hypermobility symptoms, so the mctd diagnosis is rather interesting.
before we get into anything, this is likely the only post that i'll ever make on this subject as i deny it often and don't want to seem like an ed blog. post under cut and trigger warnings in tags.
appetite suppression is part of one of my medications, and we recently went through withdrawals and got on a lower dosage. now though, i do feel like i'm falling back into old habits and wanting a higher dosage again (used to take 3 and not eat, we can take 2 and eat)
we don't really consider ourselves as having an eating disorder and blame it on the medication.. sigh.
i think it's also important to remember that the concept was taken from bodily integrity identity disorder and it was morphed into a "transID" for anyone to identify with.
if you don't know what bodily integrity identity disorder is, it is a mental disorder where one believes that they should be disabled, despite them being able-bodied. that's where the concept of the transabled transID came from.
(summary: transabled's definition came from bodily integrity identity disorder, a mental disorder that causes able bodied individuals to believe that they should be disabled and remembering that is important.)
no, i don't care if you've been called the r word over being autistic. you have no room to say it if you aren't also intellectually disabled. and frankly? the recent uprising in low support needs autistics trying to claim it is concerning. it is not your word.
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having rarer disorders is an interesting experience because there's rarely a community, just people posting their kids who have it or studies about the disorders. a lot of "lennox-gastaut syndrome warrior" things, which i personally dislike. do i ever see anyone with lennox-gastaut syndrome online? no. how about rett syndrome? again, no. and heaven forbid if i tell people i have the disorders, because i know the first thing they'll do is go to wikipedia and try to research the disorder. as for me, my lennox-gastaut and rett are not as severe as what you see online. most people would look it up and assume things such as me using a wheelchair or having my health issues be more severe for example, but it isn't. i think this is part of the reason why i face embarrassment when talking about my disabilities, most people would rather just assume. yes, i do have some skills i've lost or can't learn well because i am disabled, but not everyone with a particular condition is going to be the poster child model the internet shows you.
summary: having rarer disorders is odd because rarely there is community and it is mostly parents, and telling people about the more severe ones is embarrassing if you aren't the textbook.
hot take, accesibility in public bathrooms is great. but removing paper towels and only providing a hand dryer is not. they blow bacteria on your hands, whereas an automatic paper towel dispenser wouldn't. i've quite literally caught illnesses from touching objects that someone else who was sick touched in the past. i don't even get sick that easily either! and as somebody who experiences autogenic seizures, the hand dryer machine does cause them. accesibility is great, but the surrounding should be accessible too.
A flag for those who reclaim the slur cripple. This is meant to be used in the way of reclamation , empowerment , or to self describe one who feels as though this word best describes oneself.
This is EXCLUSIVE to physically disabled folk. Do NOT use if you are able-bodied. You are abliest if you use this term and are able-bodied!!!
Inspired by @rwuffles @saintuar @woodbyne
[Pt: A flag for those who reclaim the slur cripple. This is meant to be used in the way of reclamation , empowerment , or to self describe one who feels as though this word best describes oneself. End pt]
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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throwback to that one time a fellow physically disabled person asked me how i can say "cripple" so casually when he says fag casually? make it make sense
tomorrow is my next doctor's appointment (bloodwork results and EDS assessment), and honestly I'm just glad to get on the path of possibly knowing what is up with my body right now. It's very likely I have it, I believe I'm being checked for hypermobile type Ehlers-Danlos Syndrome.