Myasthenia & Fitness

Dear readers, having been using Prednisone in doses ranging from 2.5 mg to 125 mg once while being in the hospital, I am very familiar with all it’s effects and impacts in my body. My ode in it’s honor is due mainly because in many occasions, combined with my other medications, it has been miraculous. I celebrate the many times it has been crucial in helping my lungs breathe in a much easier…

“Nobody (and No Body) is a Defect”

Via PicMonkey

Dear readers, I just wanted to get out there and share my experiences throughout my vaccination journey. Probably the most difficult part of this journey has been the process of trying to explain why people with Myasthenia Gravis are compromised in so many ways. Even with my neurologist certification, I’ve had to go through the waiting after I’ve gotten to any vaccine center during the first,…

Mind Over Body: Your Choice!

Dear readers, all of  you know by experience that living with a disability usually doesn’t produce joy or any sort of happiness. However, if we are to strive within our Myasthenia or any other form of chronic illness we would need to shift the gears of our thoughts.

What  does that mean?

photo image via morguefile

Well  I’ll just talk  about me, not in an ego centered, but in my personal point…

Dear readers, I experienced the blessing of walking through the New York Botanical Gardens a few days ago. Now, don’t get the wrong impression about the walking part, I utilized the tram and walked just a bit. Yet, I walked in spirit through it all.

I am so grateful my spirit is enabled within my disabled body.

I truly believe all living species have a collective memory and we all breath the…

The Big, The Little & All In Between

Dear readers, as I pushed through the doors leading to the chapel at Union Theological Seminary to get some ice cream after my daughter’s graduation and I saw for the very first time a flight of stairs that could have been as high as Mount Everest, the words that came through my mouth were, “Jesus Christ”.

You know life is like that sometimes, you just don’t expect situations that startle and…

Dear readers, I began to toy with the idea of practicing yoga a couple of year ago. I’m ashamed to admit that it took me two years to begin breathing life into myself through this ancient practice.

The good news is that yogi experts have come up with ways we can have this experience through restorative yoga.

My three go positions are soft fish (opens chest muscles and relaxes the upper back),…

Dear readers, finding strength to keep our commitments is no easy task.  We plan, prepare and do our best to follow through and reach the goals we have set for ourselves. Many times failing along the way, and letting discouragement hit us fast and furiously.

One of the worst things we experience is discouragement, it just doesn’t let us move forward. It’s like a pond of moving sand that sucks us…

MG, Mind & Body

Dear readers, all of us know the ups and downs that go on when you live with a chronic illness like Myasthenia Gravis.  Our disability comes and goes like waves that hit the beach any given day.  Some days rough,  and others, subtle and gentle.

What makes it even more difficult is that we have what is known as an invisible disease. I am sure that most of us at one point or the other have heard,…

Dear readers, when Hurricane Maria hammered Puerto Rico, things looked dim and my thoughts constantly drifted back and forth.

One of the experiences that took a toll on my mental health was when I stood in line with my husband outside a supermarket, we frequently go to, and waited for instructions on how we were going to purchase some groceries we needed at home.  Part of the process was to…

Dear snowflakes, as the days spent in the hospital fade away and I get on with getting a little bit better each day I wonder about how I feel about the guarded prognosis I got when I was discharged from the hospital.

Guarded in medical terms roughly means that, it is usually more ill than a serious prognosis, but not as ill as critical. The doctor is not exactly sure of what the patient’s…

Dear readers,  summer in New York came and went, school began and I got caught in my day to day life routine until September 20th.

September 20th was the day that a category five hurricane hit Puerto Rico, becoming one of the deadliest storms in modern history.

All of you know as a fact that stress is an overall factor that causes exacerbation of our symptoms.

  I asked myself,  how do I remain…

Dear readers, as an MG patient you just accept and learn to deal with flares.  I’m not saying they are easy, but it’s just something we do.  We know the ropes of Myashtenia.  However,  sometimes we have to go through “what the ?????” moments.  Feel free to fill in the interrogative signs with whatever you want.

As Ian would say, “what the fart” .

You are probably asking yourself, “Ahhh so, what…

You Can Do This or That

Dear readers,  as a MG patient I get a lot of “you  can’t do this” or “you can’t do that” sort of speech more often than I should.  However, once in a while my ears turn deaf to all those assumptions.

Against to what other people may think they know about me and my MG, I decided to plan a holiday in New York and visit my daughter in school and take my little boy to a couple of nice places.

I had…

Dear readers, Prince Hamlet’s immortal “to be or not to be: that is the question” echoed through me ears as I heard the DMV’s employee voice as I asked about my handicap parking permit….

DMV lady:  Your neuro needs to fill in some additional information..

Me:  Okay, he can do that, but what’s the point of the questions anyway??

DMV lady:  Well, it does have a point you see, with this additional…