amy jeane

Seriously, though. What is “proof of an illness”? Pictures of medical IDs revealing tons of personal information? Pictures of hospital bands revealing more personal information? Pictures of being in a wheelchair hooked up to oxygen and an IV? ‘Cause, of course, anyone with any type of illness looks exactly like that!

See here’s the thing. It seems that once you have an illness or disability your body seems to become public property. And it sucks. I’m not talking about doctors or people who are closest to you or provide you care. I’m talking about the person you’ve just met offering a “cure”, or strangers asking what happened since you’re using a mobility aid, or even just the “what’s wrong with you?” stares when you use a walking stick, or snide comments when you take the elevator one floor.

Strange how we decorate pain.

Inspiration exists, but it has to find you working.

Man is least himself when he talks in his own person. Give him a mask, and he will tell you the truth.

I think it’s important for spoonies to remember that flares aren’t our fault. We can pace ourselves perfectly, take all our meds, eat all the right foods and still end up in a flare. I’m trying to remind myself not to feel guilty when I flare, and I think it’s a reminder other spoonies can do with too.