amanda in a nutshell

Tomorrow, our little boy will have his swallow evaluation. The last time the team tried to feed him something by mouth, he was six months and the team decided he wasn’t quite ready yet. Well, after a de-bulking surgery, sclerotherapy of his tongue, and 14 months later, we finally get to try again. If all goes well, hopefully this will bring us one step closer to having Alton finally start taking things by mouth. We know he’s ready! I ask for all the positive vibes, prayers, good thoughts and happy energy as we do our best to reach this next milestone. ❤️ https://www.instagram.com/p/CoBaXmvuxjD/?igshid=NGJjMDIxMWI=

Merry Christmas, from my family to yours. And especially from our little grinch, who is blessed beyond belief and thanks you all for the love, happiness and presents he received! 🎁🎅🏻🎄☃️ https://www.instagram.com/p/CmpE59Ovjsu/?igshid=NGJjMDIxMWI=

Time for our annual A5 Japanese Wagyu dinner! Thanks, #crowdcow 🐮 https://www.instagram.com/p/ClM79PFrKqJ/?igshid=NGJjMDIxMWI=

Gorgeous bouquets from our number one fan, congratulating us on our performance tonight! 💐Thank you for all the support, @bellevrn @bellev115! Only two more chances to see us! (at Deron School Ii) https://www.instagram.com/p/CkAEMgNDu1I/?igshid=NGJjMDIxMWI=

EIGHT. FREAKING. DAYS. https://www.onthestage.tickets/teaneck-new-theatre (at Studio Playhouse) https://www.instagram.com/p/Cj56CD-ubK3/?igshid=NGJjMDIxMWI=

This weekend and next weekend, Freddie and I are in a show of one-act plays called “The Save”, an adorable piece about speed dating in the future! It’s funny and super cute, and we would love your support to come see us! Plus, there’s a bunch more one-acts you’ll get to enjoy! Hope to see ya there! 🫶🏽 (at Grove Street) https://www.instagram.com/p/CjpoZxuuQ0Y/?igshid=NGJjMDIxMWI=

My husband is officially a playwright! For all those who love @oldsxhoolgmr (Freddie), I ask that you please support him and come watch this new, original, world-premiere production of FRANKENSTEIN, written and directed by Mr. Alvaro himself. Tickets are on sale now. You don’t wanna miss it! Not intended for very young audience members. 🧟‍♂️🧠💀 (at Studio Playhouse) https://www.instagram.com/p/CjBDVR9rVVk/?igshid=NGJjMDIxMWI=

The loves of my life. 👨‍👩‍👦 https://www.instagram.com/p/CjAqvJsLtDB/?igshid=NGJjMDIxMWI=

Selling 2022 New York Comic Con tickets! One for Friday, 10/7; one for Saturday, 10/8; three for Sunday, 10/9. $80.00 each, and that’s with tax, fees and shipping included. (at New York Comic Con) https://www.instagram.com/p/CihvGPerTqT/?igshid=NGJjMDIxMWI=

Yesterday, Alton was cleared by ENT to start practicing with a speaking valve at home. Since he was born, we have never actually heard him laugh or heard his voice without the rattle of the trach. Today, we reached a milestone and FINALLY got to hear his voice. His REAL voice. This is the beginning of what I’m sure will be a successful journey toward improving his speech and actually having him talk! I’m beyond thrilled that he tolerated it so well and cannot wait to continue practicing! I think he kept making noise because he was surprised at what he actually sounded like! Enjoy the sounds of a little trach baby finding his real voice for the first time! PS- I’m sorry I look like a disgusting bum. I was way too excited to share this moment with social media to care what I looked like. 🤭 https://www.instagram.com/p/CiNakGcrMGs/?igshid=NGJjMDIxMWI=

First time we ever made the JumboTron! (Moment not pictured. I’m just saying…🤭😋) (at US Open Tennis Championships) https://www.instagram.com/p/CiBQgnFLe_w/?igshid=NGJjMDIxMWI=

Thanks for the lift, Newt! (at Harry Potter: The Exhibition) https://www.instagram.com/p/ChqI_OELVYY/?igshid=NGJjMDIxMWI=

The evolution of Alton Jace. https://www.instagram.com/p/ChHLGqMuJ2W/?igshid=NGJjMDIxMWI=

The HAPPIEST of first birthdays to Alton’s best friend and our beloved “JHB”, Jack! Hope this year will bring you all the yummy foods, big laughs, tummy tickles, crazy adventures, fun times, sloppy kisses, and all the love in the world! @rcoop317 and @joeybees1 - CONGRATS ON HAVING A ONE YEAR OLD! 🎉🥳🎂🎁🎉🎈 https://www.instagram.com/p/ChCxpdcrw_q/?igshid=NGJjMDIxMWI=

THANK YOU to everyone for your prayers, positive vibes, healing thoughts and well wishes. The surgery went very well and this kid is literally acting like he wasn’t on a table, under the knife, for four hours. This amazing little boy is so strong and so resilient! He’s trying to take off every wire and tube. He’s trying to crawl around. He’s playing with so many toys. And of course, he’s got his eyes on Cocomelon! Here’s a picture of him in his room in the PICU. I’m saving this to show him when he’s older that he was a Smurf for a few days. Anyone else wanna list things he looks like? Perhaps a Hershey Kiss? It’s too cute! God Bless this brave warrior. Now, on the road to recovery! 💪🏽 (at NewYork-Presbyterian Morgan Stanley Children's Hospital) https://www.instagram.com/p/Cf4q5A3P2cW/?igshid=NGJjMDIxMWI=

Tomorrow is the day. At 7:30 AM, this brave, little warrior will be going in for his second debulking surgery. I remember when Alton was still in the NICU at 2 1/2 months, after his first debulking surgery, and the doctors said: “He might have another debulking surgery. But that won’t be for a while. Way day the road…” And here we are. I’m posting, to ask for prayers, good vibes, well wishes and healing thoughts. I love this little boy so much and I know he’s going to be okay. But any positivity sent our way is always much appreciated. I hope that this is just a step closer toward our end goal of getting his trach and g-tube removed. I pray for a speedy, strong recovery for him, and that his team of specialists can get as much of this mass out of our little boy as they can. We’ll keep you updated. In the meantime, here’s his latest picture of him with a smile, and the first time he really played with bubbles! Thanks and much love to you all! ❤️🫶🏽 https://www.instagram.com/p/Cf2g2zsLSkU/?igshid=NGJjMDIxMWI=

First Haircut! 💇🏻‍♂️POGI! 🫶🏽 (at Charles Hair Specialists / Charlie's Kids Salon) https://www.instagram.com/p/CfCWxWyLAAK/?igshid=NGJjMDIxMWI=