i just reblog stuff I like, that's it

The school system I grew up in put an absolutely ungodly amount of pressure on kids to Show Up Every Day No Matter What. Many schools are like this, but looking back, my town’s was borderline fucking dystopian. They asked me why I didn’t just “postpone” a surgery at one point— when I was fifteen— to give you an idea of how monumentally obtuse these people were.

So, in elementary school, I started having chicken pox symptoms, right? They were mild because I was vaccinated (yay!) but my mom recognized them quickly and took me to the doctor, because my mom is a reasonable human being with standards. The doctor said “yup, you’ve got those pox, it may seem mild but please for the love of god DO NOT take her to school, she is very contagious even though she may FEEL okay.”

So I had to stay home from school until I got clearance from my doctor to go back. I was an angry little gremlin the whole time, because I wanted to go to the school library and read books about the human skull, but my mother said, “no, you cannot leave this house, and do not scratch the bumps please.” So I sat at home and tried not to scratch the bumps, like a good little gremlin.

A few days into my Chicken Pox Related House Arrest, we got a letter from the school. I was far from the only person with chicken pox, as it so happened. Like… a tenth of my second grade class had Confirmed Pox. We all fell ill within DAYS of each other.

So how did this happen, you ask? Well, a kid had chicken pox, and he came to school anyway. “Ah, well perhaps they didn’t know,” you may very well say. “Maybe his parents didn’t notice!” No. No, they noticed. In fact they KNEW it was CHICKEN POX. They sent him to school anyway.

The kid’s parents…….. were, in fact, teachers at the school. And they KNOWINGLY made him go to school sick, because they didn’t want to risk hurting his precious “perfect attendance” record. They figured that since he wasn’t, like, Literally Dying, it was better for him not to miss school. Never mind the fact that they were actively endangering hundreds of little kids.

Fast forward to my freshman year of college. A kid came to class with mumps because he ‘couldn’t afford to miss’. Guess what happened? Mumps outbreak! Diseases are, as it turns out, good at being diseases! Vaccinations are phenomenal, but they can only do so much, and some people rely on herd immunity to not be killed by preventable illness.

This entire attitude needs to die. It’s dangerous. Food service workers are forced to show up sick, little kids are forced to show up sick, college students show up sick because they’re afraid of flunking out.

Script changes and tweaks are par for the course on any project, but this level of horseshit is unsustainable for the mental health and performance quality of any actor. I can't imagine trying to do my job as an entertainer under those sort of circumstances.

Not the “oh Einstein was probably autistic” or the sanitized Helen Keller story. but this history disabled people have made and has been made for us.

Teach them about Carrie Buck, who was sterilized against her will, sued in 1927, and lost because “Three generations of imbeciles [were] enough.”

Teach them about Judith Heumann and her associates, who in 1977, held the longest sit in a government building for the enactment of 504 protection passed three years earlier.

Teach them about all the Baby Does, newborns in 1980s who were born disabled and who doctors left to die without treatment, who’s deaths lead to the passing of The Baby Doe amendment to the child abuse law in 1984.

Teach them about the deaf students at Gallaudet University, a liberal arts school for the deaf, who in 1988, protested the appointment of yet another hearing president and successfully elected I. King Jordan as their first deaf president.

Teach them about Jim Sinclair, who at the 1993 international Autism Conference stood and said “don’t mourn for us. We are alive. We are real. And we’re here waiting for you.”

Teach about the disability activists who laid down in front of buses for accessible transit in 1978, crawled up the steps of congress in 1990 for the ADA, and fight against police brutality, poverty, restricted access to medical care, and abuse today.

Ed Roberts was one of the founding minds behind the Independent Living movement. Roberts was born in 1939, and contracted polio at age 14, two years before the vaccine that ended the polio epidemic came out (vaccinate your kids). Polio left Roberts almost completely paralyzed, with only the use of two fingers and a few toes. At night, he had to sleep in an iron lung, and he would often rest there during the day as well. Other times of the day, he breathed by using his face and neck muscles to force air in and out of his lungs.

Despite this being the fifties, Roberts' mother insisted that her son continue schooling. Her support helped him face his fear of being stared at and ridiculed at school, going from thinking of himself as a "hopeless cripple" to seeing himself as a "star." When his high school tried to deny him his diploma because he had never completed driver's ed, Roberts and his mother fought the school and won.

This marked the beginning of his career as an activist.

Roberts had to fight the California Department of Vocational Rehabilitation for support to attend college, because his counselor thought he was too severely disabled to ever work or live independently. Roberts did go to school, however, first attending the College of San Marino. He was then accepted to UC Berkeley, but when the school learned that he was disabled, they tried to backtrack. "We've tried cripples before, and it didn't work," one dean famously said. The school tried to argue the dorms couldn't accommodate his iron lung, so Roberts was instead housed in an empty wing of the school's Cowell Hospital.

Roberts' admittance paved the way for other disabled students who were also housed in the new Cowell Dorm. The group called themselves "The Rolling Quads," and together they fought and advocated for better disability support, more ramps and accessible architecture like curb cut outs, founded the first formally recognized student-led disability services program in the country, and even managed to successfully oust a rehabilitation counselor who had threatened two of the Quads with expulsion for their protests.

After graduation from his master's, he served a number of other roles- he taught political science at a number of different colleges over the years, served on the board for the Center for Independent Living, confounded the World Institute on Disability with Judith E. Heumann and Joan Leon, and continued to advocate for better disability services and infrastructure at his alma mater of UC Berkeley.

Roberts also took part in and helped organize sit ins to force the federal government to enforce section 504 of the Rehabilitation Act of 1973, which stated that people with disabilities should not be excluded from activities, denied the right to receive benefits, or be discriminated against, from any program that uses federal financial assistance, solely because of their disability. The sit-in occupied the offices of the Carter Secretary of Health, Education and Welfare building in San Francisco and lasted 28 days. The protestors were supported by local gay rights organizations and the Black Panthers. Roberts and other activists spoke, and their arguments were so compelling that members of the department of health joined the sit in. Reagan was forced to acknowledge and implement the policies and rules that section 504 required. This national recognition helped to pave the way for the Americans with Disabilities Act in 1990.