I love to crochet and make other crafts.

A funny little green bug we found while out on a stroll

https://teespring.com/pink-bags-t-shirt-fundraiser

So last night was the lyrid meteor shower. We saw 2 streaks. But never let it be said that I don't try. I laid out in a sleeping bag with midget for about 40 minutes. And OMG I am dying. It amazes me how little it takes me to be absolutely regret just trying to be a mom. And that is how my life goes. 30 minutes maybe an hour and I'm dead for the next for days. And repeat. https://www.instagram.com/p/B_STiiCF17H/?igshid=e56ipmw0hb2h

#edsawareness #edschallenge #spoonie So this picture I painted myself (it was not easy) I painted myself to try to show the pain I live in every single day. No meds help me, no alternative treatment helps me. I am not seeking or asking for the next big cure. I am sharing that I am very strong to live with what I live with everyday. I have lost alot, motorcycle rides, nature walks, walks on beaches. Just to name a few. I'm stronger than that though because everyday I wake up is a blessing, everyday I did not let my pain win I am a stronger spoonie. EDS does not get nearly enough help in the medical community. Nor does my other diseases to tell the truth. I am trying to do my part to share. And this is my little story. https://www.instagram.com/p/B_OYZBipkDd/?igshid=52qq5p5rec8x

#myedschallenge #edsawareness #imhere #disabledisnotabadword #wheelchairbound Ok so for the people who don't know me this is me. I'm wheelchair bound for about 5 years now. I fought for a very long time not to be in a chair. I tried cane's, and Walker's, and such. But I have lost the fight. I have a few gentic disease s one is EDS . I have Classic and Kyperscolisis kind. I have dysautonmia as well as Anklyditios spondylitis. I can only walk about maybe 3 steps before I get dizzy and fall down. I can't stand for more than about 1 minute. I crawl alot to get in my house and out of my house. I am here, I am disabled I am not ashamed. But my diseases do not really get the medical attention that we need to get help. There is no cure, we get tired alot, we live in unimaginable pain. Our joints "Pop" out. We are falling apart. But we are strong. We are here. We are #Zebras#wearespoonies. I also painted myself which you can find to share and show my pain I live in everyday. https://www.instagram.com/p/B_OXipEA8wn/?igshid=lscp6l0mqnvj

A very nice day at our little lake. https://www.instagram.com/p/B_LCO54l79-/?igshid=1m3es0uxv6bmz

Brother Bear probably one of my all time favorites. Next to Bambi https://www.instagram.com/p/B_K5laxFj4T/?igshid=5vxv42dz0hde

Today versus yesterday lol, welcome to New England https://www.instagram.com/p/B_Kt0VvlkaX/?igshid=14wf7h70pf7ue

Mother nature got her time frame all goofed up. She thinks it is January not mid April. Hubby said it snowed like this last April. Probably did can't remember lol. What is funny is it is supposed to be almost 60° tomorrow. https://www.instagram.com/p/B_HzIHfFrsR/?igshid=1wvka33vla404

Check it out. My second coding certificate this one in IOS. Don't like IOs much.and I'm doing this all on my own. I really hope I'm learning something lol. https://www.instagram.com/p/B--vZppln3f/?igshid=1w0pqo5wkc7j3

Outside, very breezy outside. But my cloak that hubby gave me is very warm https://www.instagram.com/p/B--NXWDlLvk/?igshid=1sen79pk74eqr

Look what I just earned. Still so much more to learn and earn. But it is the start. #coding#juststarting #onmywaytocoding#igotthis #codingchamp https://www.instagram.com/p/B-8MSGJF6ad/?igshid=13hmuc3dw0rbj