Did I talk about this already? I genuinely don't remember, mentioning it now since it still affects my current situation. Stalling will get me nowhere. I know that's true. I'm trying my best here. It was a herculean task for me to even get there as "fast" as I did on the May 1 2025 visit.
Once the hemothorax happened on April 25 2025, and I saw what it was doing to my SpO2, I knew I had to get the ER ASAP. I had to plan so much before I was able to muster enough courage to go the first time around:
I told my mother about it day 1, showed her my large arm bruise, showed her the spo2 CLEARLY SHOWING VALUES UNDER 90, hoping she'd be my emotional support in getting to the ER and helping me. But that didn't work, I don't know what I expected, I thought the obvious proof would be enough, but I guess not.
I knew nothing about the ERs around me, so I had to research the best one for me to go given I had no insurance and limited finances, while still attending a good ER.I discovered that Ben Taub ER fit that bill as the cheapest option since it's a teaching hospital.
The images above were from when I was getting courage to go to the ER. I don't like doing things without a plan, so I planned. Prepared a backpack with all the past medical documents I had & pills I used along with other supplies I needed like a powerbank, clorox wipes, facemasks, etc.
Planned a route to go there via uber to save cost rather than ambulance, found out the best time to go to the ER where there would be less people and be seen by a fresh set of doctors (weekday on the early morning 5-6 am, I basically got seen the moment I got there without wait despite it being a teaching hospital.)
Even with all of the above, with me being ready and set to go at 4 am, I stalled at the last step, to confirm the uber appointment for five mornings in a row (the 26th, 27th, 28th, 29th, and 30th). I felt an intensse amount of internal pressure stopping me, fear and uncertainty screaming at me not to do it, felt like a powerful invisible barrier that I could not surmount. I think my prior bad hospital visits in the years prior gave me actual legitimate PTSD about ever going to the ER again, I'm not kidding. I was having a gigantic mental breakdown even seriously considering going. I only pushed through on the morning of May 1 2025 because I felt a new onset of numbness, which was enough of a shock to me to snap out of it and just hit the button to confirm the Uber ride.
So what went wrong? The hemothorax had self-drained by this point for a few days now, while that's good and it meant my SpO2 was no longer frequently dipping under 90%, it also meant that they would miss the issue upon x-raying my chest, since they saw no fluid there. And since my SpO2 was better, their own check noted it to be in the mid 90s, so they were not concerned with it. I did show the resident the SpO2 value I had days earlier when it was under 90, but they just brushed it off after seeing the current values. So my lung concerns got completely dismissed. They saw my CBC values and obviously focused on that. But since I wasn't currently bleeding they weren't all that concerned and just put an IV on me and observed me for a while. No referral to a hematologist, no referral to a lung doctor, none of that.
I tried to raise concerns about my brain-- how the symptoms were matching up to the situation before my first stroke in 2015-- and this is where the resident actually took me seriously and wanted to possibly do a head CT scan, but he was overruled by the attending (who wasn't even in the room) and it got denied. In retrospect, I don't think the head CT scan would have helped much, the primary issue was with the left lung and CBC after all, and brain CT scan can't see brain microbleeds regardless, but that broke me mentally. I wasn't getting help with the lung, they saw the CBC issue but didn't get a hematologist involved or even a referral to one, and now they even dismissed my brain concerns too. I felt like all of my concerns were being dismissed, since all they wanted to do was watch me for a few hours to see if my condition would change. I just felt so broken. That I wasn't going to be helped, again, I just wanted to get the hell out of there, so I asked to be discharged. A huge mistake I know, I should have been more pushy, been more
Ughhh my head hurts, it's hard to think well, hard to put things to words properly, hard to rmemeber without constantly having to look at past writings and pictures. What was I even writing about again? About stalling, and needing to take action.
But I did take action, 7 days late, but I did take action. I didn't get the proper help I needed.
I'm like a man drowning on the surface of the ocean. The May 1 2025 visit was me briefly able to have my head rise above the waters and call out for help. Once that failed, I was drowning again, and this time, my head wouldn't resfurace until it was way, way too late. I wanted help and reached out for help on May 1 2025, and didn't get it.
Ugh, I'm sorry for being so weak in advocating for myself, in not persisting after that failure. I tried, I really did try.
I know, that's in the past, you gotta do something now, or things arent going to get better. I know that. I'm just so damn tired. Of having to fight others, and then have the ER still miss the issue. I already visited the ER twice before and visited a hematologist and neurologist and did imaging. Please be nice to me, I really did try.
Sorry for being so whiny
Thanks for reading, whoever does
LSam aka Jaime