the sky is starry eyed; as am i

If you have short visits to get dressed, wash and take meds it’ll all be written down. For someone like me with 24/7 care, almost my entire life is recorded and shared with the carers, care company, the CQC, and parts of the NHS and local authority. If she wanted to, my social worker (who is basically a government employee and has a .gov.uk email address) could find out at any time what I had for dinner last Thursday.

I’m pretty sure she can also find out where I go when I go out, get a vague idea of who I spend time with (or at least when and where I meet people), if I drink any alcohol or use substances, when I shower… if a carer is present and helps me in any way then it gets written down and shared.

At very least , every every every agency “ involved “ in Pixies care do regularly required “ in home “ inspections , including in Pixies own private room AND Pixies self too . Not get see what all those agency people write or who get see those reports . Is traumatic … threatening … ??? Pixie not know right word describe , invasion of Pixies privacy .

Pixie do trust caregiver have now , is First caregiver ever what make possible Pixie to be Pixie , include be trans nonbinary , at home . Not need hide what who Pixie be or risk lose caregiver agency support now . But for many many years Pixie be force to hide real self even at home in Pixies own room and it over time be so very devastating dehumanizing harmful .

It can also be found on Google Drive here and on Bluesky here.

Do exactly what you're paid for and nothing more

Absolutely refuse to be available to contact when you're off the clock

Never prioritize work over your own health, wellbeing, or family because that would be insane, it's just a job.

Have a little glass of wine

Take as long as you feel like for lunch

Deeply understand that work doesn't matter