Painsomniac Beauty

@thisineffableepoch

Hello!!! My name is Aurora, but you can call me Rory. I'm 25 years old and I've been a spoonie since I was 14, when Maleficent decided to curse me with fibromyalgia. I will feel (chest, joint and back) pain till the end of time and no power (or Doctor) on Earth can change it... I know. Chronic pain sucks balls and Maleficent is a bitch, but, hey, so am I.

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lestatfag

my ultimate fantasy is to have a brain and body that allows me to enjoy being alive

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bobbi-bee

Something I think people who don’t live with chronic illness don’t understand is that there is a big difference between resting to get better and resting to avoid getting worse.

chronicallydragons

Anyone else with chronic pain ever get really absorbed in a project and dissociate from your body while you're working but then you finish and you come back to your body and you're just like AAAAAAAHHH! WHAT'S WRONG?? oh yeah. The horrors. Never mind

lemon-whiskey

Reminder: People may have similar disabilities to each other, that does not mean their experiences and capabilities must be the same.

Even if they can do some of the same tasks, that does not mean all, especially not the same pace or the same way.

octobercowboy-deactivated202306

abled people do not seem to understand that i want to do things

i want to go to college, to have job, to have fun time with friends

i am stuck in my own pain because no doctor believes i am in pain

it’s isolating

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nightmaretour

To every physically disabled person who's tired and in pain this evening, you did excellently at whatever you did today, no matter what or how much it was. I'm proud of you! You deserve all of the rest you need.

kurushimi-hime-hoshi

Stop holding disabled people to standards even healthy people can't meet.

chronicallydragons

I love how people with chronic pain can be at extreme levels of pain and just be like “My body is ouchie”

olkarrion-deactivated20250108

i was talking to my coworker about my disability/chronic pain and she said "well im glad you didnt let it make you mean and cynical" which, we all know what she meant was "im glad you aren't like the other mean, scary, cripples" which is fucking ridiculous, because i am. and it did.

i am mean. im fucking pissed. im tired of existing in a world that was made to exploit and kill people like me, and im sick of able-bodied bitches acting like they have any fucking idea what its like.

the amount of pain i experience every day is enough to make most people consider suicide, so pardon me and my crippled friends if we seem a little bitchy.

i shouldnt have to kiss abled ass to be considered "one of the good cripples". fuck you.

chronicallyillandcoping

wishing everyone a low pain and manageable symptom day youve got this.

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accessories-not-included

Medical trauma is real. And it's valid.

Medical trauma is feeling sick and afraid at every medical appointment because as you sit in the exam room and all you can think about are the times you've been invalidated, disbelieved, mistreated, or hospitalized and you're scared it will happen again. It's real and terrifying.

cripinpain

why is ignoring chronic back pain so normalised like bro you have CHRONIC PAIN it’s not “something everyone has”

spooniestrong

Remember: being in pain uses energy. There’s nothing wrong with taking a long nap or sleeping in late after being in pain all day. If you need to rest, do it; don't let anyone try to convince you otherwise.

Listen to your body and its needs.

crippledpunks

shoutout to every disabled person who has to spend a lot or most of their time in bed, on the couch, or laying down. here's to everyone with any kind of mental illnesses or neurodivergence that can cause depressive episodes, migraines and sleep disruption, here's to everyone with chronic fatigue syndrome/myalgic encephalomyelitis, here's to everyone with chronic pain, fibromyalgia, lupus, arthritis and multiple sclerosis, here's to everyone with bad backs, here's to everyone with chronic gastrointestinal issues, here's to everyone with chronic reproductive health problems. many of us have to spend most of our waking hours resting and we're not here by choice, but we're making the best of things. here's to us bedbound bitches

mysticalspiders

I feel like we don’t talk enough about how having chronic illness and/or chronic pain makes you irritable. It makes you grumpy. It can make you a not very fun person to be around.

We don’t talk enough about the ugly sides of chronic illness/pain. The parts where you feel like a bad person not because of the pain in of itself but because everyone else thinks you are pushing them away. The times when you don’t bear it like a saint and the roughest edges of your personality come out. Where maybe you do hurt other people’s feelings. Its a complicated side of the experience thats resists an easy answer.

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twisted-rat-king

if you "offer disability accommodations" but mandate the person have an impossible amount of paperwork to "prove" that they're disabled before even speaking to them, you don't fucking offer accommodations.

hoothootmotherf-ckers

I’m so angry at the number of people who have commented on my chronic pain posts like “I don’t have chronic pain so I don’t count but I do have chronic migraines-“

that’s chronic pain. that’s specifically the type of chronic pain I’m referring to.

and I’m absolutely not mad at those people, not in the slightest, but I’m furious at everyone and society as a whole that’s convinced them that they don’t count, that chronic migraines aren’t a genuinely debilitating form of chronic pain and disability.

migraines are chronic pain and have significant impacts on your life and you deserve to have that validated and not brushed off as “other people have it worse” or “not a real disability.”

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