So this is not something I usually post because it involves something deeply personal about my pregnancy.
In early December we found out that our son is suffering from Congenital Diaphragmatic Hernia (CDH), where his diaphragm didn't full close. He is left with a hole in his diaphragm, allowing the organs in his abdomenal cavity to move into his chest cavity, restricting the growth of his lungs and affecting the positioning of his heart.
So far a portion of his intestines, most of his stomach, and now a portion of his liver is sitting in his chest cavity.
He'll need surgery with in days of birth to move the organs back into his abdomen and repair the diaphragm. He is expected to stay in the nicu a minimum of five weeks but could be up to 3 months or more, depending on his progress during pregnancy and how he responds and heals post surgery.
We hope to stay as much time as possible in the NICU with him during his time their.
And thats why I am posting this link today. Its hard for me to ask others for help, especially financial. It would mean the world to us if you could donate money so we can be there for our son.
Donations would go toward loss salary while staying with our son in the NICU, transportation to and from the hospital, food while staying there. Also the money would go toward things needed when we bring him home from the hospital, like the possibility for oxygen needs, feeding tubes and formula, medication, and other monitoring equipment he may need. Additionally, depending on how his hernia progresses before birth, we may need to relocate out of state and we want to be able to have that option to give him the best care.
@robert-the-foul @r0bilargreenleaf
If you can not donate, please share. I’ve provided two different fundraising sites:
Our baby has been diagnosed with congenital diaphragmatic hernia (CDH), a serious condition that will require specialized care and a prolong
Our baby has been diagnosed with congenital diaphragmatic hernia (CDH), a se… tiffany F needs your support for Help Us Be Present For Our CD
Sharing this again. Our son actually reherniated, and he had excess air in his abdomen from that , plus had some holes and adhesions on parts of his intestines from when they were entangled up in his chest.
They repaired the hernia again , luckily it was small but they added a biological dissolvable mesh to help cover the area. They had to get rid of part of his intestines from the issue that they saw. His blood pressure has been too low, so they don’t think his intestines would properly heal if they attached the pieces of intestines together just yet, so now they are being held outside the body in the meantime.
They told us 6-8 weeks for healing possible then they’ll attached the intestines together.
It’s a set back for sure.
They had mentioned that before they caught this they were considering starting feedings soon and weaning off more things .
Being able to pay for transportation is our biggest concern right now. Then later any specialty equipment or medication may be needed.
