Yu Xuan was born at 24 weeks and 6 days, almost four months early. By the time she left hospital, she had grown to about 6.3 kg.
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Yu Xuan was born at 24 weeks and 6 days, almost four months early. By the time she left hospital, she had grown to about 6.3 kg.

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8/10/2025
my blog's not dead :')
I was basically in hibernation getting through the end of intern year. I'm now a pgy2 which is a lot of adjustment to a new role and responsibilities. I'm halfway through my NICU rotation. After that, it's time for my first vacation in seven months and i couldn't be more excited.
Baby and I are still in the hospital. I can be discharged whenever, but I'm staying as long as I can because little one is still in the NICU (and will need to stay after I'm discharged).
He has some heart and lung problems, and man, the Pentecost propers this year hit hard. Lord, fill his lungs with the strong driving wind of your Spirit. Heal his wounds, his strength renew, correct what has gone astray. Mend his heart, and kindle in him the fire of your love.
In our labor, rest most sweet; grateful coolness in the heat; solace in the midst of woe.
O most blessed Light divine, shine within these hearts of yours, and our inmost being fill!
Where you are not, we have naught, nothing good in deed or thought, nothing free from taint of ill.
Please keep us in your prayers. I've been asking for the intercession of Fr. Mychal Judge for my little one. We learned about our baby's birth defect a week ago. Things change so quickly and all you can do is trust in God and put one foot in front of the other. While in the NICU, I've been praying over Fr. Mychal's last homily.
"That’s the way it is. Good days. And bad days. Up days. Down days. Sad days. Happy days. But never a boring day on this job. You do what God has called you to do. You show up. You put one foot in front of another. You get on the rig and you go out and you do the job – which is a mystery. And a surprise. You have no idea when you get on that rig. No matter how big the call. No matter how small. You have no idea what God is calling you to. "
Near prophetic words on September 10, 2001, but also a strong reminder that parenting and openness to life is a mystery and a surprise, unknowable and ever-changing, and all you can do is put one foot in front of the other and do your best to answer God's call.
Fr. Mychal Judge, pray for us.
I'm glad I moved to a location with better weather (less smoke in the summers, more rainfall), but I miss the hospital where I used to be able to volunteer to cuddle babies in the NICU. none of my local hospitals have this program. I'm child-free, but I enjoy holding babies for a bit.
and it isn't like I did it non-stop (I still had a fulltime job). but at least once a week, I got to go in, early morning, and hold a tiny human against my chest for a few hours. sometimes sing and pat them while all the machines said they were OKAY and absolutely nothing to worry about regarding oxygen and heart rate, so you can't spiral into thoughts wondering if they're actually alive when they're so small and still. plus I was surrounded by medical staff if anything at all went wrong, handling all the actual medicine, my sole job just to hold and comfort. and the babies would cry, and some had addictions that made them hurt and oversensitive to light or sound or touch, and many were still all hooked up on tubes. but their tiny little hands would hold my finger if they worked an arm out of the swaddling, and their toothless mouths would breathe against my neck, and they'd look up with their myopic little eyes with no idea who I was and go back to sleep in my arms. and then I could put them back into their safe bassinets and go home.
if you ever get a chance to volunteer as a cuddler in a NICU, I recommend trying it.
“Bring me back to the womb, gestation did not prepare me enough for all these adverse extra-uterine conditions.”

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Anyone who has followed me for a while knows that 5 years ago my twins, Rhett and Thea, died shortly after they were born prematurely at 24 weeks. They forever changed my life and not a day goes by that I don't long for them.
Every year on their birthday we donate books to the NICU's literary program as a way to honor their memory and give back to the NICU that gave so much to our family. This year my parents decided they wanted to do more. It has been finalized that through their business they will make an annual donation so that every NICU family will leave with a book upon discharge. Each book with have a sticker honoring Rhett and Thea, and a plaque will be displayed on the unit honoring my babies.
As a mom, my greatest hope is for people to remember my babies. It isn't lost on me that honoring them in this way is such a privilege. To have it be tied to a cause that I care so deeply about is amazing. I'm so grateful.
IF EVEN JUST 200 PEOPLE DONATED JUST $5 EACH TO THIS PAGE @slickpens WILL HAVE FULLY FUNDED HER THRONE FOR HER PREEMIE BABY!!!
"Tiny Heartbeats"
At the request, once again, of @typicalopposite and @30somethingautisticteacher i have ventured into new territory. flash back to me saying "I would never write buck and tommy as dads."
anyways, this is going to be a sad story with a happy ending, only posting here for now.
cw: infant illness/hospitalization
[wc: 1209]
The nursery paint has barely dried where the crib sits nestled in a nook under the window. The light birchwood sparks against the navy sheets, pale yellows and grays collaborating in the artwork on the wall. There’s a photograph there of the day their daughter was born – her tiny fingers reaching out from the blanket that kept her little body warm.
She’s barely ten minutes old in the picture, her tiny form fitting perfectly in the crook of Evan’s arm. Tommy’s eyes are latched onto Evan’s face, beaming up at the camera, pride written in every feature, tears twinkling in his eyes.
A dance of calligraphy displays her name in a frame beside it, the letters connected through a careful string of paint brushed delicately against the canvas.
Edie Isabella Buckley Kinard.