Living That Chronic Pain Life

Ableds everywhere: “I have done that and therefore it’s NOT Ableist how DARE you say that.”

When you think you’re much better because you don’t feel like death all the time and feel like you’re able to do stuff again, but then once you do one thing realise that your energy levels aren’t actually improved, it’s just that you’ve cut down your energy usage so much so that you’re no longer suffering daily, but Doing Things immediately brings that suffering right back

“Yes you can” is not motivating someone. It’s denying their personal experiences.

Good news: it isn’t as bad as it was during that one week back in December

I’m really struggling right now  and I just want to find folks like me to follow so I feel like less alone.  

me: still chronically ill

- 10% of school age children affected

It’s easier to think of someone as “lazy” than to face the fact that school costs too much, that better jobs are inaccessible, that childcare is unaffordable, that people are forced to work so hard for so little that there’s no way they could have enough energy to attempt schooling or finding better work, and that what we give to people who can’t work is insufficient to the point of being shameful. I could say that calling people lazy is, in itself, lazy, but it’s not just an intellectual shortcut. It’s a defense mechanism.

Instead of Light It Up Blue for Autism Awareness, Red Instead for Autism Acceptance Month. 

support black people, esp women, who need help. don’t just call us strong or tell us we’ll get through it, help us. protect us. uplift us. allow us to be beings capable of suffering. give us the same space you’d give white women to express our pain and be there for us like you would for anyone else.