#zebrambles

Sorry to bother you, I just wanted to ask if I had been blocked on your non-adult account? Zebulontheplanet. I just can't see it ony my tumblr and I do genuinely enjoy seeing your thoughts and posts. It works without being signed in but just not for my account.

I know everyone is within their rights to block whoever they feel like, I just wanted to know if it's on my end or if it was intentional, and if it was intentional, then I'd like to respect your boundaries and I'd unfollow this blog too.

Again sorry to be a bother. I just couldn't see your blog one day and yeah, I do genuinely enjoy seeing your posts.

Hello there, sorry for the late response. I couldn't see your ask on my phone for some reason which is the main thing i use. I'm 99% sure what happened is that you followed my adult blog. Since you don't have your age in your bio, i usually block blogs that don't have an age in their bio on my adult blog. However, i learned recently that you can't just block people on your side blog on mobile tumblr. It blocks them from your main blog as well. Sorry for the confusion and I've unblocked you!

But some of us cant. Some of us, like me, cant live independently. Cant be without someone. Cant be a member of society without extreme accommodation and help.

I need help in everyday life. I have a caregiver for gods sake. I need help in everyday life and will never be independent. It’s frustrating to constantly get comments about how autistic people can live independently. Cause some of us cant, and that needs to be talked about. I get sores from not showering enough. I get sores from my wheelchair. I have cavities from not brushing my teeth enough.

Life with higher support needs shouldn’t be something that is ignored and not talked about. My caregiver helps me live life as independently as possible. Independence looks different for everyone. Our caregivers are an extension of ourselves. Our caregivers are important and should be recognized. Stop throwing us under the bus for your “salvation”

“So…you arent disabled anymore?” No. My disabilities are still there. I still struggle. It’s just better.

I mentioned ONCE in a group about wanting to go into assisted living and looking into it. Immediately got dog piled by people saying to absolutely not go into assisted living because itd “take away my autonomy” and “I should just live with others for as long as possible.”

Assisted living, group homes, guardianship, whatever, can very much mean that someone actually GAINS autonomy. And independence. The goal is for quality of life. We should be focusing on quality of life instead of what YOU want. What YOU want as a lower support needs person because you’ve heard bad stories.

Higher support needs people often don’t get the decision. It’s life or death for them. Y’all HAVE to realize that.

Stop forcing your narrative on young higher support needs people who are looking into different options for their care. Yes. It’s SCARY to be put in a bad situation, but often times it’s trial and error for us. Y’all HAVE to realize that. We don’t have the privilege to pick and choose between if we just live independently or go in a group home. It’s group home, or death, or living in a fucked up, maybe even abusive situation already.

Lemme just say this, there will ALWAYS be someone that is more disabled than you. And that isn’t a bad thing to say. I have mutuals who are full time power wheelchair users. I have mutuals who are high support needs. I have mutuals that are more disabled than me and I acknowledge that because there are people who are severely disabled and more disabled than me and that is OK!!!

Acknowledging that there are severely disabled people and that there are people with more severe disabilities than you isn’t a bad thing. It is life. No one is “At the same level of disability”. Some people are just more disabled and thats ok to say.

I’m a wheelchair and forearm crutch user almost full time. I can acknowledge that my friend with cerebral palsy whos a full time wheelchair user and eye-gaze AAC user is more disabled than me. I can acknowledge that my disabilities are more severe than most of my classmates. I can acknowledge those things and it’s all correct!

Being nonverbal (as in can’t talk at all permanently)

Having caretakers

Having other people do ADLs for you. Especially bathing and toileting.

Being talked to in simplified language

Being dirty

Drooling

Chewing on things

Stimming violently and loudly

Hitting yourself

Vocal stimming loudly

Being higher support needs

Being higher support needs and a POC

Being intellectually disabled with autism