#higher support needs

I need physical help for all self care and showering, I use adaptive cutlery or else I can’t feed myself, I’m also both bladder and bowel incontinent and will be wearing adult pull ups soon.

No I’m not babyish or gross for needing physical help, I have ataxia spastic triplegia and left sided weakness, this makes fine motor skills very difficult and also makes it so my bladder and bowel muscles are weakened.

no haha, i used to post lots and now i do not

i guess to any followers or mutuals if you see this an update on my life is i am still completely nonverbal but i have a lot more support many different therapists and im going to try to go to college soon, i dont know if i will be able to but i hope so, im also not housebound anymore i can go outside i go outside on walks everyday, therapy twice a week an autism youthclub once a week, my mum has many meetings with my team every week, and i see my friends even sometimes i made many new friends

i miss being active in the community sometimes i feel very sad about having autism and its hard trying to fit in with non autistic people or lower needs people i feel like im broken and i wish i could accept myself and my autism as much as i used to but im glad i got this experience and to learn so many things i will carry all that my mutuals and this community taught me through all my life

No, autism isn’t just a different way of thinking, I have urinary incontinence.

No, autism isn’t just a different way of thinking, I can’t wipe my ass.

No, autism isn’t just a different way of thinking, I have meltdowns where I hit my head, bite myself, and bruise myself till my knuckles are red.

No, autism isn’t just a different way of thinking, I need physical help bathing.

No, autism isn’t just a different way of thinking, I will have to move into a group home at 18 due to caregiver burnout.

but. that doesnt mean term autism parent / autism mom / autism dad is inherently problematic and doesnt make it okay for people say these parents have no place in autistic community (wether they themselves autistic or allistic doesnt matter).

autism parent/mom/dad very valid and not inherently or bad ableist term. it is term for usually caretakers of higher support needs children or even adults who do have very unique experience in life due to taking care their significantly disabled child. this isnt wrong acknoweldge, is actually very very important we do.

" but its as if theyre making their childs autism all about themselves!!! " not exactly in way you think they are. what you need understand is also often harsh reality is parents of significantly disabled children the childs disabillity/condition in this context more higher needs autism DO become a LOT the parents life. this isnt ableist nor bad acknoweldge either it is very real and very true.

sensory issues getting worse

cant even eat Pringles and chocolate anymore

(Pictures of my current dino plushies)