Dec 16, 2024
My power chair is supposed to show up tomorrow. The candy told me I made the right decision.
Loading...
seen from United Kingdom
seen from Estonia
seen from United States
seen from Netherlands
seen from Australia
seen from Estonia
seen from United Kingdom
seen from Australia
seen from Russia
seen from T1
seen from United States
seen from United States
seen from United Kingdom
seen from Estonia
seen from Estonia
seen from United States
seen from China
seen from Germany
seen from Thailand
seen from China
My power chair is supposed to show up tomorrow. The candy told me I made the right decision.
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch ā¢ No registration required ā¢ HD streaming
Narcolepsy ruined my life. I'm not supposed to be this young and feel so tired.
Sandman - Human AU: Dream has narcolepsy
Dream is Like That because he is, literally, always tired; thus crabby. Heās a workaholic because keeping busy is the most effective way to stay awake. He barely eats because his meds suppress his appetite. Heās emotionally shutdown to prevent cataplexy.
The end.
Cataplexy PSA!
Something I've discovered by being in a narcolepsy support group is that LOTS of things trigger cataplexy.
Many doctors will say that the only thing that triggers cataplexy is laughter, or that anything else is super rare. I gather that laughter is probably the most common trigger. However, it is far from the only one!
People in this community are triggered by all sorts of things! Anxiety can be a huge trigger! Basically, anything that causes a strong emotion can be a trigger. Sex is actually a fairly common trigger (common enough there's a name for it, anyway - It's called orgasmalepsy). Socializing, too.
I have a hard time when I go out to eat. Sitting at a table in a public place, eating food with people I like creates a strong mix of delight and anxiety that turns out to be a major cataplexy trigger for me!
For decades, I described my symptoms to doctors and they told me I was having panic attacks. Cataplexy is not remotely like a panic attack. If you are panicking and in a flop sweat, hyperventilating, you might be having a panic attack. If you suddenly lose muscle tone all over and feel yourself enter a fugue state, you are probably experiencing cataplexy. Both are pretty scary, and both can catch you by surprise!
So if you think you might be having cataplexy attacks, and your doctor says it's anxiety attacks, get a new doctor!
(And don't rely only on sleep testing. Epilepsy can cause seizures that look like cataplexy. Migraines can cause attacks that look like seizures or cataplexy - It's called migralepsy. The people who name these things don't get super creative. š)
Disclaimer: I'm not a medical professional. But I do have type 1 narcolepsy and complex migraines.
Just discovered I might have very mild cataplexy. I sometimes let go of things Iām holding without meaning to, as if my hand just randomly decided to stop gripping it. Itās not out of any pain or tension cuz I can easily just bend down and grab it again. But if I donāt see it happen, I might not be aware of it. Iāve had multiple situations where Iāve dropped something in public and either ran back a few mins later after realising I dropped it, or someone comes and tells me I did it.
Idk, maybe itās not cataplexy - maybe Iām just that freaking forgetful - but at the same time, itās a little curious given that I am currently suspecting having narcolepsy. Justā¦just something to think about. Edit: Another thought but sometimes Iāll be standing completely still and then I randomly lose balance.
(Source) Iām justā¦this is something to think about fr.
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch ā¢ No registration required ā¢ HD streaming
So with coming to terms with my self diagnosed narcolepsy Iāve noticed that when I get a stand alone episode, like I doze off once but then Iām totally and fully awake after that, everythingās fine and Iām able to move on. But if I get like a prolonged episode or multiple small ones within a certain spance of time, like: wake up, fall asleep, wake up, fall asleep, try to wake up but canāt fully, fall asleep, etc. then I feel really bad and kind of depressed about it. Like I just had about 3-4 episodes (I say episodes because idk what else to call them, like ānarcoleptic attackā just doesnāt feels like it fits) within the space of an hour to an hour and a half, and now I just want to phone up my therapist (because I havenāt told anyone in my family that this is going on and aside from filling in my friends that Iām on waitlists to talk to a specialist I donāt want to worry them anymore then I probably already have by telling them that story of when I almost fell asleep while standing at work or the couple times I almost fell asleep while driving) and talk to him because like idk Iām just really sad now to the point where Iām literally sitting in silence, I canāt bring myself to go downstairs to make myself actually food for the first time todayā¦.idk Iām just trying to keep my thoughts mildly optimistic like āthis is fine, like itās not ideal but like anything else modern medicine is going to help me live with this in a way the this neurological thing impacts it as little as possibleā and not be miserable/pessimistic and thinking that this is just ANOTHER thing against me thatāll mean not being able to live my life the way I want to and being alone. Also noticed when I have sleep paralysis episodes and narcoleptic ones (where Iām actually lying down) my jaw kind of spasms, like it kind of trembles to the point that my teeth kind ofā¦.click isnāt the right word but itās the only one I can think ofā¦tap? Biting sounds? But yah thatās definitely something Iām gonna bring up to the specialist guy when I see him.