Oct 14, 2021
My favorite stretch. My apartment is shaped bizarrely so this is 5.4x zoom and grainy 😲
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My favorite stretch. My apartment is shaped bizarrely so this is 5.4x zoom and grainy 😲
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Got my cortisone injection today. Really hoping it gives me some relief until I'm able to have surgery 😓
Ehlers danlos struggles
With Ehlers danlos syndrome, it complicates everything.
I saw my hip specialist yesterday and boy are my hips a hot mess. With the hip dysplasia and FAI as well as a torn labrum, plus Ehlers danlos syndrome makes things far more complicated. I will be getting 3D CT scans done on both hips so that we can better figure out what surgery would be the best option for me. Weather that be fixing the FAI and torn labrum, or fixing the Hip dysplasia. Or even doing both at once. That's where we are at right now with that.
Today I saw Rheumatology and cardiology. Rheumatology didn't end up being too much. With EDS, you can't fix your Gene's. But we may change up some of my medications to help with my chronic pain and I was referred over to a pain specialist. We also may be doing lab work to rule out any other autoimmune components.
Cardiology we upped my blood pressure medication to its max dose to see what it will fix. If it's still not enough for me then we will be doing 500ml of saline or lactated ringers every single day to help my dysautonomia.
Here's hoping we can get things settled.
They called to tell me I have more pt appointments approved so I called my therapy spot and they'd gotten a call the day before saying they needed to put in a new request 🙃 hahahahaha
Had an MRI of my spine today. Part of me is hoping there's nothing wrong and another part of me is hoping there's a reason I've had back pain for 9 years. They're not really doing the MRI for my back pain though, and I doubt they're looking at my whole spine. But maybe there's a reason other than my torn labrum that I've had sciatica for 4 years? I get pretty bad lower back pain and pain in the back of my pelvis which may or may not be explained by the labral tear in my hip.
Fuck I think my knee just subluxed. Knees are not cooperating today.
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I saw my Rheumatologist today, he's 100% dead set against me having this hip operated on. He feels that weight loss and physical therapy should be the first plan of treatment. I will still the new Ortho guy to devise a non-surgical plan. Sadly, I'm still hurting. Looks like I'll be spending some time in the pool. Had a good massage today and the lady told me that my tension lies mostly in the fascia layers and that's likely compressing on my muscles and tendons. Could be due to the lovely connective tissue component of my Lupus. I need a lot of work, more than she could do today. I'm hoping to get back to work next week.
I'm such a fucking wreck. I'm not sure if I'm even gonna consider having surgery on this hip. The guy I saw today predicts a 3-4 mos recovery, where as the first 2 mos are 100% NON WEIGHT BEARING. I would be with crutches or a walker...and no driving of course... I am a single mom with little to no help financially from Dipshidiot. There is no way that I can go through with this right now. At the moment I am in constant pain with a pain level of 5 out of 10... Improved from a 7 out of 10 since last week. But... I can walk with no limp, I can bend over and I can climb steps. I suppose I could wait until the suffering is worse, but then grad school will be starting in August... The program takes 2.5 yrs, I need to do it now or wait until school is over. Ugh A friend sent me the name of a guy who does this surgery with an anterior approach that may cut the recovery down to a week!!! I'm calling him tomorrow.