Sep 6, 2020
My princess I love you 😍 Luciana and mom #retodravet #curadravet #dravetsyndrome #Syndromedravet #scn1a #canalopatias #NohoraRamirez #LucianaGaona https://www.instagram.com/p/CExxTQfHqhY/?igshid=6g0ohm6vinua
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My princess I love you 😍 Luciana and mom #retodravet #curadravet #dravetsyndrome #Syndromedravet #scn1a #canalopatias #NohoraRamirez #LucianaGaona https://www.instagram.com/p/CExxTQfHqhY/?igshid=6g0ohm6vinua
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Buenas noches gracias a todos los que están haciendo este sueño posible, gracias por compartir mi canal contar mi historia y la de mi pequeña Luciana portadora del síndrome de Dravet quiero que mi historia ayude a otros padres que están pasando por la misma situación y no saben cómo enfrentar este reto conoce nuestra historia en el canal en Youtube Nohora Ramírez suscríbete, dale like, comenta tu opinión es muy importante y comparte. #dravetsyndrome #epilepsia #canalopatias #mutaciongenetica #scn1a #sindromededravet #curadravet #esperanzadevida #genetic #enfermedadhuerfana #NohoraRamirez #LucianaGaona https://www.instagram.com/p/CD5VpP1l2EH/?igshid=1405rq8wkv6u1
My daughter Luciana suffer Dravet syndrome she is girl very tender, special, kind and important for me, my story time is real you know my YouTube channel Nohora Ramirez #dravetsyndrome #canalopatias #scn1a #sodio #genetic #adenoviral #vectores #neviot #cannabidol #exomaclinico #botoncelular #mutaciongenetica #stoketherapeutics #vida #neurology #epilepsia #epileptology #NohoraRamirez #LucianaGaona (en Bogota D.C) https://www.instagram.com/p/CDXYbSbnGND/?igshid=17v07hios9evb
Medical Marijuana in Treating Dravet Syndrome 2018 Dravet Syndrome Foundation Biennial Conference Medical Marijuana in the Treatment of Dravet syndrome Charuta Joshi, MD MBBS – Children’s Hospital Colorado www.dravetfoundation.org