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HEY EVERYONE
I’ve been assigned a Brain Awareness Video by my teachers. I worked really hard on this and the subject matter is near and dear to me. It’s the first of many educational videos I would like to do in the future relating to psychology and neuroscience subjects!
Link to the Family’s GoFundMe Link to the Spoonbill Foundation
Learn more about PKAN Learn More Brain Awareness Week
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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I have my copy. Do you have yours? Clipoerguy.com or Amazon. #barber #book #career #training #education #pkan #roadmap
Lokakarya Daur Subur di Padang Sibusuk
Padang Sibusuk adalah salah satu nagari di Kabupaten Sijunjung, yang beberapa tahun terakhir belakangan mengalami sejumlah perubahan dalam bidang pertanian. Persoalan tersebut antara lain, banyaknya alih fungsi lahan pertanian menjadi area pertambangan emas. Hal ini dilatari oleh sejumlah soal, baik itu keinginan masyarakat sendiri, pendidikan, infrastruktur pendukung pertanian, dan kebudayaan…
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Daur Subur adalah sebuah paltform yang digagas oleh Gubuak Kopi dalam mengarsipkan dan memetakan kultur pertanian di Sumatera Barat melalui pendidikan media berbasis komunitas. Kegiatan ini digagas pada tahun 2017, melibatkan sejumlah partisipan dari beragam disiplin dan komunitas. Para partisipan yang terlibat diajak untuk mengikuti lokakarya dan memproduksi karya teks, gambar, dan audio visual. Kali ini, Daur Subur digelar di Nagari Padang Sibusuk, Kabupaten Sijunjung, bekerja sama dengan komunitas pemuda lokal PKAN Padang Sibusuk.
Lokakarya ini mengembangkan pembacaan dari pola alih-fungsi lahan yang kerap dilakukan oleh masyarakat Padang Sibusuk sejak tahun 1990-an. Negeri yang sebelumnya sempat diyakini sebagai daerah lumbung padi dan desa teladan ini, kini tidak sedikit lahan sawahnya beralih pada pertambangan emas. Sebagian besar pertambangan telah menyisakan lahan-lahan mati, dan menimbulkan dampak konflik, peluang kolusi, serta perubahan sistem sosial dan ekonomi. Di sisi lain, beberapa pemilik lahan dengan pola pertambangan terkini tetap yakin bisa disawahkan kembali. Lokakarya ini melibatkan sejumlah partisipan /kolaborator dari berbagai latar disiplin, dan sebagian besar anggota PKAN. Sebagai bagian dari studi pengembangan kerja seni dan media dalam aksi pemberdayaan dan mengkritisi diri sendiri, serta upaya mendalami kebudayaan pertanian di Padang Sibusuk, dengan tetap sadar akan kearifan lokal, sejarah, dan perkembangan kontemporernya.
Waktu lokakarya: 7-18 Januari 2018 Presentasi publik: 26-27 Januari 2018 Pusat lokakarya: Kantor PKAN Padang Sibusuk
Blog PKAN Padang Sibusuk: https://pkanpadangsibusuk.wordpress.com
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 Fasilitator: Albert Rahman Putra, Delva Rahman, Muhammad Riski, Volta Ahmad Jonneva, Zekalver Muharam
Partisipan/kolaborator:Â M. Yunus Hidayat (Takasiboe, Solok Selatan), Ade Mukhlas (KSSL, Solok Selatan), Zaki Aziz (Walhi Sumatera Barat), Fani Rovika (Walhi Sumatera Barat), Fadlan Fahrozi (PKAN Padang Sibusuk), Yovi Fardhilas (PKAN Padang Sibusuk), Miftahul Rizki (PKAN Padang Sibusuk), Zeki (PKAN Padang Sibusuk), Budi Santoso (PKAN Padang Sibusuk), Hafizan (Padang)
Materi diskusi dan kuliah umum: Literasi Media (Albert Rahman Putra); Merebut teknologi melalui aksi kesenian (Volta Ahmad Jonneva); Kultur Daur Subur: Memetakan Isu Pertanian Melalui Platform Multimedia (Muhammad Risky); Sejarah Singkat dan Sosio-kultural Padang Sibusuk (Fadlan Fahrozi); Situasi dan kasus-kasus lingkungan hidup di Sumatera Barat (Fani Rovika)
Kegiatan ini terselenggara atas kerjasama Gubuak Kopi dan PKAN Padang Sibusuk.
Lokakarya Daur Subur di Padang Sibusuk Daur Subur adalah sebuah paltform yang digagas oleh Gubuak Kopi dalam mengarsipkan dan memetakan kultur pertanian di Sumatera Barat melalui pendidikan media berbasis komunitas.
#rip Aiden My friend's son Aiden passed away at the young age of 13 yesterday. Please keep Lydia in your thoughts and prayers. A gofundme has been set up to help with the funeral cost. https://www.gofundme.com/2gv8ff8 #pkan #rip #gofundme
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch • No registration required • HD streaming
So happy this has gone viral and that a majority of the responses have been positive. I'm hoping that this promposal will bring light to the different rare diseases out there, such as PKAN.
I’ve known Ben for a long time now, back before he was diagnosed with PKAN, when they thought he just had cerebral palsy. He is 16 now, and the doctors say he won’t live past 18. He and his younger sister and brother were the first kids I ever babysat, and with him and his brother having a severe case of autism, it wasn’t easy. But the Davis family is oh so close to my heart and I love them very much. I’m so proud of Ben, with how sweet and smart he is, and how brave he’s been. Even though I’ve never met Vee, she’s touching not only Ben and his family’s lives, she’s touching the hearts of everyone who hears this story. Thank you so much for your kindness, Vee.
Petition to Accelerate Approval for PKAN treatment.
Hey guys, there is a disease called PKAN (Pantothenate kinase-associated neurodegeneration), and there is a drug treatment (RE-024) it's already approved in Europe, but it's going to take time to get the FDA to approve the drug in the US. Unfortunately there are people that need this treatment right now. Including the Kulsrud brothers.
If they get 100,00 signatures on this petition they will accelerate the approval process so these boys and others like them will get the treatment that they need. Right now they only have 9,000 and it will only take a minute to sign. Please sign it, and share it so other people can sign it too.
