Appreciate The Little Things In Life

When pain is intense and needing a good laugh and waiting for my wound to get packed I watch old episodes of #criticalrole #critter

I love when Molly spends time with me. Just had a yummy shake while wearing our head bands that my nurse made for us. I was not able to get out of bed today. The wound has not been very nice so the pain has been intense. But I will be seeing the plastic doctors in a few weeks to set up surgery. #daughter #mommyandmetime #love #family #wound #pain #skillednursingfacility #surgery #shake #isagenix

Waking up to this amazing view. Getting to see this view from my room at OHSU is helping me heal.

Ready for my anniversary dinner with my love. I don't know what Josh has planned.

#rip Aiden My friend's son Aiden passed away at the young age of 13 yesterday. Please keep Lydia in your thoughts and prayers. A gofundme has been set up to help with the funeral cost. https://www.gofundme.com/2gv8ff8 #pkan #rip #gofundme

Will be blonde till Monday when the hairdresser comes in to change it to red. Love that she comes in and helps the residents.

Step 1 to new hair. Bleaching has begun

I love when I get cute pictures of molly when I am not feeling well. Today has been a day of bad pain. My spinal headaches seem to be coming more and more. But these pictures help me smile https://www.gofundme.com/OneLeggedMamma #gofundme #love #support #daughter #molly #healing

Black & white and only a fraction of thus amazing canvas my best friend @cnelson1983 made for one of my nurses who is getting married next month. I wanted to give her something that is one of a kind. When she gets it Wednesday I will post the whole picture. Check her out on Facebook @Violetheartdesigns amazing & talented

Making a loom knitted hat for the local women's shelter for the 7 #donations we have gotten so far on our #gofundme page. I am making hats & dolls for every donation we get. Will be giving them to a local women's sheleter. If you have not been able to check the page out can you please take a moment. If you can donate that would mean so much to myself and my family. To live in a wheelchair accessible home and be able to sleep under the same roof as my family would be such a blessing. For the past three months I have been living in a skilled nursing facility to gain strength so I can transfer to my wheelchair safely with a slide board. Also recovering from my 57th surgery i had 6 weeks ago. During this time josh was not getting paid anymore to be my paid caregiver so we lost our home. Molly and Josh are living with his mom but it is very hard that our little family can not live together. If you can not donate please share our page. Link in Bio https://www.gofundme.com/OneLeggedMamma #gofundme #love #blessed #donations #dolls #hats #handmade #thankyou #prayers #looming #family #wheelchair #accessible #strength #walk

To all my friends and family, please take a moment to support Josh and Molly and I in finding a wheelchair accessible apartment where I can be a mother and a wife. If you cannot donate I understand, but please re share the link in the very least. Thank you all for your continued love, support and encouragement. Love, Dani https://www.gofundme.com/OneLeggedMamma #gofundme #love #support #wheelchair #accessible #strength #prayers #thankyou #blessed

Can't sleep so I started a new doll. Have the eyes, ears, bow and body done. Still don't know what she will be. Maybe a cat? Maybe a bird? Maybe a mouse? What do you think? #yarn #loom #googlyeyes #yarnbow #maybeacat #maybeabird #maybeamouse #cantdecide #cantsleep

for the past 33 years i have been on one hell of a roller coaster. After every surgery, hospital stay, fall, amputation & comas I have always got right back up & went back to living my roller coaster life. This time I have not bounced back. Each day PT comes in & we push and try to get me into my chair & be able to sit in it for 30 minutes. So far I have only made it to 15 minutes. My muscles spasms are hitting me hard. With my spinal cord being tethered again I get this shock to my whole body that takes my breath away. I am trying not to give up. Trying not to lose my inner strength. I am trying but each time I can’t sit in my wheelchair for those 30 minutes. Or when i lose all movement of my lower half body it is very hard to gain inner strength. I have been asking for support of the people around me. Since a lot of people think oh Dani is fine she is always in the hospital she can handle this. Sadly I can’t. I am being so honest & open. I can’t do this on my own. I need the support of my family & friends. A message here or there asking me how I am doing. Even a call for a few minutes will help. When I sit here in my rehabilitation room I am alone most of the time. I only have PT & OT for 30 minutes with each. So just an hour. The nurses & cnas come in & out. So I sit alone with my mind that does not shut off. So when you have a minute or two can you please just sent me a hello.

Butterfly loom blanket

Still have not seen the general surgeon. So I don't know when and if they will be closing my back wound anytime soon.

I have an open wound that I have been dealing with since the day I was born. I had my first back surgery there. A few years ago the wound would not close at all with all the help from wound nurses. So a plastic surgeon had to go in and clean it up & close it up. I have not had any problems with it for many many years till about a year ago. The same things are happening & it wont close. So here I wait for a plastic surgeon to see me. Well they tell me there are no plastic surgeons here at Tuality. So a general surgeon  here will look at my back then he/she can talk to a plastic surgeon at another hospital. I am so ready to get out of the hospital, pain free & be home with my family

Since I have been in the hospital most of my life I really think people just say oh she is fine she has done this before. But when i look at people going down the halls with balloons, cards or cute stuffed animals I get sad since I know I wont get that. So most of the time I ask if they can close my room door so I dont have to see that.