#persistantleftsuperiorvenacava

Worm-a-derm in her Christmas pjs. ❤️#1stchristmaseve #thankful #loml #lool #daughter #christmaspajamas #naturalbeauty #sheisawarrior #mywarrior #lashesfordays #heartwarrior #heartparents #zipperclub #1in100 #ihearticie #chd #dorv #doubleoutletrightventricle #persistantleftsuperiorvenacava #bicuspidaorticvalve #tof #tetralogyoffallot

…saying “I love her so much” just doesn’t cut it. She is the best pieces of Carl and me mixed with her own amazingness, all bundled into the most adorable package. I cherish every day with her, Even when she is fussy, crying or wide awake at 1:30am. All I need to do during stressful moments is to look her in the eyes and think about what she has overcome. I’m so grateful Icie is alive, stable and able to be a fussy crying baby. I take nothing for granted.❤️❤️❤️She really is our everything.❤️❤️❤️#ihearticie #naturalbeauty #loml #daughter #sweetbaby #teefs #babyteeth #firstteeth #sheisawarrior #mywarrior #heartwarrior #1in100 #chd #dorv #doubleoutletrightventricle #persistantleftsuperiorvenacava #bicuspidaorticvalve #tof #tetralogyoffallot

Teefs!!❤️-ignore the squash on her nostrils. We just got done with dinner😁#babyteeth #firstteeth #milestone #sweetbaby #teething #iknowiwasntcrazy #ripnips #naturalbeauty #daughter #loml #sheisawarrior #mywarrior #chd #1in100 #dorv #doubleoutletrightventricle #persistantleftsuperiorvenacava #bicuspidaorticvalve #heartwarrior #heartparents #zipperclub #ihearticie

I like to introduce foods that she will be eating by letting her handle them. She isn’t joking around with the banana! Looking at me like “what!?! It’s mine now”🍌#6monthsold #solidfoods #introduction #helloimicie #minenow #what #ihadtopryherfingersoffit #funnybaby #chiquitabanana #bananafirstthenthethings #clutchingitlikeapurse #ihearticie #bananas #1in100 #chd #dorv #doubleoutletrightventricle #persistantleftsuperiorvenacava #bicuspidaorticvalve #tof #tetralogyoffallot #totalrepair #loml #sheisawarrior #mywarrior #heartwarrior #heartparents #naturalbeauty

Such a sweetheart ❤️ shots went pretty well. She is such a strong baby. She is snoozin away now after nursing. God I love her. And also, I love my husband. There is no one I’d rather have at Icie’s doc apts than him. He keeps my anxiety level down and he is some damn good eye candy!😍 #6monthshots #2monthslate #catchup #babyshots #snoozing #loml #naturalbeauty #daughter #ihearticie #regularbabystuff #husbandlove #heartparents #heartwarrior #sheisawarrior #mywarrior #zipperclub #dorv #doubleoutletrightventricle #bicuspidaorticvalve #persistantleftsuperiorvenacava #chd #tof #tetralogyoffallot #1in100

You would think after everything we have been through getting vaccinations should be no big deal, but it’s giving me crazy anxiety!! Icie is behind on her shots from having surgery and tomorrow we begin to catch up with her “4 Month “ shots. It consists of 4 shots total. I’m dreading it!!! Someone please invent another way for vaccines to be administered before my hair completely falls out from stress! #normalbabystuff #vaccines #stressedout #anxiety #loml #daughter #ihearticie #dorv #doubleoutletrightventricle #persistantleftsuperiorvenacava #bicuspidaorticvalve #chd #tof #tetralogyoffallot #babyshots #catchingup #1in100 #sheisawarrior #mywarrior #zipperclub #heartwarrior #naturalbeauty #solvingrubikscubewiththemouth #andwithspit

After 114 shots Icie is done with Lovenox. It was an educated, well thought out decision but I no longer felt comfortable giving Icie painful medication prescribe by a group of individuals who were constantly contradicting their own results. Complete and utter incompetence is what we experienced. The hemotology depart of Children’s Hospital has let Icie, Carl and myself down. The unnecessary pain they put Icie through and how much time of ours they have wasted is insane. Icie is now able to wake up and go to bed with out fearing shots. She gives me a look leaving the changing table as if she is getting away with something bc she didn’t get a shot. She is also very talkative. She is very loudly singing, clearly she is happy. Poor baby. It’s all good now, you can heal love.❤️ #dorv #doubleoutletrightventricle #persistantleftsuperiorvenacava #bicuspidaorticvalve #chd #1in100 #ihearticie #heartwarrior #heartparents #zipperclub #sheisawarrior #mywarrior #naturalbeauty #loml #nomorebullshit #dun

Wormy❤️#loml #naturalbeauty #heartwarrior #heartparents #ihearticie #zipperclub #doubleoutletrightventricle #dorv #tetralogyoffallot #tof #chd #bicuspidaorticvalve #persistantleftsuperiorvenacava #sheisawarrior #mywarrior #daughter #tummytime #1in100 #normalbabystuff