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Man I was so sick for so long I forgot what being fed and hydrated felt like. Compared to a few days ago when even sitting up made me feel like passing out, I feel like I’ve gotten a great night’s sleep and had an energy drink. I’m so awake and except for the joint pain I feel like I could clean my whole house 😂 thank heck for Motegrity making my stomach actually move its contents!
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Not sure what to do or if I should do anything, but something is not awesome. 💜 My insurance finally agreed to pay for the Motegrity for up to 12 months. I am so grateful and I really hope it works. 💜 I started taking it yesterday as it is likely to cause diarrhea the first few days to weeks. I wanted to start it on a day when I could be home. 💜 TMI warning: I initially thought this might be a fluke, however it happened again today. About an hour after I took the med I started getting a bad stomach ache (kind of like an all over stomach flu ache). I got super nauseous and felt horrible. I went to the bathroom in hopes that it would help. Both days I was able to poop. .... The problem is that there was definitely bright red blood involved both days. I am not sure if this is just a coincidence or not. Being bright, I am not quite as concerned, but it is still weird. I have had bleeding fissures before, but this isn't quite the same. There is a significant amount. After about an hour or two, I am back to feeling fine. I even had another BM this late afternoon without any sign or speck of blood. 💜 I want to give it a few more days to see if it continues to happen. If by Monday I am still doing the same thing I will call the office and see what they say. I would be really sad to hear that I would have to stop this so quickly after working so hard to get it approved. 💜 Has anyone had anything like this happen with a medication? I am at a loss. 🤷 💜 #chronicillness #motegrity #chronicbackpain #Chronicpain #chronicinflammation #mylifewithlupus #lupus #justalittlelupie #nevergiveup #bloodystool #medreaction #myalgia #abdominalpain #nausea #spoonielife #spoonie #myjourney #spoonies #chronicconstipation #appetiteloss #colonicinertia #dysmotility #dysautonomia https://www.instagram.com/p/By88TLmA4D1/?igshid=3jg0aqjcpugy
