#lupuscard

New, surprisingly-accurate-for-me-while-also-making-fun-of-Trump mug, who dis? #autoimmune #lupus #lupuscard #dontakehydroxychloroquineunlessyouresupposedto #autoimmuneaf #hydroxychloroquine #plaquinel #stupidfuckingselfie #lovettorleaveit https://www.instagram.com/p/CLevd_xgpJ7/?igshid=1khz35lm84h20

Quarantine day 24: (a) another outing to CVS for (b) the Plaquenil I’ve been on for my #lupuscard since 2001 and for (c) GOLDFISH; additionally, (d) a third orchid flower bloomed and (e) I made vegetarian paella. #stayathome #quarantine #hydroxychloroquine #plaquenil #goldfish #orchid #plantsihaventkilledyet #food #yummy #veg #chefbex 🌤😷💊🐠🌸🥗 (at Old Bridge, New Jersey) https://www.instagram.com/p/B-sy4NlJciQ/?igshid=gaeq85wn87xn

As my quarantine begins, so does my stress eating (and drinking). (Not pictured: two six-packs of beer and two bags of Aldi ground coffee.) #lupuscard #voluntaryquarantine #snacks https://www.instagram.com/p/B9xLvauJnQu/?igshid=z9rf0mfj0764

New year, same shitty immune system. I began the day with three boxes of tissues and ended it with a roll of toilet paper and a very red nose. #autoimmunediseaseproblems #lupuscard #sothisisthenewyear https://www.instagram.com/p/B638ElkAQ6w/?igshid=o54ipascstuv

Content (for blood) and Self-Righteousness warning: I donated blood today for the first time ever! Since I have Lupus and have been on chemo in my life and am always on medications, I thought I would not be allowed to donate blood. Like, ever. However, thanks to the encouragement of @jaquieofalltrades, I learned that I am no longer disqualified to donate. And, thanks to my one good vein, it only took about five minutes! There were snacks and I even got a fashionable bandage that kinda matched my dress. Highly recommended. If you’re able to donate blood, please think about doing it some time. #lupuscard #ieeeblooddrive #donateblood #savealife 😁😁💉💉🍪🍪🍪🍪 https://www.instagram.com/p/B2ewHf0AX-O/?igshid=1gqml6a0wxc5v

P.S. I almost forgot! The cards are safe and sound too! ❤️❤️❤️❤️ #thanksgiving #thebestfriends #lupuscard #thelupusstrikesback

While I was in the hospital earlier this year, I was completely overwhelmed by the support and love I got from friends, family, and even folks I hardly even talk to anymore. While I can’t wrap up all those well wishes in a box to keep forever, I can dry and jar up some mementoes! Anyone who sent me flowers, I saved some here along with your note cards (@lrmoshe, my SPS family, and a former neighbor of mine). And certainly not forgotten, of course, the teddy bear c/o @hideindoors and @goosebearduck that has been on top of my book shelf since I got home. Everyone else, your words and thoughts got me through and still to get me through as I continue with treatment. I’m a little early, but THANK YOU ALL. #thanksgiving #thankyou #thebestfriends #lupuscard #thelupusstrikesback

Before the heat turned my face into a tomato. #happy4thofjuly #lupuscard #womenbelonginthewhitehouse