#invisabledisabilities

Chopped off my hair today! - What many don’t realise is that this wasn’t JUST a style choice it was actually largely because of my #ehlersdanlossyndrome - So here’s the thing because of my weak connective tissues 6 weeks ago I injured my neck and damaged one of the nerves that goes to my hand. This meant the weight of my hair when it was wet was incredibly painful and I also couldn’t bring my right arm up to my head so hair washing and brushing was a painful and difficult experience. Things have calmed down a bit with my neck injury but I still have hare accessibility issues! With my hand function how it is I haven’t found any hair clips or pins I can use to gain some control! Thanks to #PoTS I sweat excessively and one of the worst areas is my head which was already meaning extra painful hair washes. I’m at a point in my life where I have bigger things to spend my time on than trying to wash my hair with one hand. So what do my posts about #boots and #haircuts tell you today? Don’t judge a book by its cover people with EDS are #fragilebutunbreakable but you can’t see there struggles while looking at them! - #EDSAwarenessMonth #dontjudgeabookbyitscover #newhair #accessiblehaircare #accessiblehair #thingsnormalpeopledontthinkabout #EDSAwareness #EhlersDanlos #Disability #disabilitylifechoices #invisableillness #invisabledisability #invisabledisabilities #zebrastrong #brokenbutbeautiful #workingit @ehlers.danlos @ehlersdanlosuk

#invisiblediseases #invisabledisabilities #chronicpain #opioidepidemic

Physio ✅ we now know what the new thing wrong with my foot is and how to hopefully sort it out... it’s the dreaded planter fascia though so it could take some time... still it’s progress trust me walking on a sore foot for months isn’t that fun. I actually now have 4 different things wrong with my right foot so it’s a balancing act. I’m drinking the nastiest hospital cappuccino ever, for some reason they got rid of Costa! It was supposed to be a #treat One more clinic appointment next week and it’s the last one of the year! #homestraight - #chronicpain #planterfascia #footpain #sorefoot #physiotherapy #ehlersdanlossyndrome #justanotherbitthatsbroke #fallingapart #straightouttacollagen #workhard #brokenbody #brokenbutbeautiful #hospital #hospitalcoffeesucks #selfcare #disabledandcute #disabilitypride #invisabledisabilities @invisibledisabilities @ehlers.danlos @ehlersdanlosuk #chronicillness (at University Hospital Southampton NHS Foundation Trust)

Meeting with my social worker ✅ next up Physio but first 2 🚌’s to get there... it’s a busy day! #selfie #rainbowhair #beingsickisafulltimejob #invisibleillness #bustravel #busyday #justkeepswimming #invisabledisabilities #chroniclife #chronicpain (at Weston, Southampton)

I hate it it’s so frustrating having to take medication that rights off your whole day so you can’t leave the house. It essentially poisons your body creating a mass purge you feel like 💩 and you can’t leave the house or do anything in case you 💩 your pants. Your day is written off between 🚽 and drinking water you feel nauseous have stomach cramps and get very little ‘warning’ you can’t risk wearing jeans in case you can’t get them undone in time. But you have to do it to stay well to prevent toxins building up in your body, to make yourself ‘better’ for a little while you just have to get on with it because the risks of not doing it are life threatening. This is the reality of my chronic illness I had to just accept these days on my journey. Why am I sharing this? Because it’s totally invisible people can’t see it because I can’t leave the house (I’m not sure any one would want to see it though... lol). It’s also really taboo to talk about 🚽 and 💩. - @dysautonomiaintl #dysautonomia #ehlersdanlossyndrome @ehlersdanlosuk @ehlers.danlos #bowel #bowelcare #bowelcareday #toilettalk #💩 #chronicillness #youdontlooksick #chronicpain #badday #writeoff #acceptance #reallife #thisismylife #thisismynormal #disabilitypride #thetoiletismybestfriend #lifegoeson #justkeepswimming @invisibledisabilities #invisabledisabilities #getworsebeforeitgetsbetter #hiddendisability (at Weston, Southampton)