#iihbrainstrust

It is coming up to the cooler months in the Southern Hemisphere, and getting enough water can be difficult. What do you do to keep up your fluid? Are you a tea drinker? I like the evening tea here. No caffeine, nice taste and it is part of my bed time ritual. Mint tea is nice too, and ginger tea is supposed to help with nausea, jury is still out on that 😂. How about you? Are you a tea drinker? What is your go to? How do you keep your water levels up during the cooler months? #iihbrainstrust #iih #bih #ptc #chronicallyill #chronicillness #spoonie #tea #teatime #hydration

I'm faking being well, not being sick. Shout out to all our friends who are skilled at faking wellness for other peoples comfort. And here is to the day where you. Ever have to fake again, either because you are cured (yes please!) or beceause the people you have to take for become more understanding and faking is no longer necessary. #chronicillness #chronicallyill #iihbrainstrust #iih #iihanz #iihsucks #ihaveih #spooniewarrior #spoonie #support #ptc #bih #brainsqueeze #mentalhealth #mentalillness

250 followers! Thank you for all the support. This is amazing and we could t do it without you guys. So keep up the great work we are all doing in supporting each other and spreading our knowledge. And tba is to @amina_24fit for being follower number 250. #iihbrainstrust #iih #ptc #bih #spoonie #spoonielife #intracranialhypertension #chronicillness #chroniclife #chronicpain

Are you ok? We really want to know how you are travelling. Good, bad and ugly. We get it. #mentalhealthawareness #mentalhealth #bih #ptc #iih #intracranialhypertension #iihbrainstrust #spoonie #spoonielife #spooniestrong #spooniewarrior #chronicillness #chronicallyill #professionalpatient

ONSF Optic nerve sheath fenestration, a surgical option that that reduces pressure on the optic nerve. Small slits are cut in the optic nerve sheaths allowing the CSF to drain. It is considered a sight saving procedure. IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri #spoonietalk

VP shunt Ventriculoperitoneal shunt, that works by diverting cerebrospinal fluid from the shunt, placed on the skull, through tubing under the skin to the abdominal cavity. This reduces intracranial pressure. It is surgical method used to treat IIH for patients who have sudden or progressive visual loss, or intractable headache despite aggressive medical treatment IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri #spoonietalk

Ophtho Ophthalmologist, a medical doctor with extra training to diagnose and manage disorders of the eyes and visual system. They are different from an optometrist who you see to check your eyes for glasses, although they can do this too. IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri #spoonietalk

IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. PTC Pseudotumor cerebri, also known as idiopathic intracranial hypertension (IIH) or benign intracranial hypertension (BIH), is a disorder characterised by raised intracranial pressure (ICP) without intracranial abnormalities. Medical speak aside, this means that there is too much pressure in the head of someone with IIH, and doctors do not know why. IIH is a rare disease affecting between 1 to 2 people out of 100 000. Medical literature lists obese women of child bearing age as those who have the greater risk of developing IIH. But anyone can develop it, including males, children or people who are within or below a healthy BMI range. Symptoms include: Persistent headache, nausea and vomiting, temporary vision loss or greying out, decrease in visual acuity or even blindness, papilloedema, tunnel vision double vision and visual field deficits, 6th nerve palsy, neck, back and radicular pain, low frequency hearing loss, vertigo, an impaired sense of smell, fatigue, mood disturbances, pulsatile tinnitus, tinnitus and cognitive dysfunction more commonly known as brain fog. Brain fog is different for everyone but can include forgetfulness, inability to concentrate, getting lost easily, being slower to think and feeling confused. Not everyone with these symptoms will have IIH, and not everyone with IIH will experience all of these symptoms. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri