#copingwithinivisibleillness

What life is like with chronic illness.

I wonder has anyone else heard the screams or seen the tears that the pain has caused.  Has anyone suffered through the nights and continued to carry on through the days, never stopping to wonder if the burden was too heavy.  Does anyone else cry over all they have missed, barely floating in the now and dreading what the future may bring?  I wonder has anyone refused to let the pain define you, persevered day after day, year after year to live a life you did not ask for but are making the most of what you do have.  If have answered yes, be proud of what you have done, how hard you had to work to achieve it.  None of us knows what the future hold for us, but what I do know is that we will never stop fighting because every day is a new day with a new dream and I for one will never give up.

When someone compares their pain to yours.  REALLY!!!!!!!!!!

Tumblr offers those of us who suffer pain every day a forum, a sounding board, a place to gather information on our illness, as well as support from other sufferers.  It does not relieve pain, but it does relieve anxiety, the fear of the unknown, and gives those of us who would otherwise be isolated and feeling like we are all alone with our pain a community of people who don’t need an explanation of why you are hurting, it’s enough that you are hurting.  It is the one place where you aren’t forced into the indignity of rating our pain (1-10), we can express ourselves however we want, and say things we would never say to family or friends.  I used to feel that my suffering was something that I should handle on my own, until I tried writing it out, gave it a name, a face; I found that that monster under my bed is not nearly as bad now that I have thousands of people in my room.

 enjoy your life and your new symptoms!

When someone doesn't really understand your illness, but at least they're trying.