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Decisions, decisions...
Itâs been a while. A lotâs been said since I was here last. And thereâs a lot to think about. Because MW has significant cognitive issues now, itâs left to me to be the âmemoryâ and, to all intents and purposes, the âdecision makerâ for all issues. I have to be the âmemoryâ because MW canât remember whatâs said on a day to day basis, never mind when discussing important issues. Â I have to take notes and remember whatâs been discussed. She was even asleep during one of the consultations. Iâm also the âdecision makerâ because, despite the fact MW has the absolute final say in whatever happens, she relies very heavily on my opinion. She has real difficulty in making decisions, even for something as trivial as deciding what to eat. So I have to âmakeâ a lot of decisions on her behalf, i.e. explain why I think a certain decision is the best one and get her to say yes or no.
Weâve had two important consultations this last month. The first one wasnât supposed to be that important, it just turned out that way. Â This was a conversation with an OT at the splint clinic - for MWâs hand/arm contractures. Finally, someone has given me their opinion re: MWâs care. I get that professionals arenât supposed to do that because all decisions are supposed to come from the patient. But it wouldnât be so bad if theyâd offer advice. No-one seems to want to do that. So, Iâm left with the impression that the level of care MW receives is considered appropriate for her very advanced needs. Even though Iâm fairly certain that most professionals weâve seen wouldnât draw the same conclusion - if they were of a mind to forward their opinion, that is.
According to the OTâs professional opinion and looking at the situation with a cold eye, residential care would be the preferred option now, for quality of care, etc. Hearing that was a bit of a relief. Not that I have immediate plans to move MW into a home. But I now have some kind of gauge to go off so that keeping her here isnât detrimental to her health. I have a yardstick to use. Although not expressed directly, MWâs demeanour when we talk about her staying at the short-term respite home tells me that she wouldnât be keen on residential care. What MW and I must do now is discuss the long-term future and find the balance between ensuring quality of care and quality of life. Iâm not medically trained. Everything I know is through experience - some more bitter than others - or through picking up bits and pieces from medical staff. And Iâm doing this on my own. I canât do it forever and still maintain her quality of care.
The other conversation was always going to be more serious. MWâs contractures are pretty serious (Iâm having a hard time not singing the word âContra-ac-turesâ in a Debbie Harry voice). This is a shortening of the muscle or joint affecting her hands, arms and neck. Her hands are pretty much shut tight now. So much so that the knuckle joint at the end of some of her fingers bend back on themselves due to the pressure of the contracture. I keep thinking itâs going to break at some point. Her arms are permanently crossed and her neckâs at a permanent 70Âș angle to the right, which makes feeding harder and has knock on effects with swallowing and breathing.
The consultant talked about surgery - under anaesthetic, theyâd attempt to stretch and set hand and arm ligaments. Possibly some neck manipulation. Alternative surgery includes the amputation of the fingers at the first knuckle. Again, for hours under general anaesthetic. None of which is guaranteed to work or not to cause pain. Also, any general anaesthetic will be a challenge. Because of the existing contracture in MWâs neck, she may require awake intubation. This requires a tube being inserted into the nose and down into the throat, then a wider airway tube being threaded over that first tube. All whilst awake.
The anaesthetic is a whole other thing. MW is getting weaker and I donât know if sheâd be able to withstand what will undoubtedly be hours of surgery under general anaesthetic. I know that all anaesthetic comes with risk. Thatâs compounded by these pre-existing problems.
This is all quite a responsibility to bear for someone else. Itâs hard being the âmemoryâ and de facto âdecision makerâ. Iâm going to have to walk a tightrope between wanting to respect her wishes, even though sheâs not expressed anything directly on either subject, and doing whatâs best for her health. I wonât lie, Iâve been going round in circles on both issues and I donât have any idea what to do. But, now that Iâve had proper, professional opinion on the state of things as they are, Iâm all too aware that time is running out to make a decision. I only hope I can help her make the right one at the right time.
La contracture douloureuse du trapÚze supérieur : une tension qui vous serre le cou
La contracture douloureuse du trapÚze supérieur est une affection musculaire assez courante, caractérisée par une tension excessive et prolongée de ce muscle, situé à la base du cou et au sommet des épaules. Cette tension peut entraßner des douleurs, une raideur et une limitation des mouvements dans cette zone.
Qu'est-ce que le muscle trapĂšze ?
Le muscle trapÚze est un grand muscle plat qui recouvre une grande partie du dos et du cou. Il est divisé en trois parties :
TrapĂšze supĂ©rieur: Il s'attache Ă la base du crĂąne, au cou et Ă la clavicule. Il permet d'Ă©lever les Ă©paules et d'incliner la tĂȘte en arriĂšre.
TrapĂšze moyen: Il s'attache aux omoplates. Il permet de rapprocher les omoplates du rachis.
TrapÚze inférieur: Il s'attache aux vertÚbres thoraciques et aux omoplates. Il permet de déployer les omoplates.
Quelles sont les causes d'une contracture du trapÚze supérieur ?
Plusieurs facteurs peuvent favoriser l'apparition d'une contracture du trapÚze supérieur :
Mauvaises postures: Position assise prolongée devant un écran, travail manuel répétitif, port de charges lourdes...
Stress et anxiété: Les tensions nerveuses peuvent provoquer des contractions musculaires involontaires.
ProblĂšmes posturaux: Scoliose, hyperlordose...
Traumatismes: Chute, coup du lapin...
Activité physique intense: Surtout si elle n'est pas associée à un bon échauffement et des étirements.
Quels sont les symptĂŽmes ?
Douleur: Une douleur localisĂ©e au niveau du cou, des Ă©paules et parfois mĂȘme des omoplates. La douleur peut ĂȘtre vive, lancinante ou sourde, et s'intensifier lors des mouvements de la tĂȘte ou des Ă©paules.
Raideur: Une sensation de raideur dans le cou et les épaules, limitant les mouvements.
Maux de tĂȘte: Les tensions musculaires du trapĂšze peuvent irradier vers la tĂȘte et provoquer des cĂ©phalĂ©es.
Fatigue: Une sensation de fatigue gĂ©nĂ©rale peut ĂȘtre associĂ©e Ă la contracture.
Comment soulager une contracture du trapÚze supérieur ?
Plusieurs approches peuvent aider à soulager une contracture du trapÚze supérieur :
Repos: Ăviter les activitĂ©s qui aggravent la douleur.
Chaleur: Appliquer une source de chaleur (bouillotte, coussin chauffant) sur la zone douloureuse pour détendre les muscles.
Massage: Un massage thérapeutique peut aider à relùcher les tensions musculaires.
Ătirements: Des Ă©tirements doux et progressifs du cou et des Ă©paules peuvent amĂ©liorer la mobilitĂ© et rĂ©duire la douleur.
MĂ©dicaments: Les anti-inflammatoires non stĂ©roĂŻdiens peuvent ĂȘtre prescrits pour soulager la douleur et rĂ©duire l'inflammation.
Kinésithérapie: Un kinésithérapeute peut vous proposer des exercices spécifiques pour renforcer les muscles et améliorer la posture.
Comment prévenir une contracture du trapÚze supérieur ?
Adopter une bonne posture: Que ce soit au travail, à la maison ou pendant les activités physiques.
Faire des pauses réguliÚres: Si vous travaillez sur ordinateur, levez-vous réguliÚrement pour vous étirer.
Pratiquer des activités physiques réguliÚres: La natation, le yoga ou le Pilates sont particuliÚrement recommandés.
Gérer le stress: Des techniques de relaxation comme la méditation ou la respiration profonde peuvent aider à réduire les tensions musculaires.
Aller plus loin et contacter
âSyndrome of Contractures and Deformitiesâ According to Prof. Hans Mau as the Primary Cause of Hip, Neck, Shank and Spine Deformities in Babies, Youth and Adults | Chapter  15 | New Horizons in Medicine and Medical Research Vol. 8
The Syndrome of Contractures and Deformities (SofCD) is thought to be the result of abnormalities in the locomotor system in children, as well as inadequacy and pain in adults. Prof. Hans Mau claims that there is a list of symptoms that can be seen in neonates and babies. He refers to this condition as the "Seven Contracture Syndrome" (or "Siebenersyndrom" in German). The authors describe the eighth abnormality, namely the varus deformity of shanks, in this publication from 2006. The Syndrome of Contractures and Deformities, as the primary cause of wry neck (torticollis) and one of the four causes of Blount disease, is thoroughly discussed in this article, as well as its impact on the development of hip dysplasia. In addition, the biomechanical origin of so-called idiopathic scoliosis is explained. Author(S) Details Karski Tomasz Vincent Pol University in Lublin, Poland. Karski Jacek Medical University in Lublin, Poland. Pyrc Jaroslaw Department of Trauma and Orthopedic Surgery, Hospital Radebeul Elblandklinikum Radebeul, Saxony, Germany. View Book:- https://stm.bookpi.org/NHMMR-V8/article/view/6653
Contracture Musculaire Dos Stress
Contracture Musculaire Dos Stress
De la contracture musculaire du dos de plus vous reculez lâapparition de la fatigue intellectuelle et pouvez davantage vous concentrer sur votre travail le soir grĂące.
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Contracture
-- severe tightening of a flexor muscle
-- results in bending of a joint
-- foot is a common point of contraction
-- can reveal information about a personâs neurologic status
-- possible affected areas    -- fingers    -- wrists    -- knees    -- foot
Thombé - Leucas lavandulifolia