#completecolectomy

Back in hospital and it’s bad. We are asking for prayers. Please. . .. . #thisisme #crohnsdisease #crohnswarrior #mswarrior #multiplesclerosis #ostomate #Completecolectomy #knittersofinstagram #itsokaytonotbeokay (at The Ohio State University Wexner Medical Center) https://www.instagram.com/p/Bt6t6WuFlsN/?utm_source=ig_tumblr_share&igshid=189ddbybqfdyn

Thank you to all the amazing people out there who have been cheering us on. Besides the 40hrs home we’ve been in for 13 days today, but the news is finally shifting our way. . .. .. . My body survived the onslaught of this newest whoops and is (🤞🤞) trying to do its best to come around. Still not eating but he NG is gone, which is the hardest part for me. Surgery has been tabled for now due to good news and fear my heart couldn’t handle generalized anesthesia without a weakening or heart attack from my potassium levels. The best part is that I actually feel a bit better today and I can talk again! Four days without talking is surreal. . .. .. . It’s going to be a marathon coming back from this one, especially bc even more weight loss was not in our plans but for the first time in days I feel hopeful and my smile in genuine. I’m sorry I haven’t replied to all the comments but I’ve read each one and hold them close to my heart when things are difficult. Thank you all so so much for your kindness and support, I will never forget it as long as I live 😊 . .. .. . #thisisme #crohnsdisease #crohnswarrior #mswarrior #multiplesclerosis #ostomate #Completecolectomy #knittersofinstagram #itsokaytonotbeokay (at The Ohio State University Wexner Medical Center) https://www.instagram.com/p/BuE58nYlsdt/?utm_source=ig_tumblr_share&igshid=9ql9uxvtpp7y

It’s been a weird week and a half. I thought I’d be home ages ago but then came The Drug. The Drug was something I had to take no matter the side effects, and the side effects included blurred vision so bad I couldn’t hardly make out shapes, let alone any specifics. Soooo today is the first time I am able to see my phone with the fonts all the way up., I haven’t been able to even make out my phone testing in the table. I’ve spent the past days talking and listening, enjoying podcasts, savoring audiobooks and having near constant help to get where I needed to go. Now that the drug is getting out od@my system I feel like I’m seeing better every hour. Hoping to head home tomorrow, Trevor informs me that there are packages and a pile of mail for me to go through which is very exciting. I haven’t wanted to open anything before I could send a proper thank you! 🤗 . . #thisisme #crohnsdisease #crohnswarrior #mswarrior #multiplesclerosis #ostomate #Completecolectomy #knittersofinstagram #itsokaytonotbeokay https://www.instagram.com/p/BujgdhyFzxL/?utm_source=ig_tumblr_share&igshid=3m3runs7j9it

When Mama is too scared to let you sleep alone and the hubby snaps a pic ❤️ ......................................... Thank goodness I’m home. .. .. .. .. #thisisme #crohnsdisease #crohnswarrior #mswarrior #multiplesclerosis #ostomate #Completecolectomy #knittersofinstagram #itsokaytonotbeokay https://www.instagram.com/p/BuMHi4nlGo8/?utm_source=ig_tumblr_share&igshid=92ghp483ewt3

Back in hospital and it’s bad. We are still asking for prayers. Please. . .. . #thisisme #crohnsdisease #crohnswarrior #mswarrior #multiplesclerosis #ostomate #Completecolectomy #knittersofinstagram #itsokaytonotbeokay (at The Ohio State University Wexner Medical Center) https://www.instagram.com/p/BuAKdt0FeL1/?utm_source=ig_tumblr_share&igshid=fq6cky87kumw

I didn’t do #getyouryarnwishesgranted this year bc honestly, I am just so thankful to still be here. But now I am. . . I am not doing very well. The weight loss continues as my 5’7” frame is now down to 114lbs. Eating is painful and now they’re discussing tube feeding. About 80% of my hair has fallen out from starvation:”/malnutrition and mentally, that messes with my head. .... and today they made it officially clear that my body wouldn’t survive pregnancy, so we cannot have biological children. . . What I’m asking for is that you tell someone in your life that they are special, valued, important and loved. That no matter what happens to them, it is always worth the fight bc they are worth it. . . I love this knitting community, you’ve gotten me through a lot really difficult times. Soooo I love you all. You’re all important. You’re all valued. You’re all loved. You’re all worth the fight. Your personalities and projects bring light into the darkness. So go spread the love, life is too damn short not to. . #mswarrior #multiplesclerosis #crohnsdisease #crohnswarrior #ostomy #completecolectomy #colectomy #tpn https://www.instagram.com/p/BrhBn3ilQ3u/?utm_source=ig_tumblr_share&igshid=fubrqxx9ba8c

Crap crap crap crap crap! Being readmitted with another twist and blockage. Pain is under control now but with the huge snowstorm coming I’ll be visitor free for days.... Any good vibes you can spare are appreciated, it’s been a rough start to 2019 . #crohnsdisease #crohnswarrior #multiplesclerosis #mswarrior #completecolectomy #colectomy #stoma #invisibleillness #ostomy #ostomate (at The Ohio State University Wexner Medical Center) https://www.instagram.com/p/BszlHLwF7k6/?utm_source=ig_tumblr_share&igshid=szlvcd22gpgd

So happy to be here this Thanksgiving; twice this year we were so close to this not being the case. Also so happy the hubby and I have gotten wicked good at keeping my cane out of pics! Happy Thanksgiving IGers!! . #chronsdisease #multiplesclerosis #completecolectomy #mswarrior #stolencolon https://www.instagram.com/p/BqgWiHklLqe/?utm_source=ig_tumblr_share&igshid=ibi8qqqwqxtr