#bbsoasawareness

#bbsoas #bbsoasawareness #epilepsy inilah antara perkara yang bikin hati seorang Ibu gundah gulana memikirkan pasal #sawan. Sawan yang tidak dibendung boleh menyebabkan kerosakkan lebih teruk pada bahagian otak kanak2 Dan paling menakutkan ia boleh sebagai asbab kepada kematian. Allahuakhbar, tak terjangkau akal ku untuk berhadapan dengan perkara ini semoga all be fine. Aamiin. https://www.instagram.com/p/CbmbbJLpv8C/?utm_medium=tumblr

Mensyukuri ape yang kita ada it’s the great way to accept all those we had to go thru 😊. . Always set your mind that Allah give you it’s the best for you n you is strong 💪🏼 to face it! . Jangan Sedih dengan setiap takdir yang hadir Kerna Di situ Allah hadirkan jua ilmu yang kite pelajari dalam tak formal Dan xdisengajakan. Allah pilih kite sebab kite hebat dan mampu menghadapinya. Love ❤️ #staypositive #boshboonstraachaafopticatrophysyndrome #bbsoasstrong #bbsoas #bbsoasawareness #bbsoaskid #raredisease #bbsoasfamily #malaysia https://www.instagram.com/p/CUJhXU-JyuJ/?utm_medium=tumblr

#boshboonstraachaafopticatrophysyndrome #boshboonstraachaafopticatrophysyndromefighter #bbsoas #bbsoasawareness #malaysia https://www.instagram.com/reel/CTt8BTAJIO9/?utm_medium=tumblr

Lalaland 😴 💤 💤 💤 #aisy #boschboonstraschaafopticatrophysyndrome #bbsoas #bbsoasawareness #bbsoaswarrior https://www.instagram.com/p/CQXQn8SDf3C/?utm_medium=tumblr

Good morning dunia 😊😊😊😊 . Bismillahhirrahmannirahim Semoga urusan pagi ini dipermudahkan. Let’s go 😇😇😇 . #boschboonstraschaafopticatrophysyndrome #bbsoas #bbsoasawareness https://www.instagram.com/p/CQXHJ6JD8cP/?utm_medium=tumblr

Happy World Braille Day!! Because we don’t know Emma’s vision acuity or how long she will have vision in her life we are taking baby steps to get her prepared for her possible future. She loves wooden toys so these blocks and tiles are amazing because they have both the lowercase and uppercase letters so she can learn to differentiate them. We have started learning Braille as well and it is one of the most difficult things I’ve had to learn, but anything for my baby to make sure she gets everything and anything she needs to progress and succeed in her life!! And you only get one of each letter, so Emma’s initials it is because of double letters in all of her names!! ⁣ ⁣ #emmaleimomi #bbsoas #bbsoasawareness #boschboonstraschaafopticatrophysyndrome #nr2f1 #nr2f1foundation #geneticmutation #visuallyimpaired #babyglasses #opticneverhypoplasia #onh #opticnerveatrophy #ona #strabismus #corticalvisionimpairment #cvi #braille #nationalbrailleday #brailletoys #brailleblocks #learningbrailleformybaby #anythingformybaby #specialneedstoddler #specialneedsmom #specialneedslife #preparingforherfuture https://www.instagram.com/p/B68sjdZFqRk/?igshid=1v8w4qixm6z1h