Vicky 🥀

1. Chiari Malformation

2. Syringomyelia

3. CCI

4. hEDS

5. MCAS

6. Gerd

7. Gastritis

8. Chrons

9. Occipital neuralgia

10. POTS

11. Syncope

12. A partially paralyzed right ankle

13. PCOS

I am waiting for results on to which autoimmune disease I have but it's quite strong so treatment will be coming. I also appear to have CSF flow issues.

But life isnt over! I'm still a happy girl who loves her friends her family, her boyfriend. I still have hobbies, I love to figure skate and dance and snowboard and bake. I'm always down for a walk in nature or a movie night. That's why I included a "good day" picture (even though I'm always symtomatic) and one with my brace on.

I know I wouldn't be where I am today if it was not for Taylor Swift. This is why I am starting #spooniekatmeettaylor . Everyday I listen to Taylor Swift. She gets me through it all. Her music brings me strength and joy. Her music gets me through this never ending fight. Taylor is everything to me. I've been here since Tim McGraw and I'm never leaving. Catch me and maybe my brace buddy at Gillette at Lover Fest East Night 1! I will be sitting in Floor Section A5, row 16, seats 17 and 18. Please come and say hi! I would love to meet as many of you as possible!

If anyone can reblog with the #spooniekatmeettaylor and tag Taylor, I would be so so grateful.

Love you all! My messages are always open if anyone wants/needs to talk :)

All my best,

Since it’s disabled selfie night I thought I would make a list of some things I have achieved since being diagnosed:

- graduated from my law degree with honours

- traveled to some incredible countries

- worked as a teacher aid with kids with disabilities and absolutely loved this job.

- Got admitted as an Australian legal practitioner and got a job which I have had for over two years.

- purchased my first home with my love Alex

- got engaged (not really an achievement but still exciting 😂)

Though there are things I can’t do like drive a car or drink alcohol/ caffeine or run and though I have to rely on medication to keep me going - I’m so proud of what I have managed to achieve with a disability.

somewhere between meet me in the afterglow & step into the daylight and let it go 👩🏼‍🦽☀️💕

hands down the best feeling in the world, will literally NEVER get sick of that feeling 🥺

Jack 100% out screamed me on the last clip but in my defence I was sick.. wasn’t on top form 😂

Who’s going to tell her that she is now the music industry? Who’s going to tell her that she’s the artist of the decade (2010s)? Who’s going to tell her she’ll change lives? Taylor we love you so so much and are so proud of you and everything you’ve achieved!