October 2019 Illustrations  ヽ(• ‿ •)ノ

Asking for accommodations is okay

But remember your body is fighting hard for you, even when it doesn’t seem like it.

(Source: Cinotto, Simone. The Italian American Table: Food, Family, and Community in New York City. Chicago: U of Illinois, 2013. Print.)

Executive Dysfunction: I need to pick up those clothes I need to pick up those clothes why am I still watching this thing on Netflix while sitting down c’mon stand up I need to pick up those clothes I need to pick up those clothes I need to-

Executive Dysfunction: I may or may not want to do the thing but regardless I can’t seem to do the thing and it is causing me great anxiety because the thing needs to be done.

snack

Doctor: if this was the first time you had these symptoms, I’d call an ambulance for you right now. But since it’s normal for you now, I won’t worry, but you might want to just have the hospital on speed dial. oh yeah here’s the price

It’s rare disease day! 🦓 There is a common phrase among doctors that when you hear hoof beats think horses not zebras. What they frequently forget is that zebras are real. 1 in 10 Americans have a rare disease and only 5% of rare diseases have a FDA approved treatment plan. Many rare diseases are overlooked, misunderstood and mistreated. We need more awareness and with it hopefully more treatment options. I have a rare disease called Ehler’s Danlos Syndrome and a not rare but rarely know condition called Postural Orthostatic Tachycardia Syndrome. EDS is a group of connective tissue disorders, our collagen is defective. Collagen is a major component of the human body. This causes a wide variety of multi-systematic symptoms. EDS is incredibly hard to diagnosis and not widely known. It is extremely hard to for doctors who are not educated in EDS to put together symptoms like constant nausea, dislocations/subluxations, hyper-mobility and easy bruising (just to name a few). Rare diseases effect millions of people around the world—and today we celebrate those with rare diseases while pushing for more awareness and research! 🦓🦓🦓