On Being Shae...

Great info graphic article! I’m not blogging much these days, but had to take a moment to pass it along.

http://www.buzzfeed.com/zebrazebrazebra/31-random-facts-about-ehlers-danlos-syndrome-v5ff#.qojO2yYN

I’ve changed my ‘protocol’ significantly. I’ve learned a lot since first writing these posts. I’m finally on a better track with it. I have a long battle still ahead, but have found some good artillery to help in my ongoing war with it.

It is complex, although some things that do help are simple to do. I’m not yet able to write a thorough post on my experiences and what I’ve learned as far as…

I’m pretty damn sick, pardon my vernacular. This will be a short, choppy post…no energy for a well written one. I’m on a complicated regimen to fight this lesion-causing stuff (may well be the Bb spirochete associated with Lyme). There is some improvement, but it is slow and hard won. And I be herxin‘ like a mo-fo. Again, pardon my semi-vernacular.

The Herx (herximer affect—in short, that’s when…

Stages of grief: recycled

I think the time has come for me to accept that I probably won’t beat this mystery disease…a disease doctors dismiss, at best…that I will likely suffer with it for the rest of my life, whatever that consists of. I’m not saying I won’t still try, only that reality is setting in hard. And it hurts. And pisses me off. And hurts. And pisses me off. Makes me wail and bawl like an idiot through long,…

Lyme and “Morgellon’s Disease” – likely components of a single condition

Let me start by saying this is my theory; that in fact, both Lyme and a “skin disorder” that is referred to as “Morgellon’s Disease”, are actually two components of the very SAMEbacterial infection. I feel strongly that I am right. I have limited evidence, at this point…mostly what courts would likely consider to be “circumstantial” evidence, but evidence, nonetheless. I suffer from both. The…

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Cindy Casey Morgellons Disease Diary.

MORE ON LESIONS LIKE MINE: – Legions of Lesions (part one) – Legions of Legions (the sequel) -Legions of Lesions (war – part 3) – Research article linking collagen (EDS overlap?) – All posts related to lesions

Interesting research showing that collagen is a primary component in the filaments found in skin biopsies of Morgellons patients…I have suspected that those of us with Ehlers Danlos (EDS) are more susceptible to ‘Morgellons’ because I theorized that our mutated collagen plays a key role. This research certainly backs up my brainstorming. It also finds spirochetes associated with Lyme, which I…

Legions of Lesions Part Three – War

I’ve begun having success, finally, and may actually be winning my battle. It’s been an incredibly hard year (more than a year, actually). The biggest remaining lesion is finally almost conquered. There are still many, many small ones…they are also improving. I am listing here the things I am using successfully.

Bear in mind this is NOT medical advice, merely my personal experience, so if you…

2014 Morgellons Medical Conference Highlights New Research.