And juuuuuust when I think things are finally on the path to getting figured out-
Once again, blindsided violently. IDK what I was expecting but here we are.
The aforementioned symptoms before my break came back but they’re much worse now. For the past week I’ve been suffering so bad I cannot function. Work is a monumental struggle because the mental energy it takes to do it drains me by the middle of the day. Things that used to worry me- finances, chores, etc- I don’t have the energy to worry about anymore. I’m allowing my finances to be ruined because I just don’t have the ability to focus on it, either energy wise or mentally. Even when I’m “resting” I can’t do the things I enjoy because I’m either too mentally checked out or I’m stuck in bed.
Exhaustion. Fatigue. It’s been so bad that I am weak on my feet, I stumble, and I’m dizzy. This is new.
Sleepy. Sleep doesn’t alleviate this.
Nausea & stomach pain that comes in and out.
Incredible mental fog and confusion. I cannot string together thoughts, recall simple words so I can speak and write in a linear manner (it’s like I KNOW the word but there’s a block to get to it, and it takes some effort to get there) and there’s a lot of energy put into tasks I used to do on autopilot.
And of course, all of this cycles. I’ll be fine for a day, then I’ll crash for the next 48-72 hours. I’m just becoming more bed-bound with each crash.
Before, it was bad. I was struggling and it was a daily battle, but at least I was able to sometimes get through full days. But now it’s a serious problem as I cannot work in the state I’m in. I’m trying to “convince” myself I can, but I just missed an entire week of work because of how severe this has suddenly become.
Yes I’m working with specialists. I have 2 doctors right now who have orders for comprehensive blood panels to check a bunch of stuff and go from there.
Yes I’ve notified my workplace that shit is hitting the fan. I’m working on updating accommodations.
But honestly? I think I’m still expecting too much of myself during this time. I need to take a step back and reframe how I should be looking at everything and how I want to go forward.
Have high expectations for myself in comparison to the situation I’m in. I still expect myself to be able to function at a higher level than what I currently can do; I’m not meeting myself where I’m at. This is causing low self-esteem & shame for not “carrying my own weight” in my relationship as I need to depend on my partner right now (somewhat valid, but you know) and that low self-esteem & shame is a vicious circle of me continuing to set absurd expectations where I’m at.
In the same vein, I keep forcing my body past its limits (bootstraps shudder). I’m exhausted? I stay awake. I feel myself getting overstimulated? I force myself to stay in the situation longer than I need to. Not respecting my body’s boundaries due to XYZ reasons.
Keep “being optimistic” about where I’m at. This is two-fold: 1) I wasn’t allowed to rest or be weak when I was younger, so I force myself through discomfort. And I’ve done so for years. You can see that it’s taking a toll on me lol 2) I don’t validate myself. I do think parts of this are in my head or that I’m not trying enough, or that I’m lazy etc. So I keep thinking that if I just brute force myself through the day it’ll get better… When really, with where I’m at, exerting energy makes things much worse. I’m not accommodating myself properly- I’m still trying to fit myself into a neurotypical, able-bodied role.
Am aware I need to approach my life knowing I need to make huge financial shifts & probably need disability benefits, but there’s a gap between where I’m at and getting to the ability to acting on it. I technically make too much to qualify for SNAP, which is a requirement to qualify for any disability benefits, but the issue is that I “make too much” if I’m working 40 hours a week consistently. However, I haven’t been doing for a year +; I don’t know if the government goes off of what my actual hours are or the hours I’ve worked and/or if they’ll understand my situation’s conditions. I also still don’t have any new diagnoses- one of them I may have very soon (I’m wrapping up on autism testing) but the more overlapping health issues, the more I feel I’ll be inclined to be accepted on disability.
In order to get through this brutal time as best as I can, alleviating stress & making things as easy as possible, what would the most ideal situation look like?
First and foremost, I want to go back on break. For 1 - 1 1/2 months. I suddenly dropped quickly in ability to function; this week may also be brutal in terms of functionality and not only make my attendance at work continually worse, it continues to jeopardize my employment. It’s not because I don’t want to work- quite the contrary- but because if I continue to try and force myself to work in the condition I am in, I risk losing my job when I REALLY fucking need the benefits right now to figure out what’s wrong. The only way to make sure I “stay safe” is to go back on break.
If I can’t go back on break, accommodate the living fuck out of my work situation. Ask for more hours cut- ask for 6 hour work days, as I can usually make it to mid-afternoon on “good” days, and WFH. See if I can build consistency from this.
I may need to swallow my pride and reach out to family. I quite literally would rather starve than ask for financial assistance (I’ve been going to food banks rather than reaching out for grocery money… I’ve avoided asking for money since I became financially independent; only asked once in the past 8-9 years) but at this point I’m beginning to have no choice. A lot is happening, there’s a lot of transition, and I am no longer having a choice. If I want to reduce stress, this is the best method.
Hyperfocus on my pacing. I no longer have the spoons that I used to have; instead of being able to do a handful of chores in a day, I must carefully choose what I want to get done. Fix priorities. Talk over chores with the partner. Figure out how to restructure life.
Finally: continuously make an effort to change my mentality on being disabled. This is going to be the most difficult part, but the most important. I was raised to pull myself up by the bootstraps, never admit weakness, and to always default to other people’s thoughts & feelings before my own. This was also how I felt like I could maintain control of my life. Now, I need to give myself permission & grace to assert boundaries that inconvenience others. I need to remind myself of what I can and cannot do, accept it, and continue to learn to accept it and allow rest. This is so, SO difficult, and is a daily war, but this is something I’ll need to be actively working on for months to come. (Probably my whole life lol).
I come here often to walk myself through my thoughts. I don’t know what’ll happen, lol. But at least I am clearing my head up.