Help, I'm Alive

too many people completely separate disability from themselves in their mind. it's something that happens to other people. other sad people i don't want to think about. are they really even people, it's too much to bear thinking about that happening to a person... those background characters over there. it would never be me, i can't cope with thinking about that possibility.

this mass denialism of the fragility of the human body (YOUR human body) has created a whole category separate from the disabled - the "elderly." since anyone can join it if they live long enough.. no they can't be disabled. that's scary, and worse it's political. so they are just "old." so what they lost their hearing, their mobility, their heart function? that's just how it goes for old people. as if that's not a person as real as you. as if you wouldn't be devastated if that happened to you today (and it can btw). as if you won't be when it's your turn to be old, and disabled.

My grandparents lived to 98 and 103. Read that again— 98 and 103. My grandmother died 5 months ago and was born in 1923.

She was extremely wealthy. My grandfather left her millions. She paid about 13,000 a month for her care.

And her nurses abused her. She could do nothing. She could not speak for herself, feed herself, clothe herself, and the humiliation they made her endure was disgusting. When she tried to express discomfort, they gave her drugs to “keep her calm” (keep their shift easy). We fought like HELL to hold that fucking place accountable. The only reason we were aware is because we hired a private nurse on her behalf, too.

The elderly are a massive, extremely vulnerable, and disabled group. You cannot leave them out of your advocacy, you cannot leave them out of the conversation. “They’re loud, they smell, they’re opinionated, they’re rude, they make me uncomfortable”. I don’t care. I don’t care! They need your advocacy too! I want you to think, if my grandmother— who was in the best retirement home she could afford, with a personally hired third-party nurse to step in where the other carers failed, had such abhorrent care… what about everyone else? What about all the elderly who don’t have a support system?