Milo Braveheart

Scheduled EEG. Trying to figure out why Milo has seizures. According to the technician everything looks pretty normal.

All of the superheroes at Universal Studios were sporting Happy buttons yesterday!

Nightclubbing with Milo last night During Mickey’s Christmas Party!

One of the countless highlights from today! It really was an incredibly magical experience. I’ll have to do a proper post later... too tired! :-)

Make-A-Wish GA threw a reveal party for Milo’s Wish trip! It was at his Granprent’s house so it would be a surprise!

Out of the hospital a little after five today. He was super happy, but did not want his picture taken. Best I could do. LOL

Hour long EEG. If it looks good we are outta here soon after!

Milo slept well last night. He is acting much more like himself. He’s very happy, but still kinda weak. He also ate his breakfast like a champ this morning. They might not even do an EEG now. My brain is only doing short sentences today..Need coffee.  LOL

Already chillin with DJ Lance in the step down unit!

Milo is doing much better. He’s really cranky and wants to go home, but he’s resting well. He also tested positive for Rhinovirus and Corona virus which isn’t too surprising since he’s been sick for about a week or so. We are gonna be here tonight for observation and have an EEG tomorrow morning.

For later

The tube is out and he is resting and breathing well! His heart looks fine. The plan right now is to keep him here overnight and if everything is okay, go home in the morning. They are upping his dosage of Kepra. Hopefully that will do the trick.

He would briefly respond to sternal rubbing then go back out. His O2 saturation kept dropping and he would stop breathing for a few seconds at the time as he usually does. We drove him to the ER. On the way he did vomit once as per his usual. I really want to get an oxygen tank and a non rebreather in case this ever happens again.

Sleeping well.