9th Story - Those 3 Days
Day One - May 25th
That first day in the NICU was hard. We shifted through unending questions, scary thoughts and a rollercoaster of emotions. Trevor and I were experiencing a new love as first-time parents but it was being battled against the gut-wrenching pain of losing our child. The fight was exhausting. The excruciating part that first day was taking in all the hard information. The doctors went over all the details carefully with us trying to help us understand the seriousness and reality of her condition. Some of it seemed mysterious to them. They were still researching everything because there were a lot of unknowns and possibilities. There was no âthis was itâ answer to it all. That made it more difficult for Trevor and me. To not have a clear answer. Did something happen before the labor began? Did things happen right before she came out? There was meconium when she came out but was that just a factor that took it over the edge? Was there something chronic happening? Was there a history in our family of something that might have caused it? There was this weird thing about her kidneys that when she arrived at the hospital it almost seemed they had been healing making them wonder if something happened in the womb. Did the womb become a safe chamber for her so when she came out it was like unplugging it all and it spiraled from there? It was unknown. Her lungs were badly damaged, her organs were wrecked and her brain had little to no activity. The doctor asked me at one point if I remember her moving. I was blank. I couldnât remember. I felt like a horrible mother. Why couldnât I remember?! Why did we not see this coming? It was tearing me a part. Guilt smacked me in the face. When the doctor left the room I remember taking Mazelleâs white blanket and wrapping it around my head and weeping.
So many times the memory of her eyes gazing up at me when she first came out would run through my head. I wanted that moment back. This all happened so fast. So many questions. So much confusion. So much sadness. I couldnât catch up to reality. I remember one moment listening to my heart and it slowed my thoughts down. Nothing was making it feel better. I wanted to put her back in my belly where she was safe. We wanted to protect her. We wept over her. Thinking about what we would miss without her. The cute outfits. The little shoes. What we would have taught her. Even her cry would be missed terribly. It took the whole day to grasp the reality that we found ourselves in. I could hear a little piece of my heart hoping that it would all change. We didnât know how long we had. We didnât know what would be next. We couldnât believe we were even still here with our daughter. She should have died right away. People were praying for a miracle. The miracle was that she was still here. With her PH balance being so off the charts and the length of time she didnât have a heartbeat, she should have died right away. Instead she was here. That was a miracle.
Her soft pink skin smelled so sweet you wanted to keep your nose close. We would lean in so we could feel her breathing tummy hit our faces. Talking to her without tears was almost impossible. Mazelle lay there with her arms wide open. Her long hands with tiny fingernails rested on her bed. It was like she was telling us, âIts ok mom and dad. We are here now so lets enjoy this time together.â She was letting us know she wasnât mad. She was surrendered. I learned so much from her. We called her the giver. Anyone who came to meet her came out loved. Came out changed. Friends & strangers were moved to get on their knees around the world. Mothers and Fathers were holding their children tighter. People were calling out to God after a lifetime of ignoring Him. Her life was a gift to all of us. Our little giver.
I hated that I couldnât be right next to her every second of the day due to my body being in so much pain. I would stand as long as I could and then sit down. Then sitting down would become painful so I would have to go back to my room to lay down to rest. My body needed to heal but it was so hard to care about that because my room felt so far from Mazelle. I felt so helpless. I would keep her blanket wrapped around my neck and close to my face when it was too hard for my body to physically get down to her room. I decided to pump when I couldnât be with her too. It helped the craziness in my head. It gave me something to do. When I pumped I would think about her gaze and hold her blanket. Pumping actually brought some fun moments of seeing how much colostrum could come out. I remember one time we decided to go down to Mazelle so I could pump beside her. I put my hands on her legs while my friend Kashema held the pumps for me. I pumped the most colostrum ever being next to her. We would celebrate the little things like that. Those celebrations helped the heavy sorrow that never left our side.
There were some precious moments shared with people that helped the heaviness too. My parents were pillars for us. They too had lost a daughter in a tragic accident. Having them there with us was such a strange comfort. They knew the feelings we were having. Them being there was like a banner saying, âThis is NOT ok at all BUT its going to be ok. Youâre going to be ok.â They never tried to fluff up anything. They were honest with us. We could draw true comfort from them knowing they knew.
Another person who brought us comfort was Kashema. She had supported me through my pregnancy and labor as my doula and friend. She had arrived back at the hospital that first day after getting some rest at home. When she walked into the hospital room we realized it was just the three of us. We couldnât thank her enough for being there and we told her we couldnât have done any of that without her. The labor was long and exhausting and she was there the whole time. She was my cheerleader. She literally held me when I couldnât hold myself up. We continued to encourage her to pursue her passion as a doula. She couldnât believe we were telling her this even though we were sitting in such tragedy. It didnât matter. She needed to know that her support was necessary through it all. And from that day forward she pressed into her role as a doula. We felt so honored that our little daughter could help ignite a passion in Kashema to support women in labor. That support was so important to us.
I will never forget moments shared with my sister Breanna and her fiancĂŠ Justin. The picture of them sleeping on the cold hospital floor that first horrible night kept ran through my head. She told me later she prayed over and over again on that floor pleading to God âNo, please donât take her. Give her breath, please.â My sister Breanna watched me sleep. She didnât leave my bedside. Breanna even helped clean me every time I had to go to the bathroom. I was so weak physically and mentally that I felt helpless to care for my body so she did. I am forever grateful. During the three days in the hospital there was a moment when it was just the four of us. We told them how we were planning to ask them to be Mazelleâs godparents. If anything would ever happen to us, we wanted them to watch over her. But now the reality was Mazelle would leave us instead. We all shared tears of loss and tons of love for her and for each other. Justin shared how much Mazelle changed him. We felt so honored that our daughter was such a precious gift to him.
We had a lot of people come by that first day and we kept hearing about the HUGE response to our familyâs tragedy. People around the world were praying. I even heard about prayer happening in the hospital cafe. We had a little worship & prayer session in our room with friends & family. I remember singing my song âOceans.â My phone was full of notices, messages and phone calls. An unending stream of love notes were being sent our way. We felt so loved. It helped the hurt.
With all the visiting, the overload of information and everything zooming by so fast that first day, Trevor was dying to connect with me. He had been hosting the visitors that day and he needed time. Time to rest. Time to be with his wife. Time with his little girl. Time to grieve together and love together. We decided the next day needed to have lots of time with just him, Mazy and me. Good idea daddy. I feel like when we did that, time slowed down. Its like it almost stopped. Just for us. That night as we tried so very hard to sleep. The overnight doctor had come in and discuss things with us. They had been cooling her little body to see if it would help with brain activity. It had increased a little which gave us much needed hope; however, there had been some recent seizures, which was not good. Yet on the other hand, that showed brain activity, which was good. The information, even though it was a lot of back and forth, actually helped us rest that night. We got up the next morning with newness in our step.
Day Two - May 26th
We knew each time we saw her & spent time with her, we wanted to BE with her in that moment. We treasured each moment as a miracle. It was heartwarming to see Trevor be a father. I fell more in love with him as I watched him talk to his daughter. I wondered if she could feel his love when he touched her and how he looked at her. Trevor had never felt so much in his own skin like he did being with Mazelle and me. The suffering was producing joy. God was giving us faith to believe. We felt like we were lacking nothing. God was there with us. Filling us. Her life was changing us. We knew it was beyond our understanding.
During one of our visits with Mazelle, Trevor put his hands on my cheeks just as we were about to leave her room and said, âGod knows her. He has her. He loves her.â I listened intently to his loving voice and agreed. We went back to our room so I could lie down. Before lying down, we stood by the window and soaked in the view. It was beautiful. You could see the glistening ocean water. The sun was shining in the big blue sky. There were beautiful green rolling hills. It was so vast and abundant. The view made us think about how big God is and we were amazed that we were important to Him. I had no idea there was that much love out there for our little family. All the people. All the response. God was wrapping us in love. I remember saying out loud, âGod loves me so much.â I went to lie down. Trevor lay beside me. We laid there together looking out the window continuing to take in the view. Continuing to take in the love of God. Thinking about all the people praying for us and our little warrior princess. We were in a place to receive. We knew we wanted to protect her but we knew we couldnât. There was nothing we could do. Trevor started sharing with me. The words he spoke as I laid there washed over me like healing water. He kept looking out the window as he poured out such life giving truth. God was speaking to us. All of sudden we were both holding our hands up reaching out towards the window releasing our baby girl to the Lord. We both were speaking out loud to God, weeping prayers, calling out and giving up control. We surrendered Mazelle to our loving Father. She was His all along. We were at peace with the war in our heads. It was going to be ok. We were going to be able to get through this. We took a short rest in the small hospital bed. Our bodies were at rest.
Later there was discussion stirring about me being discharged the next day. I couldnât fathom the idea of leaving the hospital. Leaving my girl there all alone. We were trying to make a plan about it but we just couldnât make one. As we all fell silent in disarray that we would have to leave, the nurse came in the room literally right after our conversation. She said that things had been worked out and we could stay in the room after my discharge! Well decision made! What a relief and blessing it was to be able to stay. A weight came off my shoulders. My body was still recovering so I was relieved that we would be able to just walk down to her room still. Her room didnât feel as far away anymore. After the good news, I felt the need to get back to Mazelleâs bedside. We headed down the elevator. As we turned the corner to head down the hallway to the NICU, a mother in a wheelchair was rolling off with her baby in her arms. I blankly stared as I slowed down my walk. It was one of the first times I felt anger. As soon as she passed me by, I flung myself towards the wall and punched it. I leaned my head against it. My gut was full of pain. Trevor immediately came over and wrapped himself around me. He asked, âDo you want to do this right now?â I answered back with no hesitation, âYes!â I didnât want the pain to stop me from being with my daughter. No madness would stop me. No anger could hold me down. My daughter was here right now and that was what mattered most. We rushed to her bedside and I soaked her all in. Of course my body started to hurt eventually so I said my goodnight wishes to her before heading back to bed. That night I slept with her blanket tight against me. I couldnât wait for morning to come so I could get back down to her room.
Day Three - May 27th
The last morning with Mazelle was an extra delight. They put screens up so we could have privacy. It felt intimate more than ever as we were in our own little cocoon. I was feeling a bit better and able to stand for longer. I loved having the energy to be there! I had her white blanket wrapped around my shoulders. I got to rub my breast milk over her big pink bottom lip. I tried to do it as tender as I could. I wanted to just squeeze her lip. It was so cute! Trevor and I did a lot of talking with her and touching her. We smelled her. It felt like we were connecting as a family in a really special way! We were just hanging out like a normal family would. I had longed to do this for almost 10 months! I remember feeling really connected to her and Trevor. The burden was light. Godâs presence rested on us as he prepared our hearts.
Later that day we had a big meeting with family and doctors in our room. We got my sister Holly on the phone with us too. She was going to be flying in from Minnesota the next day. I wanted everyone to be a part of this meeting. There were some decisions we had to make after the neurologist had looked over Mazelle. She laid out the facts and our daughterâs condition. No good news. We could have transferred her to another building to get an MRI but that brought risk of her being hurt from the transfer or the chance of tubes getting moved around and coming out. The MRI would only bring us information not really help her situation. Her brain activity was essentially gone. She was ready to be let go. I wasnât ready to do that though. As a mother, I was not ready. I couldnât make that decision of pulling anything off my girl. Thinking about that kind of decision, which you never thought ever in your life you would have to make, wrecked me. We all decided we just needed to wait until Holly got there the next day. I needed time and that would allow me time to take in all the new information. I think I still had hope. No I did have hope. Or maybe I wanted to have hope that she would come alive. Trevor had a strong sense in his gut that we would say goodbye this day. He just knew. Everyone left the room to leave Trevor & I alone to comfort each other and rest. A couple hours later, the doctor called our room to tell us her IVs were failing. She gave us a couple of paths we could take next. The least harmful one was to try and poke around to find another place to put the IVs. We gave her that option. Less than an hour went by and the doctor called again to say nothing was working. It was time. It would be this day. We said it was like Mazelle was telling daddy, âI know dad. It is today. You know and I know. I will help mom out so she doesnât have to make that decision.â What comforts me is I found out later there was a group of ladies praying at one of their homes. They were on their knees pleading for us and one of their specific pleas was that we would not have to make the decision to unplug her. Oh man. And here we were. Mazelle was letting go on her own. There was nothing else that could be done.
They gave us a quiet private room to be with our girl. We took more photos and videos never feeling like we could take enough! Looking at her now was different. This time we were truly saying goodbye. We watched intently to her belly move up and down. We talked with her. We told her we loved her. I remember teaching her math. I used the measurements of how much colostrum I pumped that day to tell her about multiplication. Trevor sang âIsnât She Lovelyâ to her. Man she was so lovely. Her beauty was captivating. Â The nurse came in to find out if we wanted to give her a bath. You bet we did! I loved rubbing the shampoo in her thick black hair. Trevor rinsed it out. It was heart-warming to watch him be so gentle with her. We changed her diaper for the first and last time. We brushed her hair to get her ready for everyone to hold her. Her eyes were opening a lot. Her foot had moved a couple times. She even seemed to have hiccups. Seeing so much life while getting her ready to say goodbye felt backwards. We wrapped her in the white fuzzy blanket I had been holding those three days. The rest of the family came into the room. We all knew we are just saying âsee ya later.â We knew we werenât saying goodbye forever but we did have to let go of her being here with us. We each sat in a chair and they would place Mazelle in our arms. It started with me. She was so cozy! I could feel her breathe in my arms. I moved my body with hers. I didnât want the moment to end. Each person would hold her for the first time and the last time. Watching each person hold her was a treasure in my heart. I remember as my Dad held her I could hear him telling her why she would get a spanking. It made me giggle. I had to come over at one point to wash the tears from his eyes so he could see her clearly. I remember Justin telling Mazelle what to say to God when she gets to heaven and thanking her for what she had done for him. My mom cried and looked at her with such care in her quietness. I felt like it was one the first times I saw my mom cry those last three days. I could hear her whispering to Mazelle. One of our pastors was there to say a blessing over her. He told us when he held her he wanted her to wake up so badly but knew this was it. The truth was so hard for all of us to accept. At the same time the burden was light. Her eyes opened up for each person when they held her. We said she was taking snapshots to bring with her to heaven. That made us all smile.
After everyone said their âSee ya laterâ they left the room so it could be just the three of us. We laid in a bed with her in our arms. We talked to each other about her. We starred at her. We couldnât help but smile when we gazed upon our daughterâs face. All the tubes were gone. It was just her warm body wrapped in her white blanket. We brushed her hair again. She opened her eyes one last time as we lay there with her. She was lovely. Â Trevor urged me to get skin-to-skin with my baby girl. He held her for a moment while I took my shirt off. He passed her back to me. Her body still felt warm. Iâll never forget the feeling of her skin touching mine. I was so in love with her.
We kept talking to her as I held her close. Trevor leaned in and we took every second as a miracle. It was calm. It was peaceful. I was so surprised at the peace I felt. Her heart was steady. Peace. It was slowing down. Peace. Her body made a couple smalls jerks and thatâs when I knewâŚshe was gone. Peace. I felt like we were being collided with eternity. Like there was an overlap for a second. Like there was this pass off from my arms into His. We took that final step of releasing her to God on May 27th at 8:15pm. Peace. The nurse came in and I let her know. She confirmed by listening to no heartbeat. No breath. I passed her over to Trevor. He felt like he could squeeze her tight. How we had long to do that! We couldnât do that when she was alive because her body was so sensitive. Before the nurse came back in, I held her awhile standing up and rocked her back and forth in my arms. The nurse brought in a little treasure box to fill up. I laid Mazelle on her bed. That was the last time I would hold her. We got her handprint. We got prints of both her feet. We cut off some of her thick black hair. It was so soft. We put all her hospital bracelets in the box. We put the sign that said her name on her bed in the box. The nurse helped us think of everything. We were so grateful for her. She stayed long after her hours had ended to help us with these last moments. I couldnât believe her passion to make sure we were taken care of until the very end. As we started to finish up, I didnât want to touch her. She probably felt really cold. I wanted to remember her warmth against my body. I took one long last look at her. I got really close to her and stared at her beautiful profile. That was the last picture I took of her. Her gorgeous profile. I didnât want to stay too long after that. Her body was becoming discolored. No life was there. I couldnât bear to look anymore.  It was time to walk away. Let go for good. Deep breath.
We went up to our hospital room. My Dad & his wife Debbie were there to give us dinner that a family had prepared for us. We sat there and ate in the dark quiet room. Her blanket in my hand still. The three roses still sitting in their vase on the counter. Dad & Debbie gathered our stuff for us while we ate slowly. I was grateful I felt like eating. We finished. It was time to leave the hospital. The end of our time there was done. Breanna & Justin waited outside with our car. Stepping outside felt so weird. It didnât feel right. We were missing something. Driving home was foggy. Seeing the outside world. Life had been just going along while time had seemed to just stop for us. I looked out the window the whole way home as lights passed me by. I tried to look for stars in the black sky. When we got home Trevor and I cuddled in bed with Mazelleâs blanket between as we held each other tight. Tomorrow would be our first day without our daughter. Mazelle was here for 3 days. 3 holy days that forever changed us. 3 holy days that has forever changed thousands of people. What a miracle. Like how Trevor said those words to me when I was in labor right before Mazelle came out, the strength was there. It was there incredibly.









