Help4CDH Families

#CDHreality: #CDH is rare by definition....even if it doesn't feel rare to those of affected by this horrible birth defect. #CDHawareness #RareDiseaseDay (at Help4CDH Families)

#CDHfamily ... been thinking a lot about this lately. We need to support each other regardless...no matter what life decisions are made, what hospital is chosen or if the #cdh-er is an angel or not

Come out to either Superdawg location from May 9 thru May 15, turn in this flyer, and 20% of your ticket sales will be donated towards #CDH research. (at Superdawg)

We just received another shipment of bears from Bears of Hope to distribute to #CDH families

Here's a collaborative video montage of various family's #CDHreality.

Sharing these #CDHawareness word clouds for #CDHawarenessDay

Reposting this #CDHmath from a couple years ago. I am using my boys as an example, but the number 15 seems to be meaningful to a number of others too. #CDHawareness #CDHfamily

It's been a while since I've posted an update. First of all, I want to thank you all for your support and participation on this page. As long as you find value in this page, I'll keep it going. Second, I don't think I ever announced our 2015 donations officially. We were able to donate $2200 to the DHREAMS #CDH Research study and another $800 to the Boston CDH study (through our partnership with the Ladybug CDH Foundation). So thank you for your help in making this possible. For 2016, we will once again participate in the CDH Ladybug Run in July and organize a Chicago meet-up. We will host another online auction. And we're considering hosting a CDH BBQ get together at our home along with possibly organizing another Family Carnival to raise funds for CDH research. That's it for now :) #cdhawareness #cdhfamily Thanks again Neil

Just got a new shipment of bears from Bears of Hope to send to #CDH families.

A very real #CDHreality

#CDHreality: #CDH is rare, even if it doesn't feel like it to us

#CDHreality: You are not alone #CDHawareness. #CDHfamily

#CDHreality...#CDH will be one of the hardest things you'll ever face #CDHawareness #CDHfamily

#CDHreality: #CDH is more than survivors and nonsurvivors. That's an over simplification. #CDHawareness

#cdhawareness word clouds montage

4 months to 17 years old!! #cdhsurvivors #CDH #cdhawareness