Eric

My name is Eric. In 2012 I was diagnosed with two rare diseases that changed my life. My body experienced extreme inflammation and pain as my immune system reacted poorly. As my lungs were failing and my doctors out of options my wife was told they were just going to keep me comfortable. She managed to get me transferred to a hospital with ECMO due to my lung failure. It was two weeks after being placed on ECMO I was diagnosed with HLH. The treatment changed from antibiotics to chemotherapy and steroids. I was able to be taken off ECMO after 34 days and remained on ventilator support. I spent a total of 99 days inpatient. I made a partial recovery and remain on maintenance medications. I hope to help support and inspire others like me.