Life has really been life-ing hasn’t it?
This summer has been a welcome whirlwind of joy and fun and whimsy as well as nourishment and self care and strong boundaries after years of pain and exhaustion.
One of the wildest things about CPTSD, which I’m only now a few years into unraveling that onion, is that when you live life with trauma on top of trauma, you’ve done a lot of lying in the name of survival.
Lying to yourself, mostly. But also lying to others to get by, while not intentional, you absolutely learn that if you’re not covering every threat at the expense of your own wellness, there’s going to be consequences. So the trick is you have to lie to yourself, a lot. You tell the lies the manipulator and abuser told you, about how special you are, how you’re uniquely able to handle this hell you’ve been given. And you take it on. You’ve got this. You can handle anything! Including everyone else’s shit. It’s all on your shoulders baby and you’re a natural! And after years of lying that everyone else comes first, that you gotta make sure everyone else is okay until you’re ok, that that’s how it all works, that you can’t relax unless you know everyone else is okay and not upset… and you’ve truly convinced yourself this is fine. You’ve also convinced yourself you’re strong and smart and self aware as fuck! The crazy thing is you’re aware of everyone else while you’re hiding a lot of your own needs from yourself.
At least that’s where I am, what I’m realizing. I thought I knew myself, thought I was really taking care of myself, when all I’ve always been doing is continuing cycles of abuse again and again.
So, been working a lot on saying no or saying hey I wanna do this if you don’t want to come along that’s fine or if you want to leave early ok bye. I’m not extra extending myself, been deliberately not texting first for the last two years or so. And I know, relationships are a two way street but there were a hell of a lot of people in my life where if I didn’t reach out first or initiate or check in or ask questions, the relationship went flat. And I don’t have the spoons to be the mother of the relationships, ever. I never should have been extending myself so much to try to keep people. I am sick now. I need my people to be doing the showing up for me, and I need them to be asking me how they come correct for me.
I know I do need friends, and am working on finding those relationships that fit for where I am now. Deepening my art practices and joining more art events in Chicago as I submit my pieces to shows. I’m also putting energy into sapphic spaces and it’s so amazing how many queers are organizing beyond boystown, it makes my baby bi heart sob.
Another huge and wonderful shift for me lately is that my pain levels have consistently been so much lower. I am at a 3-4 pain scale, when a few months ago I was at a 7. That kind of drop will make you feel like god is real and life is magic again. Just a few years ago I was at a 12/10 pain every day. Trust and believe suicide ideation is a monster I fight regularly.
An uber driver said “gratitude with an attitude” the other day and I really loved the phrasing and it feels like where I am. I’ve finished something like 8 books so far this year? Huge for me when I used to have PAIN while trying to read and my vision would go blurry. What a blessing to finish books easily.
My therapist is a big part of the care formula of how I got here, but I did the work. Standing up to my mother and being honest about her bullshit changed a lot for me. And the veils have been falling in the reality of my life and what it’s always been. And it’s ok, the more I see it for what it always was, the more grace I have for myself and my disabilities. Things were really fucked up for me for a very long time. Most of my life in survival mode. Now, I get to enjoy and not feel guilty. But so many years of crap programming take gentleness and patience to undo.
FFB and I have been together now for 4 years. Every day I sink more into comfort and love with him. I still am shocked constantly that a man lives in my house and his sneezes make me jump every day. There’s just some shit your nervous system never seems to get used to (I also can be triggered into panic attacks if he comes up behind me and I don’t hear him coming and he surprise scares me, PTSD is a hell of the thing). And yet he makes sure I eat every day. He’s Buckley’s dad and we talk about getting another dog sometimes. We had an amazing trip in. Vegas and I loved that he loved the degenerateness of the city as much as I did. We’re going back in two weeks to celebrate his birthday. I love he’s spontaneous. I love he’s creative and has ideas out the wazoo and left his corporate gig to make movies with his friends. We make a great partnership and it’s so funny because we are open, we’ve always said our relationship will be poly…we are so into one another and so busy (or sick in my case) that we have stayed monogamous the last 3 years.
More than anything, I’m getting my cup filled lately in ways I never have. Someone recently said “it’s good to see you thriving” and I thought that was funny. By no means am I thriving. I am very much disabled living with many an invisible and dynamic chronic conditions. I could not work a job to support myself. I’m on disability. I don’t have friends I talk to regularly. Life is a struggle, often. I am working on me. And I’m really fucking proud of that and where I am.














