Ehlers Danlos Syndrome @ehlersdanlosfighter - Tumblr Blog

Doc: On average how many dislocations/subluxations do you experience a day? Me:

#edsprobs #chronic pain #dislocated everything

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Sleep is my happy place

#chronic illness #ehlers danlos syndrome #edsprobs #chronic fatigue

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Just EDS thought..

I don't know what I did in a past life to deserve this body but I'm about ready to travel to the past and beat the shit out of myself

#ehlers danlos syndrome #edsprobs #chronic pain

I've had more surgeries than boyfriends... This is not ok

#edsprobs #ehlers danlos syndrome

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ehlersdanlostees

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Today is Rare Diseases Day! Let’s raise awareness for over 6000 different disease and create hope for everyone who has to live with them every day!

ehlersdanloszebra

Ehlers Danlos Problem # 3

Having to explain your issues with a vague statement like “bad joints” in order to avoid a lengthy explanation about connective tissue and dislocations.

Me whenever I say i'm in pain bc of my disability:

friend, family member, random person, etc...: you know what you should try?

Me: hoe don't do it

Them: you should definitely look into yoga! its benef-

Me: oh my god

hearmerore

Lies in bed too long=pain

Stands too long=pain

Sits too long=pain

Walks too long=pain

is there anything I can do that doesn’t cause pain?

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Lol every day

#EDSprobs #realtalk

It makes me absolutely sick that less than a year after my first shoulder surgery I'm already being told it didn't work.

#EDS #ehler-Danlos

Shoulder scars make summer shopping a challenge.

Nothing like freaking out your new co workers with popping joints on your first day of work...

#whoops #EDS

Has anyone had experience with torn elbow ligaments?

#EDS #Help

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No, I'm not lying to get out of class.. I really do need to go relocate my elbow.

#teachers #elbow #EDS

Lol at people at school who think they "understand what I'm going through" nahhhh

#EDS #highschoolers

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