Disability is Normal

Art in progress.

taxes. [image: taken from my viewpoint so that arm and joystick of my powerchair are visible. Across from me is a desk with papers and the keyboard my tax advisor is working at]

I did it! I vlogged nearly a whole day! I got a bit carried away and filmed a lot more of Granville island than I meant to. I hope the footage comes out okay ^_^ my hope is editing these will be a little quicker. I need to learn to be less precious with them! Almost impossible for an obsessive perfectionist. 

Collarbone has been stuck forever..the rest of me is like jello. Today's heat and sun were way too much even for the brief amount of time I was outside. Brace yourselves....summer is comming. 

When I was a little girl, I saw myself as beautiful. Like fairy-princess riding a glass carriage to the ball kind of beautiful. I woke and ate and dressed and played and slept believing this. When I got a bit older, I started to pick up on the way people looked at me. They rushed to help me, seemed sad or even proud when I smiled, and stared at my paralyzed legs. I noticed that none of the fairy-princesses on the screens looked anything like me. And this is when I started to piece it together -- girls that looked like me were usually pitied, could maybe become inspirational, but were never beautiful. So I found ways to hide myself, obscure my imperfections, point the camera away from my paralyzed legs. But here I am, thirty years old, finding my way back to the little girl who saw herself as beautiful, who wasn't afraid to put on a lacy floor-length dress, just to go to the library, who didn't try to hide, who felt worthy of admiration. Day by day, I am building my beauty uniform -- the space I slip into that invites me to relish in my own particular beauty, to be seen without shame.

{Michelle is a tattoo shop owner and this is them with their coworkers}

One of my hobbies is #woodcarving . I kinda have major loss of function in my hands, which complicates things. Most of my hobbies require dexterity and the use of tools and/or knives - painting, sketching, cooking, gaming. Sometimes I think I do these things out of pure spite. 

My YouTube upload from last week. I’m both a wheelchair user and I receive all essential nutrition via a feeding tube that runs into my intestines. This doesn’t mean I can’t still enjoy the normal pleasures of life, sometimes it just means adaptations, and smaller amounts of said pleasures than is considered ‘normal’.

April 2015-

I chopped my hair.... Lol Jk- just my bangs:)

This will only be acknowledged and true when everyone stops ignoring disability. With movements like #SayTheWord, #DisabilityIsNormal and the various campaigns to get real, honest disability representation in the media, we will get there.

Både fint, obehagligt och lätt incestuöst när @miss_sof_e sjunger Moulin Rouge!-versionen av "Your Song" för mig.

and so kawakon ends, with a pretty chill sunday. 🌿

in honor of #rarediseaseday here's a full body photo of me rocking my knee braces. i've mentioned having ehlers-danlos syndrome twice before on this account, but it's something that affects my day to day life, so why not talk about it a few times?

Enjoying my Sunday morning cappuccino! I'll always have the comfiest seat in the house (;

https://twitter.com/spoonlesscutie/status/719314690942218240