Five Norwegian Researchers Found Guilty of Misconduct in Transgender Health Research
An ethics committee at the Oslo University Hospital has found three five researchers connected to Norway’s national gender incongruence treatment service guilty of serious breaches of research ethics in studies involving transgender patients.
Although Norway is known for relatively openminded attitudes towards trans people, both as far as policy making and public opinion are concerned, the global backlash has also had an effect here.
So it does not help that the public health support services for trans people remains locked into the quasi-monopoly of the National Treatment Service for Gender Incongruence (NBTK) at the Oslo University Hospital ("Riksen" or OUS).
Among Norwegian trans people the doctors there are known for their conservative gate-keeping.
They seem to think they are qualified to decide who are "real" trans people and who are not, based on rather old fashioned ideas about gender expression and "normal" sexuality.
And yes, the waiting lines for hormone treatments and surgery are long.
Unethical use of patient-data in research
Their arrogance is also reflected in their disregard for basic research ethics when it comes to using the data they gather through their handling of transgender clients.
They have been using data from medical records without getting the consent of the people involved.
An ethics committee at Oslo University Hospital has now found three five researchers guilty of serious breaches of research ethics in studies involving transgender people and young people with gender incongruence. The case concerns the use of patient records and registry data in four published articles.
[Update: The LGBTQ magazine Blikk reports that five researchers have been criticized.]
The researchers named are Anne Wæhre, Trond H. Diseth og Cecilie Bjertness Nyquist.
Redelighetsutvalget (i.e. The Committee on Research Integrity) is a joint body for the Faculty of Medicine at the University of Oslo (UiO), Oslo University Hospital Trust (OUS), and Akershus University Hospital Trust (Ahus).
According to their 164-page report (as obtained by the Norwegian newspaper Aftenposten), the committee has concluded that the researchers has acted with gross negligence.
In two of the articles, the breaches were so serious that they amounted to scientific misconduct, and they should be retracted. In the two remaining articles, the committee has found that the conduct is blameworthy, though not scientific misconduct of the most serious kind.
The breaches includes lack of patient consent, missing approval from the Regional Committees for Medical and Health Research Ethics, no exemption from confidentiality rules, insufficient anonymisation, and unclear legal and ethical justification for the use of registry data.
The committee also points to systemic failures at Oslo University Hospital, including weak institutional oversight and confusion over the boundary between research and quality assurance.
The whistleblowers are the Patient Organisation for Gender Incongruence (PKI) and an expert in statistics.
The researchers may appeal the ruling.
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Norwegian doctors/gatekeepers stop transgender kids from getting the treatment they need
Aftenposten: Tre forskere felt for vitenskapelig uredelighet i forskning på transpersoner (paywall)