Hi, my name is Milo and my bladder sucks. :)

Not all illnesses and disabilities are visible. 💖

Welcome to the Black Parade

track no. 05

Sometimes when my pain is at it's highest levels I find myself screaming out into the universe "Some one care about me! Can't anyone see I'm suffering? Doesn't anyone care at all that I'm in so much pain I can hardly bare existence?"

But there is often no one there. Maintaining friendships is hard with chronic illness and most people get fed up with you or your illness or just plain drift apart when its difficult to keep contact.

Even family members can get sick of hearing about your sickness, or too busy living their own lives or dealing with their own issues to give support.

Sometimes people just plain don't know how to help you even if they wanted to. They then have the luxury of putting your pain on the back shelf of their mind while you do not.

Everyone around you can become numb to your pain but you.

But when I'm at an 8 or higher and entering a pain crisis, I just wish someone could care: sit with me, watch a movie, treat me to one of favorite things, show me cute animal pictures, and commiserate.

Instead I mostly suffer in silence because I would rather that than to tell someone and get the same old non-reaction.