The Brine Gimp @brinegimp - Tumblr Blog

I have to work really hard to stop myself from becoming a huge internet troll. IRL, my disability keeps people from taking me seriously, or fighting back, or even hearing my soft-spoken words. But when I talk shit online, all the sudden people start calling me on my bullshit, getting nasty (but not about my disability), and generally treating me like a complete human being. All it takes is a little button pushing and I find myself smack in the middle of the conversation rather than sniveling in the margins. Sometimes a gimp just wants to get punched in the face to prove to himself that he’s alive, you know what I’m saying?

#cripple punk #cpunk #actually disabled

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When your muscles atrophy so much that you can’t masturbate anymore, the fact that staring at the sun can make you sneeze takes on a whole new importance, since it’s the closest thing to an orgasm you’re likely to get while awake for the rest of your life.

It also breathes a bit of truth into the old wive’s tale that excess self-love can make you go blind...

#cripple punk #cpunk #actually disabled #disability #dmd #chronic illness #duchenne muscular dystrophy #spoonie #wheelchair #muscular dystrophy #debilitation

To my new urologist: dude, you’re a trained medical doctor who’s been practicing for twenty-five years. How the hell is it possible that you can’t differentiate between multiple sclerosis and muscular dystrophy? At least take the time to get my diagnosis right, you ignorant ass.

#spoonie #cripple punk #cpunk #chronic illness #actually disabled #disability #ableism #dmd #duchenne muscular dystrophy #muscular dystrophy

illness-adnauseum

Reblog if your illness does define you

Reblog if your illness has shaped your outlook on life and the world.

Reblog if your illness has warped your perceptions of people and social situations.

Reblog if your illness has altered some of the most fundamental aspects of your personality.

Reblog if your illness has impacted all of your relationships, and even been the reason for the beginning or end of some.

Reblog if your illness is often the cause of your moods and emotions, and affects nearly all of your moods and emotions in regard to other things.

Reblog if your illness has changed the strength of your virtues, from compassion and tolerance, to perseverance and determination, to gratitude and generosity.

Reblog if your illness has been a part of your life for so long that you honestly can’t differentiate the parts of your identity that are influenced by your illness from the parts that aren’t influenced by your illness.

Most importantly, please reblog this if you’re okay with your illness being on the incredibly long list of things that define you. Reblog if you don’t feel like your identity has to be completely undefined by your illness in order be valid. Reblog if you don’t necessarily like the parts of yourself that come from your illness, but don’t think that makes them any less you.

My family recently adopted a rat terrier mix after her former owner died, and it’s becoming increasingly clear that this dog absolutely hates able-bodied people. When new people walk into the house, so long as they keep standing, she’ll bark and growl and bite at them until they sit down, at which point she’ll lay near their feet and chill. When they stand up again, however, it’s murder time.

Finally, somebody who gets it.

#cripple punk #cpunk #spoonie #chronic illness #actually disabled #ableism #disability #dmd #duchenne muscular dystrophy

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You know what I’d like to see? A movie or TV show where a person with bipolar disorder or schizophrenia takes their medicine with enthusiasm and enjoys the stability it brings them.

#ableism

It’s said that dogs and cats spend 70% of their lives sleeping. I think I spend 70% of my life thinking about poop--riding that fine, fluctuating line of MiraLAX dosage between constipation and diarrhea and bracing for the guilt that comes with an incorrect prognostication that only serves to make more work for my caregivers.

And even if I get the dosage right, I have to be cognizant of where I am at all times. If I’m not in my own house with my own hoyer lift and the appropriate able-bodied helper, pooping simply isn’t an option. If they gave awards for such a thing, I’d be a tenth degree black belt in Holding It, for I’ve been practicing pretty much my whole life. When I was a kid, the second I left for school, I knew I’d be walking a tightrope not just until I got home, but until my mom finally made it home as well. I remember sitting in the bathroom, alone, staring at the toilet with gurgling bowels, and realizing that if only one thing in my life of progressive debilitation could change, I’d be hard-pressed to pick something more transformational than being able to transfer to the toilet myself.

It’s amazing what some people can take for granted.

#chronic illness #disability #duchenne muscular dystrophy #dmd #spoonie #chronic constipation #independent living #wheelchair #cripple punk #cpunk #actually disabled

Is it just me, or is it becoming more and more popular to poke fun at sleep apnea and CPAP machines? I’ve been seeing it a lot on TV, most noticeably on The Last Man on Earth. It’s like writers have determined that it’s socially acceptable to make fun of people who might just die every single time they fall asleep, and are milking it for all it’s worth. It just goes to show that disability is one of the last things that political correctness (also known as empathy) hasn’t caught up to yet.

Muscular dystrophy has borked my diaphragm so that I need ventilatory support (BiPAP) about 70% of the time, though my own internalized ableism keeps me from wearing my set-up it in public. if I absolutely, positively need some deep breaths while out and about, I’ll sneak back to the car for a few incognito puffs, or, most likely, put my own health at risk out of embarrassment. It’s dumb, of course, but dumb (see? ableism and its associated language is insidious) is a major human trait. Nobody wants to be made fun of or feel less than, and every time I see someone wearing my exact same mask on TV and playing it for laughs, that internalized ableism insinuates itself just a little bit deeper.

#ableism #spoonie #cripple punk #actually disabled #chronic illness #dmd #duchenne muscular dystrophy #internalized ableism #sleep apnea #cpap #bipap #the last man on earth #disability #self sabotage #ventilator #muscular dystrophy

crpl-pnk

what are the principles of cripple punk? Are there any rules?

principles of cripple punk: -cripple punk is exclusively by the physically disabled for the physically disabled -cripple punk is about solidarity & is open to all physically disabled people -cripple punk rejects pity, inspiration porn, & all other forms of ableism -cripple punk rejects the “good cripple” mythos. cripple punk is here for the bitter cripple, the uninspirational cripple, the smoking cripple, the drinking cripple, the addict cripple, the cripple who hasn’t “tried everything” -cripple punk fights internalized ableism & fully supports those struggling with it -cripple punk respects intersections of race, culture, gender, sexual/romantic orientation, size, intersex status, mental illness/neuroatypical status, survivor status, etc. -cripple punk recognizes that there is no one universal disabled experience -cripple punk does not pander to the able bodied ————————other rules: -cripple punk is not conditional on things like mobility aids & “functioning levels” -always listen to those w/ different physical disabilities & different intersections than yourself. do not speak over them -disabled people do not need to personally identify w/ the words “cripple” or “punk” individually to be a part of cripple punk -able bodied people wishing to spread the message may only ever amplify the voices of the disabled -able bodied people may never use uncensored slurs themselves but never censor our language -able bodied people must always tag things like reblogs with “i’m able bodied”

-physically disabled people wanting to be a part of the movement who are uncomfortable using the slur may refer to it as “cpunk”

brinegimp

I was living a cripple punk lifestyle all along, but didn’t know how to articulate it until I found the above.

#cripple punk

Advantages of a PEG tube:

When the nerve pain from your degrading spinal fusion breaks through the floodgates and it’s time to ride the tram(adol)--you know, when the agony shoots up to your skull in those squeezing, pulsing tides that muffle your hearing by three quarters and otherwise dissociate you from the wider world--the PEG tube allows an opportunity to grind that little white pill into a fine white powder and shoot it straight into your gut where it hits you like the noontime sun on planet Mercury and tricks you into thinking that everything might just turn out okay after all.

#cripple punk #spoonie #disability #cpunk #actually disabled #chronic illness #dmd #duchenne muscular dystrophy

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