I DO NOT WANT A MOMMY, A DADDY OR A DOMINATRIX, so donāt ask and donāt follow me! I will block you if you do. I am 50+ I have Autism and suffer from a little known degenerative nerve disease called RSD/CRPS that has recently gone full body. I also have degenerative disc disease. I also suffer from pain-insomnia, anxiety, panic attacks, sensory overload, PTSD, type 2 diabetes and now ARFID as a result of more nerve damage during my tonsillectomy. As a result of some of the meds I was on and the nerve damage from the RSD/CRPS I now have to wear diapers full time. I now enjoy wearing my diapers, this is a nonsexual comfort zone for me. I was never diagnosed as high functioning autistic as a child. I was basically trained to repress my ticks, other traits and forced to be just a gifted kid due to my intelligence level.
this summer i recommend shower wipes or body wipes to people who struggle with hygiene due to disability, mental or physical. yes i know it produces unnecessary waste. yes thereās the argument of āif you buy the wipes then youāll never shower,ā but chances are most people who are struggling would Not Have Showered with or without access to wipes. i know it isnt a full shower but wiping yourself down can make a big difference in how you feel!!
along these lines you can think about buying mouthwash to use when itās too hard to brush your teeth, dry shampoo if itāll help keep your hair less oily when washing your hair is overwhelming, etc. you deserve easier ways to care for yourself and feel clean. also remember you are not a failure for struggling with hygiene even if society tells you otherwise!
For those that donāt want to add to the landfills. There are non rinse soaps available and you can use a washcloth.
But I still find baby wipes handy to get the extra oil off my face during the day or at night when Iām trying to sleep. My scalp and forehead produce lots of oil and sweat, I can feel quite gross, so a quick wash with a washcloth or a baby wipe makes me feel so much better.
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Real heroes don't need the media attention and fanfare.... They just just do what is right and kind for those around them. Trying to give others a better life if it's within their power. That's what a real hero does.
1. Fist: Make a fist around the epi-pen, donāt place your thumb/fingers over either end
2. Flick the blue cap off
3. Fire. Press down into the outer thigh (the big muscle in there), hold for 10 seconds before removing (the orange cap will cover the needle). Bare skin is best but the epi-pen will go through clothing. Avoid pockets and seams.Ā
- Ring an ambulance even if everything seems to be fine!
Oh my god.
So as someone who has to carry an epipen EVERYWHERE I am so happy to see that thereās an info post about them.
Like in the extreme case that I canāt inject myself, somebody else would have to do it, but nobody knows how to do it! Thank you, this may just save my life some day.
Donāt be wimpy about it, either. I know friends who are like,Ā ābut idk if I could stab you with a needle!ā Please stab me with the needle, donāt be hesitant about it.
In my case (I canāt speak for all allergies), an epi buys me 20 minutes of breathing to get to the hospital. It is not a magic bullet, itās a few critical minutes to help get me where I need to go.
For those who donāt know, people with serious food allergies carry epinephrine which is an adrenaline shot just in case they have anaphylaxis, which is a life threatening allergic attack. This shot is life-saving and must be administered to someone who is having an anaphylactic attack as SOON AS POSSIBLE, because an extra waited minute could mean their life.
It doesnāt hurt much at all to use this needle. The first time I used mine, I didnāt even feel it. But be sure to stab it IN THE OUTER THIGH. Do not stick it anywhere else or you could seriously hurt or kill someone. Just right to the outside of the thigh and then call the ambulance - even if your friend starts doing better, they could have a biphasic reaction, meaning a reaction that comes back (or they may need a second dose, be on the look out). If your friend has an epipen, then they have an epipen trainer that doesnāt have a needle and you can try it out just to be sure you know how to use the real thing if you have to. Iād also advise holding it a few more seconds then 10, maybe go for 14 just to be sure all the medicine is administered and that you didnāt count too fast - thatās what I did.
THANK YOU FOR THE GRAPHIC I was about to ask because my mom carries one around and so do some of my friends and I wanted to make sure I would do it right if I ever needed to!
Something to add from someone who used to work in healthcare. You want to stab that fucker in. Donāt be gentle about it because it might not work! Firm pressure.
Also when youāre done youāre supposed to massage the area! Itās an important step thatās typically left out in these things
[ID 1: a diagram with a photo of a stereotypical epi pen titled āepi-pen educationā. It says āblue to the sky, orange to the thighā as well as ā1) Fist. 2) Flick. 3) Fire. Hold for 10 seconds. Ring for an ambulance.ā End ID]
[ID 2: photo of a person holding the epipen mid-way up the side of their thigh (orange side against their jeans). End ID]
I just wish all the epi pen brands used the same steps, theyāre not all the same. The one I have currently, twist off the cap at needle end, remove blue safety and inject.
The Lynden, Washington School District will not provide IEPs to the teachers. They sit in the counsellorās file cabinet and no one reads them. They have students with dyslexia that donāt get help with reading! My nephew is a sophomore in high school and only has a reading and writing ability of a third grader because of his dyslexia. The schools basically told his family āGood luck getting help from usā
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James Chadwick (1891-1974) being the best science and math student in town, he won scholarships to the University of Manchester. He intended to study math, but entered physics line by mistake in 1908. He was too shy to explain that he had made a mistake and stayed where he was. So the career of one of the last centuryās most distinguished physicists began by accident. He later met & began working with Ernest Rutherford.
Intrigued by Rutherfordās speculation about a subatomic particle with no charge, Chadwick began a series of experiments to demonstrate its existence. The discovery of the neutron earned him the 1935 Nobel prize in physics. [x]
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i (type 1 diabetic) was explaining autoimmune diseases to someone and she was like ohh right so yours is the good kind of diabetes where you didn't do it to yourself. to which i objected that's not how type 2 works either. and she said well that's the fat old people disease. and i was like you can't say that, a) not how it works and b) extremely rude. and her defense was her grandparents have type 2 and "did it to themselves" and since they're fat old people she reserves the right to hate on them. i understand hating shitty grandparents but YOU are the shitty one here to hate on them for their medical conditions and weight rather than literally anything else. hello?!
anyway type 2 diabetics i'm sorry about the world. everyone* be kind to type 2s or else
*note to type 1 diabetics especially we need to be better at solidarity and not cling to being the "good ones" at type 2s' expense. what the fuck is a good kind of diabetes anyway
also worth saying diabetes is a complex reaction to a not-yet-fully-understood set of factors and environmental pressures and genetics and it's reductive and fatphobic to say fat=diabetes BUT EVEN SO no matter if someone did incontrovertibly "give themself diabetes" that's not a free pass for dehumanization. shut upppp
Iāve been borderline type 2 since I was a teenager. Now Iām in my 50ās and I am now diagnosed as a type 2. A lot of type 2ās are insulin resistant, so our bodies are producing insulin, it just doesnāt use it properly.
āI donāt think people with disabilities should be in [insert occupational field]ā
Okay. Have you taken time to consider how many disabled people you have already worked with in that field that you didnāt realize are disabled?
I know able-bodied people like to think that disability is obvious and visible all the time, but itās not. The fact is, you donāt know what someone else is capable of in their own body, even if you know everything there is to know (not possible) about their disability/s.
Iāve helped with medical emergencies with my own equipment, Iāve had to administer medication or do extra checks at work, Iāve had to explain that Iām not being rude when Iām eating fruit snacks during a meeting, Iām just trying not to die, and every time someone (not everyone, but always someone) finds it incredibly difficult to comprehend that I am disabled.
Iām young. Iām skinny. Iām active. I do a very physically demanding job. They canāt understand how Iām disabled and all of those other things, nor how they didnāt know about it until that moment.
I had this discussion very recently with a coworker at a new job. She said disabled people shouldnāt be in archaeology; itās too physically demanding and when they inevitably canāt live up to the standards, the people around them have to āpick up their slackā.
I explained my view as above and she said āIāve been doing this longer than you, I donāt think you understand.ā I said āI understand perfectly; you think I canāt or shouldnāt be doing this job.ā
She stared at me. Dumbfounded.
People never stop to consider who they are having that conversation with. When able-bodied people think ādisabilityā they think they are the all-knowing authority on who that applies to, but most have a very limited grasp on the sheer coverage of that word.
And even if they understand, they should not be the authority over our lives.
PE teacher kept making fun of me because I was not athletic and I made him vomit from exhaustion in front of the whole class.
This was well over a decade ago but I wanted to shareā¦
I was born with a congenital heart disease and had surgery as a kid. I am completely okay, but sports was obviously not my thing. I was small, skinny and clumsy because I never really could do the typical outdoors stuff like most kids. Got teased and bullied and all that. Typical for a geeky kid who doesnāt excel with a football.
In high school we had a mildly problematic PE teacher, a typical sports dude who would make fun of the slower kids. I still remember how he ordered my overweight friend to do a gymnastics jump from a trampoline over a stool (which he obviously couldnāt do) and he fell so hard he cracked his head.
I found peace with myself long before and mostly didnāt care and just took it. But it was stupid and i hated how he always encouraged the jock culture of making fun of āthe nerds.ā We would constantly do basketball or soccer/football. Thing about my specific condition is i donāt do explosive and reactive sports at all - so i would have to sit down every few minutes to catch my breath. You would think whatās wrong with that - but i was shamed about being the weakling of the class every week.
I like sports, though. A lot. I was just always told by my parents and doctors to take it easy - and growing up i noticed i had no problem whatsoever with endurance and steady, long distance efforts. As long as i donāt go into red, i could keep it up for quite a while.
So itās not a surprise i fell in love with road cycling when i first saw the Tour de France on TV. I was super skinny, couldnāt sprint, but i could climb a long mountain any day, pacing myself and blowing nearly anyone off my wheel on endurance. I got myself a road bike and never told anyone at school about my rides.
Here comes the revenge.
We had a class āsports dayā and there was a bus arranged to take us to the top of a mountain about an hour away, where we were to go on a hike. Our PE teacher said that if anyone wants, he will cycle up there and we could join him on the climb instead of the hike. I was the only one to volunteer. He was surprised and commented something to the effect of ākeeping upā and ānot gonna wait for youā but i insisted.
He couldnāt know i was more than capable to climb that mountain because he only saw me struggling with sports with him. He also couldnāt know that was my home hill, literally starting a kilometer from my house. I did that climb 100+ times and knew it blind, knew my pacing and while i was no Tadej Pogacar i knew i could probably drop my PE teacher at will there. For cyclists out there the climb is 12,5km, 6,9% gradient, super regular. For non cyclists: a perfect climb for a lightweight rider with good pacing and stamina.
So the day arrives and i did my warmup, nutrition and everything as if it was a life or death mountaintop time trial and rock up at the school in my full racing kit and my racing bike. I was 17, weighed 55kg and totally prepared. He was a typical middle aged overconfident ex soccer player probably weighing 90kg, on a standard mountain bike. Super perfect situation.
He sets a relatively hard pace on the 10km flat before the climb and i donāt speak or take the front. I take my good time to get back on his wheel after intersections and he probably thinks he will drop me the second we start going uphill.
Then the climb starts and it becomes very apparent to me (but not to him) that he is near his limit but that itās at least 5km/h slower than what i could do on that mountain.
But i donāt attack him. That would not be satisfying. Instead i start bantering how someoneās getting dropped today and it would be embarrassing if the whole class sees how i beat him. And then i take over the pace and slowly, slowly start turning the screw on him.
I went only a little faster. Then a bit more. I knew after about 3km he was in the red. So i ease off, keeping him just slightly over his limit for the next half an hour. I wanted to make him suffer but without dropping him. I let him recover for a tiny bit if he starts looking too bad, but then i would slowly push the tempo up to make it as painful to him as possible. It was Tour de France level mind games, i donāt think iāve ever enjoyed myself on my bike more.
We made it near the top together and i let it rip on the last 300m or so and it was that typical humiliation attack every amateur group ride cyclist knows. He dropped like a stone. I got my revenge and was very happy with myself. He said something about his heavy bike and i kept my mouth shut.
But it got better. On the top, he was clearly dead. So much so he had to vomit in the parking lot and even if only a few classmates saw it, everyone knew. He had to sit out the hike after and i just quietly sat there with him (because i didnāt need to do the hike, like he promised) and just looked at him enjoying the sweet revenge.
I didnāt say anything after that, nor did he. He never made any comments to me in PE class again.
Lesson: donāt bully your students - they might surprise you :)
I wish I could have gotten revenge on my PE teachers like this. All my PE teachers treated me like crap because I couldnāt keep up, didnāt have strength, coordination or endurance. None of them ever noticed that I passed out a few times after hard timed runs. When I complained about not being able to breathe I was told I was just out of shape and needed to try harder. Turns out I have asthma.
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its crps awareness day! awareness is exactly what this condition needs. crps is a condition where your brain tricks itself into thinking its in extreme pain in the affected area even if its not. its commonly nicknamed the suicide disease because its ranked so high on the mcgill pain index: 46 (7 above amputation of a digit). i was diagnosed in 2022 (though ive had it since 2016) and to even get the treatment i needed (which was just occupational and physical therapy as its not curable) i had to go out of state. no one ever knows what it is and its extremely frustrating getting told its constantly in my head because theres nothing āphysicallyā wrong with me. please please educate yourself on it because its so so important more people know about it so more doctors can treat it. its ruined my life and im in constant pain and all i want is more people to know about it. if anyone has any questions about it im an open book and ill answer anything :D
My step child came over to introduce me to his new partner. He had no problem introducing him to his mother but started stumbling for words to introduce me. I just said, āHi, Iām Jackās mean, evil and cruel step father, Auggie, nice to meet youā
